ABC-tool reinvented: development of a disease-specific ‘Assessment of Burden of Chronic Conditions (ABCC)-tool’ for multiple chronic conditions
Abstract Background Numerous instruments have been developed to assess patient reported outcomes; most approaches however focus on a single condition. With the increasing prevalence of multimorbidity, this might no longer be appropriate. Moreover, a more comprehensive approach that facilitates share...
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| Format: | Article |
| Language: | English |
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BMC
2020-01-01
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| Series: | BMC Family Practice |
| Subjects: | |
| Online Access: | https://doi.org/10.1186/s12875-019-1075-8 |
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| author | Esther A. Boudewijns Danny Claessens Onno C. P. van Schayck Lotte C. E. M. Keijsers Philippe L. Salomé Johannes C. C. M. in ‘t Veen Henk J. G. Bilo Annerika H. M. Gidding-Slok |
| author_facet | Esther A. Boudewijns Danny Claessens Onno C. P. van Schayck Lotte C. E. M. Keijsers Philippe L. Salomé Johannes C. C. M. in ‘t Veen Henk J. G. Bilo Annerika H. M. Gidding-Slok |
| author_sort | Esther A. Boudewijns |
| collection | DOAJ |
| description | Abstract Background Numerous instruments have been developed to assess patient reported outcomes; most approaches however focus on a single condition. With the increasing prevalence of multimorbidity, this might no longer be appropriate. Moreover, a more comprehensive approach that facilitates shared decision making and stimulates self-management is most likely more valuable for clinical practice than a questionnaire alone. This study aims to transform the Assessment of Burden of Chronic Obstructive Pulmonary Disease (COPD) (ABC)-tool into the Assessment of Burden of Chronic Conditions (ABCC)-tool for COPD, asthma, and diabetes mellitus type 2 (DM2). The tool consists of a scale, a visualisation of the outcomes, and treatment advice. Methods Requirements for the tool were formulated. Questionnaires were developed based on a literature study of existing questionnaires, clinical guidelines, interviews with patients and healthcare providers, and input from an expert group. Cut-off points and treatment advice were determined to display the results and to provide practical recommendations. Results The ABCC-scale consists of a generic questionnaire and disease-specific questionnaires, which can be combined into a single individualized questionnaire for each patient. Results are displayed in one balloon chart, and each domain includes practical recommendations. Conclusions The ABCC-tool is expected to facilitate conversations between a patient and a healthcare provider, and to help formulate treatment plans and care plans with personalised goals. By facilitating an integrated approach, this instrument can be applied in a variety of circumstances and disease combinations. |
| first_indexed | 2024-04-13T12:42:49Z |
| format | Article |
| id | doaj.art-9232bdd6ed9b493a8d84b55d82c97841 |
| institution | Directory Open Access Journal |
| issn | 1471-2296 |
| language | English |
| last_indexed | 2024-04-13T12:42:49Z |
| publishDate | 2020-01-01 |
| publisher | BMC |
| record_format | Article |
| series | BMC Family Practice |
| spelling | doaj.art-9232bdd6ed9b493a8d84b55d82c978412022-12-22T02:46:27ZengBMCBMC Family Practice1471-22962020-01-012111710.1186/s12875-019-1075-8ABC-tool reinvented: development of a disease-specific ‘Assessment of Burden of Chronic Conditions (ABCC)-tool’ for multiple chronic conditionsEsther A. Boudewijns0Danny Claessens1Onno C. P. van Schayck2Lotte C. E. M. Keijsers3Philippe L. Salomé4Johannes C. C. M. in ‘t Veen5Henk J. G. Bilo6Annerika H. M. Gidding-Slok7Department of Family Medicine, Care and Public Health Research Institute (CAPHRI), Maastricht UniversityDepartment of Family Medicine, Care and Public Health Research Institute (CAPHRI), Maastricht UniversityDepartment of Family Medicine, Care and Public Health Research Institute (CAPHRI), Maastricht UniversityDepartment of Family Medicine, Care and Public Health Research Institute (CAPHRI), Maastricht UniversityGeneral practitionerDepartment of Pulmonology, Franciscus Gasthuis & VlietlandDepartment of Internal Medicine, University of Groningen, University Medical Centre GroningenDepartment of Family Medicine, Care and Public Health Research Institute (CAPHRI), Maastricht UniversityAbstract Background Numerous instruments have been developed to assess patient reported outcomes; most approaches however focus on a single condition. With the increasing prevalence of multimorbidity, this might no longer be appropriate. Moreover, a more comprehensive approach that facilitates shared decision making and stimulates self-management is most likely more valuable for clinical practice than a questionnaire alone. This study aims to transform the Assessment of Burden of Chronic Obstructive Pulmonary Disease (COPD) (ABC)-tool into the Assessment of Burden of Chronic Conditions (ABCC)-tool for COPD, asthma, and diabetes mellitus type 2 (DM2). The tool consists of a scale, a visualisation of the outcomes, and treatment advice. Methods Requirements for the tool were formulated. Questionnaires were developed based on a literature study of existing questionnaires, clinical guidelines, interviews with patients and healthcare providers, and input from an expert group. Cut-off points and treatment advice were determined to display the results and to provide practical recommendations. Results The ABCC-scale consists of a generic questionnaire and disease-specific questionnaires, which can be combined into a single individualized questionnaire for each patient. Results are displayed in one balloon chart, and each domain includes practical recommendations. Conclusions The ABCC-tool is expected to facilitate conversations between a patient and a healthcare provider, and to help formulate treatment plans and care plans with personalised goals. By facilitating an integrated approach, this instrument can be applied in a variety of circumstances and disease combinations.https://doi.org/10.1186/s12875-019-1075-8Burden of diseaseChronic diseaseABCC-toolSelf-managementQuestionnaireAsthma |
| spellingShingle | Esther A. Boudewijns Danny Claessens Onno C. P. van Schayck Lotte C. E. M. Keijsers Philippe L. Salomé Johannes C. C. M. in ‘t Veen Henk J. G. Bilo Annerika H. M. Gidding-Slok ABC-tool reinvented: development of a disease-specific ‘Assessment of Burden of Chronic Conditions (ABCC)-tool’ for multiple chronic conditions BMC Family Practice Burden of disease Chronic disease ABCC-tool Self-management Questionnaire Asthma |
| title | ABC-tool reinvented: development of a disease-specific ‘Assessment of Burden of Chronic Conditions (ABCC)-tool’ for multiple chronic conditions |
| title_full | ABC-tool reinvented: development of a disease-specific ‘Assessment of Burden of Chronic Conditions (ABCC)-tool’ for multiple chronic conditions |
| title_fullStr | ABC-tool reinvented: development of a disease-specific ‘Assessment of Burden of Chronic Conditions (ABCC)-tool’ for multiple chronic conditions |
| title_full_unstemmed | ABC-tool reinvented: development of a disease-specific ‘Assessment of Burden of Chronic Conditions (ABCC)-tool’ for multiple chronic conditions |
| title_short | ABC-tool reinvented: development of a disease-specific ‘Assessment of Burden of Chronic Conditions (ABCC)-tool’ for multiple chronic conditions |
| title_sort | abc tool reinvented development of a disease specific assessment of burden of chronic conditions abcc tool for multiple chronic conditions |
| topic | Burden of disease Chronic disease ABCC-tool Self-management Questionnaire Asthma |
| url | https://doi.org/10.1186/s12875-019-1075-8 |
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