Cultural adaptation and validation of the Norwegian version of the swallowing quality of life questionnaire (SWAL-QOL)
Abstract Introduction Oropharyngeal dysphagia (OD) is a disorder that can have devastating and long lasting effects on a person’s medical, mental and psychosocial well-being, thus negatively impacting quality of life. There is currently no validated dysphagia-specific quality of life instrument in N...
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| Format: | Article |
| Language: | English |
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BMC
2019-12-01
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| Series: | Health and Quality of Life Outcomes |
| Subjects: | |
| Online Access: | https://doi.org/10.1186/s12955-019-1248-0 |
| _version_ | 1818352282103709696 |
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| author | Maribeth Caya Rivelsrud Melanie Kirmess Lena Hartelius |
| author_facet | Maribeth Caya Rivelsrud Melanie Kirmess Lena Hartelius |
| author_sort | Maribeth Caya Rivelsrud |
| collection | DOAJ |
| description | Abstract Introduction Oropharyngeal dysphagia (OD) is a disorder that can have devastating and long lasting effects on a person’s medical, mental and psychosocial well-being, thus negatively impacting quality of life. There is currently no validated dysphagia-specific quality of life instrument in Norway. This project aims to evaluate the psychometric properties of the culturally adapted Norwegian version of SWAL-QOL (Nor-SWAL-QOL). Methods The original SWAL-QOL was translated into Norwegian according the international translation guidelines. A group of 102 persons with OD and a group of 123 healthy controls were recruited to assess the validity and reliability of the Nor-SWAL-QOL. Correlation analysis of the Nor-SWAL-QOL and the Short Form 36 (SF-36) and correlation analysis of OD group and control group Nor-SWAL-QOL subscale scores were computed to determine convergent, discriminant, and known-groups validity which help comprise construct validity. Internal consistency, test-retest reliability and intraclass correlation coefficient (ICC) were computed for reliability. Results Convergent and discriminant validity was demonstrated between Nor-SWAL-QOL subscales and SF-36 domains, and distinguished between persons with and those without oropharyngeal dysphagia on all subscales and on the symptom frequency battery (p < 0.001). Additionally, the Nor-SWAL-QOL differentiated between symptom severity levels within the OD group; those requiring food and liquid modifications and those who are tube fed and not tube fed. Nor-SWAL-QOL showed good reliability with adequate internal consistency (Cronbach’s α ≥0.70), test-retest reliability (Spearman’s rho values 0.68–0.90) and ICC values (0.67–0.89) for all subscales and for the symptom frequency battery. Conclusion Access to valid and reliable dysphagia-specific QoL outcome measures for health care practitioners, dysphagia clinicians and researchers is necessary for comprehensive assessment and treatment outcome measures. The Nor-SWAL-QOL exhibits sufficient psychometric properties for implementation in the Norwegian population. |
| first_indexed | 2024-12-13T18:51:09Z |
| format | Article |
| id | doaj.art-8f3a7a89fe1b43fdb99aedbea49f6574 |
| institution | Directory Open Access Journal |
| issn | 1477-7525 |
| language | English |
| last_indexed | 2024-12-13T18:51:09Z |
| publishDate | 2019-12-01 |
| publisher | BMC |
| record_format | Article |
| series | Health and Quality of Life Outcomes |
| spelling | doaj.art-8f3a7a89fe1b43fdb99aedbea49f65742022-12-21T23:34:56ZengBMCHealth and Quality of Life Outcomes1477-75252019-12-0117111110.1186/s12955-019-1248-0Cultural adaptation and validation of the Norwegian version of the swallowing quality of life questionnaire (SWAL-QOL)Maribeth Caya Rivelsrud0Melanie Kirmess1Lena Hartelius2University of GothenburgDepartment of Research, Sunnaas Rehabilitation HospitalDepartment of Research, Sunnaas Rehabilitation HospitalAbstract Introduction Oropharyngeal dysphagia (OD) is a disorder that can have devastating and long lasting effects on a person’s medical, mental and psychosocial well-being, thus negatively impacting quality of life. There is currently no validated dysphagia-specific quality of life instrument in Norway. This project aims to evaluate the psychometric properties of the culturally adapted Norwegian version of SWAL-QOL (Nor-SWAL-QOL). Methods The original SWAL-QOL was translated into Norwegian according the international translation guidelines. A group of 102 persons with OD and a group of 123 healthy controls were recruited to assess the validity and reliability of the Nor-SWAL-QOL. Correlation analysis of the Nor-SWAL-QOL and the Short Form 36 (SF-36) and correlation analysis of OD group and control group Nor-SWAL-QOL subscale scores were computed to determine convergent, discriminant, and known-groups validity which help comprise construct validity. Internal consistency, test-retest reliability and intraclass correlation coefficient (ICC) were computed for reliability. Results Convergent and discriminant validity was demonstrated between Nor-SWAL-QOL subscales and SF-36 domains, and distinguished between persons with and those without oropharyngeal dysphagia on all subscales and on the symptom frequency battery (p < 0.001). Additionally, the Nor-SWAL-QOL differentiated between symptom severity levels within the OD group; those requiring food and liquid modifications and those who are tube fed and not tube fed. Nor-SWAL-QOL showed good reliability with adequate internal consistency (Cronbach’s α ≥0.70), test-retest reliability (Spearman’s rho values 0.68–0.90) and ICC values (0.67–0.89) for all subscales and for the symptom frequency battery. Conclusion Access to valid and reliable dysphagia-specific QoL outcome measures for health care practitioners, dysphagia clinicians and researchers is necessary for comprehensive assessment and treatment outcome measures. The Nor-SWAL-QOL exhibits sufficient psychometric properties for implementation in the Norwegian population.https://doi.org/10.1186/s12955-019-1248-0Deglutition disordersOropharyngeal dysphagiaHealth-related quality of lifeSWAL-QOLTranslationPsychometric |
| spellingShingle | Maribeth Caya Rivelsrud Melanie Kirmess Lena Hartelius Cultural adaptation and validation of the Norwegian version of the swallowing quality of life questionnaire (SWAL-QOL) Health and Quality of Life Outcomes Deglutition disorders Oropharyngeal dysphagia Health-related quality of life SWAL-QOL Translation Psychometric |
| title | Cultural adaptation and validation of the Norwegian version of the swallowing quality of life questionnaire (SWAL-QOL) |
| title_full | Cultural adaptation and validation of the Norwegian version of the swallowing quality of life questionnaire (SWAL-QOL) |
| title_fullStr | Cultural adaptation and validation of the Norwegian version of the swallowing quality of life questionnaire (SWAL-QOL) |
| title_full_unstemmed | Cultural adaptation and validation of the Norwegian version of the swallowing quality of life questionnaire (SWAL-QOL) |
| title_short | Cultural adaptation and validation of the Norwegian version of the swallowing quality of life questionnaire (SWAL-QOL) |
| title_sort | cultural adaptation and validation of the norwegian version of the swallowing quality of life questionnaire swal qol |
| topic | Deglutition disorders Oropharyngeal dysphagia Health-related quality of life SWAL-QOL Translation Psychometric |
| url | https://doi.org/10.1186/s12955-019-1248-0 |
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