Data management instruments to protect the personal information of children and adolescents in sub-Saharan Africa
Recent data protection regulatory frameworks, such as the Protection of Personal Information Act (POPI Act) in South Africa and the General Data Protection Regulation (GDPR) in the European Union, impose governance requirements for research involving high-risk and vulnerable groups such as children...
| Main Authors: | , , , , , , , , , , , , |
|---|---|
| Format: | Article |
| Language: | English |
| Published: |
International Association for Social Science Information Service and Technology
2023-06-01
|
| Series: | IASSIST Quarterly |
| Subjects: | |
| Online Access: | https://iassistquarterly.com/index.php/iassist/article/view/1044 |
| _version_ | 1797627477917433856 |
|---|---|
| author | Lucas Hertzog Jenny Chen-Charles Camille Wittesaele Kristen de Graaf Raylene Titus Jane Kelly Nontokozo Langwenya Lauren Baerecke Boladé Banougnin Wylene Saal John Southall Lucie Cluver Elona Toska |
| author_facet | Lucas Hertzog Jenny Chen-Charles Camille Wittesaele Kristen de Graaf Raylene Titus Jane Kelly Nontokozo Langwenya Lauren Baerecke Boladé Banougnin Wylene Saal John Southall Lucie Cluver Elona Toska |
| author_sort | Lucas Hertzog |
| collection | DOAJ |
| description |
Recent data protection regulatory frameworks, such as the Protection of Personal Information Act (POPI Act) in South Africa and the General Data Protection Regulation (GDPR) in the European Union, impose governance requirements for research involving high-risk and vulnerable groups such as children and adolescents. Our paper's objective is to unpack what constitutes adequate safeguards to protect the personal information of vulnerable populations such as children and adolescents. We suggest strategies to adhere meaningfully to the principal aims of data protection regulations. Navigating this within established research projects raises questions about how to interpret regulatory frameworks to build on existing mechanisms already used by researchers. Therefore, we will explore a series of best practices in safeguarding the personal information of children, adolescents and young people (0-24 years old), who represent more than half of sub-Saharan Africa's population. We discuss the actions taken by the research group to ensure regulations such as GDPR and POPIA effectively build on existing data protection mechanisms for research projects at all stages, focusing on promoting regulatory alignment throughout the data lifecycle. Our goal is to stimulate a broader conversation on improving the protection of sensitive personal information of children, adolescents and young people in sub-Saharan Africa. We join this discussion as a research group generating evidence influencing social and health policy and programming for young people in sub-Saharan Africa. Our contribution draws on our work adhering to multiple transnational governance frameworks imposed by national legislation, such as data protection regulations, funders, and academic institutions.
|
| first_indexed | 2024-03-11T10:24:49Z |
| format | Article |
| id | doaj.art-90fe78e455364e0bb9e42d1bbf358c2f |
| institution | Directory Open Access Journal |
| issn | 2331-4141 |
| language | English |
| last_indexed | 2024-03-11T10:24:49Z |
| publishDate | 2023-06-01 |
| publisher | International Association for Social Science Information Service and Technology |
| record_format | Article |
| series | IASSIST Quarterly |
| spelling | doaj.art-90fe78e455364e0bb9e42d1bbf358c2f2023-11-15T22:12:56ZengInternational Association for Social Science Information Service and TechnologyIASSIST Quarterly2331-41412023-06-0147210.29173/iq1044Data management instruments to protect the personal information of children and adolescents in sub-Saharan AfricaLucas Hertzog0https://orcid.org/0000-0001-9881-3648Jenny Chen-CharlesCamille WittesaeleKristen de GraafRaylene TitusJane KellyNontokozo LangwenyaLauren BaereckeBoladé BanougninWylene SaalJohn SouthallLucie CluverElona ToskaUniversity of Cape Town Recent data protection regulatory frameworks, such as the Protection of Personal Information Act (POPI Act) in South Africa and the General Data Protection Regulation (GDPR) in the European Union, impose governance requirements for research involving high-risk and vulnerable groups such as children and adolescents. Our paper's objective is to unpack what constitutes adequate safeguards to protect the personal information of vulnerable populations such as children and adolescents. We suggest strategies to adhere meaningfully to the principal aims of data protection regulations. Navigating this within established research projects raises questions about how to interpret regulatory frameworks to build on existing mechanisms already used by researchers. Therefore, we will explore a series of best practices in safeguarding the personal information of children, adolescents and young people (0-24 years old), who represent more than half of sub-Saharan Africa's population. We discuss the actions taken by the research group to ensure regulations such as GDPR and POPIA effectively build on existing data protection mechanisms for research projects at all stages, focusing on promoting regulatory alignment throughout the data lifecycle. Our goal is to stimulate a broader conversation on improving the protection of sensitive personal information of children, adolescents and young people in sub-Saharan Africa. We join this discussion as a research group generating evidence influencing social and health policy and programming for young people in sub-Saharan Africa. Our contribution draws on our work adhering to multiple transnational governance frameworks imposed by national legislation, such as data protection regulations, funders, and academic institutions. https://iassistquarterly.com/index.php/iassist/article/view/1044Data Managementchildren and adolescentsSub-Saharan Africapersonal information protectionhealth researchPOPIA |
| spellingShingle | Lucas Hertzog Jenny Chen-Charles Camille Wittesaele Kristen de Graaf Raylene Titus Jane Kelly Nontokozo Langwenya Lauren Baerecke Boladé Banougnin Wylene Saal John Southall Lucie Cluver Elona Toska Data management instruments to protect the personal information of children and adolescents in sub-Saharan Africa IASSIST Quarterly Data Management children and adolescents Sub-Saharan Africa personal information protection health research POPIA |
| title | Data management instruments to protect the personal information of children and adolescents in sub-Saharan Africa |
| title_full | Data management instruments to protect the personal information of children and adolescents in sub-Saharan Africa |
| title_fullStr | Data management instruments to protect the personal information of children and adolescents in sub-Saharan Africa |
| title_full_unstemmed | Data management instruments to protect the personal information of children and adolescents in sub-Saharan Africa |
| title_short | Data management instruments to protect the personal information of children and adolescents in sub-Saharan Africa |
| title_sort | data management instruments to protect the personal information of children and adolescents in sub saharan africa |
| topic | Data Management children and adolescents Sub-Saharan Africa personal information protection health research POPIA |
| url | https://iassistquarterly.com/index.php/iassist/article/view/1044 |
| work_keys_str_mv | AT lucashertzog datamanagementinstrumentstoprotectthepersonalinformationofchildrenandadolescentsinsubsaharanafrica AT jennychencharles datamanagementinstrumentstoprotectthepersonalinformationofchildrenandadolescentsinsubsaharanafrica AT camillewittesaele datamanagementinstrumentstoprotectthepersonalinformationofchildrenandadolescentsinsubsaharanafrica AT kristendegraaf datamanagementinstrumentstoprotectthepersonalinformationofchildrenandadolescentsinsubsaharanafrica AT raylenetitus datamanagementinstrumentstoprotectthepersonalinformationofchildrenandadolescentsinsubsaharanafrica AT janekelly datamanagementinstrumentstoprotectthepersonalinformationofchildrenandadolescentsinsubsaharanafrica AT nontokozolangwenya datamanagementinstrumentstoprotectthepersonalinformationofchildrenandadolescentsinsubsaharanafrica AT laurenbaerecke datamanagementinstrumentstoprotectthepersonalinformationofchildrenandadolescentsinsubsaharanafrica AT boladebanougnin datamanagementinstrumentstoprotectthepersonalinformationofchildrenandadolescentsinsubsaharanafrica AT wylenesaal datamanagementinstrumentstoprotectthepersonalinformationofchildrenandadolescentsinsubsaharanafrica AT johnsouthall datamanagementinstrumentstoprotectthepersonalinformationofchildrenandadolescentsinsubsaharanafrica AT luciecluver datamanagementinstrumentstoprotectthepersonalinformationofchildrenandadolescentsinsubsaharanafrica AT elonatoska datamanagementinstrumentstoprotectthepersonalinformationofchildrenandadolescentsinsubsaharanafrica |