Current HIV/AIDS end-of-life care in sub-Saharan Africa: a survey of models, services, challenges and priorities
<p>Abstract</p> <p>Background</p> <p>In response to increased global public health funding initiatives to HIV/AIDS care in Africa, this study aimed to describe practice models, strategies and challenges to delivering end-of-life care in sub-Saharan Africa.</p> <...
| Main Authors: | , , , , |
|---|---|
| Format: | Article |
| Language: | English |
| Published: |
BMC
2003-10-01
|
| Series: | BMC Public Health |
| Subjects: | |
| Online Access: | http://www.biomedcentral.com/1471-2458/3/33 |
| _version_ | 1818474227499532288 |
|---|---|
| author | O'Neill Joseph F Marconi Katherine Stewart Karen Harding Richard Higginson Irene J |
| author_facet | O'Neill Joseph F Marconi Katherine Stewart Karen Harding Richard Higginson Irene J |
| author_sort | O'Neill Joseph F |
| collection | DOAJ |
| description | <p>Abstract</p> <p>Background</p> <p>In response to increased global public health funding initiatives to HIV/AIDS care in Africa, this study aimed to describe practice models, strategies and challenges to delivering end-of-life care in sub-Saharan Africa.</p> <p>Methods</p> <p>A survey end-of-life care programs was conducted, addressing the domains of service aims and configuration, barriers to pain control, governmental endorsement and strategies, funding, monitoring and evaluation, and research. Both closed and qualitative responses were sought.</p> <p>Results</p> <p>Despite great structural challenges, data from 48 programs in 14 countries with a mean annual funding of US $374,884 demonstrated integrated care delivery across diverse settings. Care was commonly integrated with all advanced disease care (67%) and disease stages (65% offering care from diagnosis). The majority (98%) provided home-based care for a mean of 301 patients. Ninety-four percent reported challenges in pain control (including availability, lack of trained providers, stigma and legal restrictions), and 77% addressed the effects of poverty on disease progression and management. Although 85% of programs reported Government endorsement, end-of-life and palliative care National strategies were largely absent.</p> <p>Conclusions</p> <p>The interdependent tasks of expanding pain control, balancing quality and coverage of care, providing technical assistance in monitoring and evaluation, collaborating between donor agencies and governments, and educating policy makers and program directors of end-of-life care are all necessary if resources are to reach their goals.</p> |
| first_indexed | 2024-04-14T04:34:07Z |
| format | Article |
| id | doaj.art-906a73dca3d74d91b864d7b5f21dd382 |
| institution | Directory Open Access Journal |
| issn | 1471-2458 |
| language | English |
| last_indexed | 2024-04-14T04:34:07Z |
| publishDate | 2003-10-01 |
| publisher | BMC |
| record_format | Article |
| series | BMC Public Health |
| spelling | doaj.art-906a73dca3d74d91b864d7b5f21dd3822022-12-22T02:11:57ZengBMCBMC Public Health1471-24582003-10-01313310.1186/1471-2458-3-33Current HIV/AIDS end-of-life care in sub-Saharan Africa: a survey of models, services, challenges and prioritiesO'Neill Joseph FMarconi KatherineStewart KarenHarding RichardHigginson Irene J<p>Abstract</p> <p>Background</p> <p>In response to increased global public health funding initiatives to HIV/AIDS care in Africa, this study aimed to describe practice models, strategies and challenges to delivering end-of-life care in sub-Saharan Africa.</p> <p>Methods</p> <p>A survey end-of-life care programs was conducted, addressing the domains of service aims and configuration, barriers to pain control, governmental endorsement and strategies, funding, monitoring and evaluation, and research. Both closed and qualitative responses were sought.</p> <p>Results</p> <p>Despite great structural challenges, data from 48 programs in 14 countries with a mean annual funding of US $374,884 demonstrated integrated care delivery across diverse settings. Care was commonly integrated with all advanced disease care (67%) and disease stages (65% offering care from diagnosis). The majority (98%) provided home-based care for a mean of 301 patients. Ninety-four percent reported challenges in pain control (including availability, lack of trained providers, stigma and legal restrictions), and 77% addressed the effects of poverty on disease progression and management. Although 85% of programs reported Government endorsement, end-of-life and palliative care National strategies were largely absent.</p> <p>Conclusions</p> <p>The interdependent tasks of expanding pain control, balancing quality and coverage of care, providing technical assistance in monitoring and evaluation, collaborating between donor agencies and governments, and educating policy makers and program directors of end-of-life care are all necessary if resources are to reach their goals.</p>http://www.biomedcentral.com/1471-2458/3/33AfricaHIV/AIDSend-of-lifepain controlpolicypalliative |
| spellingShingle | O'Neill Joseph F Marconi Katherine Stewart Karen Harding Richard Higginson Irene J Current HIV/AIDS end-of-life care in sub-Saharan Africa: a survey of models, services, challenges and priorities BMC Public Health Africa HIV/AIDS end-of-life pain control policy palliative |
| title | Current HIV/AIDS end-of-life care in sub-Saharan Africa: a survey of models, services, challenges and priorities |
| title_full | Current HIV/AIDS end-of-life care in sub-Saharan Africa: a survey of models, services, challenges and priorities |
| title_fullStr | Current HIV/AIDS end-of-life care in sub-Saharan Africa: a survey of models, services, challenges and priorities |
| title_full_unstemmed | Current HIV/AIDS end-of-life care in sub-Saharan Africa: a survey of models, services, challenges and priorities |
| title_short | Current HIV/AIDS end-of-life care in sub-Saharan Africa: a survey of models, services, challenges and priorities |
| title_sort | current hiv aids end of life care in sub saharan africa a survey of models services challenges and priorities |
| topic | Africa HIV/AIDS end-of-life pain control policy palliative |
| url | http://www.biomedcentral.com/1471-2458/3/33 |
| work_keys_str_mv | AT oneilljosephf currenthivaidsendoflifecareinsubsaharanafricaasurveyofmodelsserviceschallengesandpriorities AT marconikatherine currenthivaidsendoflifecareinsubsaharanafricaasurveyofmodelsserviceschallengesandpriorities AT stewartkaren currenthivaidsendoflifecareinsubsaharanafricaasurveyofmodelsserviceschallengesandpriorities AT hardingrichard currenthivaidsendoflifecareinsubsaharanafricaasurveyofmodelsserviceschallengesandpriorities AT higginsonirenej currenthivaidsendoflifecareinsubsaharanafricaasurveyofmodelsserviceschallengesandpriorities |