The health-related quality-of-life of chronic obstructive pulmonary disease patients and disease-related indirect burdens
Background/Aims Many chronic obstructive pulmonary disease (COPD) patients have physical limitations. We investigated EuroQol five-dimensions five-level (EQ-5D-5L) of COPD patients to assess quality of life, and assessed indirect burden including time expenditure to visit doctor, home care rate, and...
| Main Authors: | , , , , , , , , , , |
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| Format: | Article |
| Language: | English |
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The Korean Association of Internal Medicine
2020-09-01
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| Series: | The Korean Journal of Internal Medicine |
| Subjects: | |
| Online Access: | http://www.kjim.org/upload/pdf/kjim-2018-398.pdf |
| _version_ | 1818360044113100800 |
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| author | Hye Sook Choi Dong-Wook Yang Chin Kook Rhee Hyoung Kyu Yoon Jin Hwa Lee Seong Yong Lim Yu-Il Kim Kwang Ha Yoo Yong-Il Hwang Sang Haak Lee Yong Bum Park |
| author_facet | Hye Sook Choi Dong-Wook Yang Chin Kook Rhee Hyoung Kyu Yoon Jin Hwa Lee Seong Yong Lim Yu-Il Kim Kwang Ha Yoo Yong-Il Hwang Sang Haak Lee Yong Bum Park |
| author_sort | Hye Sook Choi |
| collection | DOAJ |
| description | Background/Aims Many chronic obstructive pulmonary disease (COPD) patients have physical limitations. We investigated EuroQol five-dimensions five-level (EQ-5D-5L) of COPD patients to assess quality of life, and assessed indirect burden including time expenditure to visit doctor, home care rate, and caregiver related burden. Methods We recruited 355 COPD patients according to severity of airflow limitation that severity was set at 10% mild, 40% moderate, 30% severe, and 20% very severe in two primary and 11 secondary/tertiary hospitals. Eligible patients were aged ≥ 40 years, who have been diagnosed with COPD for more than 1 year. Patients were recruited between June 2015 and October 2016. Results The quality of life tended to decline with age, from mild to very severe impairment, as revealed by the EQ-5D-5L scores and the EQ visual analog scale. Family caregivers accompanied 22.6% of patients who visited outpatient clinics, and 25% of stage IV COPD patients. During emergency visits and hospitalization, this figure increased to > 60%. The home care rates were 28.5% for stage I patients, and 34.4, 31.8, and 52% for stage II to IV patients, respectively. The percentage of caregivers who stopped working was 13.6%. The EQ-5D index was strongly associated with the dyspnea scale (r = –0.64, p < 0.001). The average required time to see a doctor and visit the pharmacy was 154 minutes. Conclusions In patients with COPD, the EQ-5D index decreased and disease-related home caregiving increased with airflow limitation. We considered the caregiver- related burden when making a strategy for COPD management. |
| first_indexed | 2024-12-13T20:54:32Z |
| format | Article |
| id | doaj.art-9085a47ef70947c8ba941f177cf0c585 |
| institution | Directory Open Access Journal |
| issn | 1226-3303 2005-6648 |
| language | English |
| last_indexed | 2024-12-13T20:54:32Z |
| publishDate | 2020-09-01 |
| publisher | The Korean Association of Internal Medicine |
| record_format | Article |
| series | The Korean Journal of Internal Medicine |
| spelling | doaj.art-9085a47ef70947c8ba941f177cf0c5852022-12-21T23:31:47ZengThe Korean Association of Internal MedicineThe Korean Journal of Internal Medicine1226-33032005-66482020-09-013551136114410.3904/kjim.2018.398170302The health-related quality-of-life of chronic obstructive pulmonary disease patients and disease-related indirect burdensHye Sook Choi0Dong-Wook Yang1Chin Kook Rhee2Hyoung Kyu Yoon3Jin Hwa Lee4Seong Yong Lim5Yu-Il Kim6Kwang Ha Yoo7Yong-Il Hwang8Sang Haak Lee9Yong Bum Park10 Division of Pulmonary, Allergy and Critical Care Medicine, Department of Internal Medicine, Kyung Hee University Medical Center, Seoul, Korea Graduate School of Public Health, Seoul National University, Seoul, Korea Division of Pulmonary, Allergy and Critical Care Medicine, Department of Internal Medicine, Seoul St. Mary’s Hospital, College of Medicine, The Catholic University of Korea, Seoul, Korea Division of Pulmonary, Allergy and Critical Care Medicine, Department of Internal Medicine, Yeouido St. Mary’s Hospital, College of Medicine, The Catholic University of Korea, Seoul, Korea Division of Pulmonary, Allergy and Critical Care Medicine, Department of Internal Medicine, Ewha Womans University College of Medicine, Seoul, Korea Division of Pulmonary, Allergy and Critical Care Medicine, Department of Internal Medicine, Kangbuk Samsung Hospital, Sungkyunkwan University School of Medicine, Seoul, Korea Division of Pulmonary, Allergy and Critical Care Medicine, Department of Internal Medicine, Chonnam National University Hospital, Gwangju, Korea Division of Pulmonary, Allergy and Critical Care Medicine, Department of Internal Medicine, Konkuk University School of Medicine, Seoul, Korea Division of Pulmonary, Allergy and Critical Care Medicine, Department of Internal Medicine, Hallym University Sacred Heart Hospital, Anyang, Korea Division of Pulmonary, Allergy and Critical Care Medicine, Department of Internal Medicine, St. Paul’s Hospital, College of Medicine, The Catholic University of Korea, Seoul, Korea Division of Pulmonary, Allergy and Critical Care Medicine, Department of Internal Medicine, Hallym University Kangdong Sacred Heart Hospital, Seoul, KoreaBackground/Aims Many chronic obstructive pulmonary disease (COPD) patients have physical limitations. We investigated EuroQol five-dimensions five-level (EQ-5D-5L) of COPD patients to assess quality of life, and assessed indirect burden including time expenditure to visit doctor, home care rate, and caregiver related burden. Methods We recruited 355 COPD patients according to severity of airflow limitation that severity was set at 10% mild, 40% moderate, 30% severe, and 20% very severe in two primary and 11 secondary/tertiary hospitals. Eligible patients were aged ≥ 40 years, who have been diagnosed with COPD for more than 1 year. Patients were recruited between June 2015 and October 2016. Results The quality of life tended to decline with age, from mild to very severe impairment, as revealed by the EQ-5D-5L scores and the EQ visual analog scale. Family caregivers accompanied 22.6% of patients who visited outpatient clinics, and 25% of stage IV COPD patients. During emergency visits and hospitalization, this figure increased to > 60%. The home care rates were 28.5% for stage I patients, and 34.4, 31.8, and 52% for stage II to IV patients, respectively. The percentage of caregivers who stopped working was 13.6%. The EQ-5D index was strongly associated with the dyspnea scale (r = –0.64, p < 0.001). The average required time to see a doctor and visit the pharmacy was 154 minutes. Conclusions In patients with COPD, the EQ-5D index decreased and disease-related home caregiving increased with airflow limitation. We considered the caregiver- related burden when making a strategy for COPD management.http://www.kjim.org/upload/pdf/kjim-2018-398.pdfpulmonary disease, chronic obstructivehealth expenditurescaregiversquality of life |
| spellingShingle | Hye Sook Choi Dong-Wook Yang Chin Kook Rhee Hyoung Kyu Yoon Jin Hwa Lee Seong Yong Lim Yu-Il Kim Kwang Ha Yoo Yong-Il Hwang Sang Haak Lee Yong Bum Park The health-related quality-of-life of chronic obstructive pulmonary disease patients and disease-related indirect burdens The Korean Journal of Internal Medicine pulmonary disease, chronic obstructive health expenditures caregivers quality of life |
| title | The health-related quality-of-life of chronic obstructive pulmonary disease patients and disease-related indirect burdens |
| title_full | The health-related quality-of-life of chronic obstructive pulmonary disease patients and disease-related indirect burdens |
| title_fullStr | The health-related quality-of-life of chronic obstructive pulmonary disease patients and disease-related indirect burdens |
| title_full_unstemmed | The health-related quality-of-life of chronic obstructive pulmonary disease patients and disease-related indirect burdens |
| title_short | The health-related quality-of-life of chronic obstructive pulmonary disease patients and disease-related indirect burdens |
| title_sort | health related quality of life of chronic obstructive pulmonary disease patients and disease related indirect burdens |
| topic | pulmonary disease, chronic obstructive health expenditures caregivers quality of life |
| url | http://www.kjim.org/upload/pdf/kjim-2018-398.pdf |
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