Garbage codes in the Norwegian Cause of Death Registry 1996–2019

Abstract Background Reliable statistics on the underlying cause of death are essential for monitoring the health in a population. When there is insufficient information to identify the true underlying cause of death, the death will be classified using less informative codes, garbage codes. If many d...

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Main Authors: Christian Lycke Ellingsen, G. Cecilie Alfsen, Marta Ebbing, Anne Gro Pedersen, Gerhard Sulo, Stein Emil Vollset, Geir Sverre Braut
Format: Article
Language:English
Published: BMC 2022-07-01
Series:BMC Public Health
Subjects:
Online Access:https://doi.org/10.1186/s12889-022-13693-w
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author Christian Lycke Ellingsen
G. Cecilie Alfsen
Marta Ebbing
Anne Gro Pedersen
Gerhard Sulo
Stein Emil Vollset
Geir Sverre Braut
author_facet Christian Lycke Ellingsen
G. Cecilie Alfsen
Marta Ebbing
Anne Gro Pedersen
Gerhard Sulo
Stein Emil Vollset
Geir Sverre Braut
author_sort Christian Lycke Ellingsen
collection DOAJ
description Abstract Background Reliable statistics on the underlying cause of death are essential for monitoring the health in a population. When there is insufficient information to identify the true underlying cause of death, the death will be classified using less informative codes, garbage codes. If many deaths are assigned a garbage code, the information value of the cause-of-death statistics is reduced. The aim of this study was to analyse the use of garbage codes in the Norwegian Cause of Death Registry (NCoDR). Methods Data from NCoDR on all deaths among Norwegian residents in the years 1996–2019 were used to describe the occurrence of garbage codes. We used logistic regression analyses to identify determinants for the use of garbage codes. Possible explanatory factors were year of death, sex, age of death, place of death and whether an autopsy was performed. Results A total of 29.0% (290,469/1,000,128) of the deaths were coded with a garbage code; 14.1% (140,804/1,000,128) with a major and 15.0% (149,665/1,000,128) with a minor garbage code. The five most common major garbage codes overall were ICD-10 codes I50 (heart failure), R96 (sudden death), R54 (senility), X59 (exposure to unspecified factor), and A41 (other sepsis). The most prevalent minor garbage codes were I64 (unspecified stroke), J18 (unspecified pneumonia), C80 (malignant neoplasm with unknown primary site), E14 (unspecified diabetes mellitus), and I69 (sequelae of cerebrovascular disease). The most important determinants for the use of garbage codes were the age of the deceased (OR 17.4 for age ≥ 90 vs age < 1) and death outside hospital (OR 2.08 for unknown place of death vs hospital). Conclusion Over a 24-year period, garbage codes were used in 29.0% of all deaths. The most important determinants of a death to be assigned a garbage code were advanced age and place of death outside hospital. Knowledge of the national epidemiological situation, as well as the rules and guidelines for mortality coding, is essential for understanding the prevalence and distribution of garbage codes, in order to rely on vital statistics.
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spelling doaj.art-93351309dedf4e4cbd646162013429a72022-12-22T01:26:04ZengBMCBMC Public Health1471-24582022-07-0122111510.1186/s12889-022-13693-wGarbage codes in the Norwegian Cause of Death Registry 1996–2019Christian Lycke Ellingsen0G. Cecilie Alfsen1Marta Ebbing2Anne Gro Pedersen3Gerhard Sulo4Stein Emil Vollset5Geir Sverre Braut6Department of Pathology, Stavanger University HospitalDepartment of Pathology, Akershus University HospitalDepartment of Research and Development, Haukeland University HospitalDepartment for Health Data and Collection, Norwegian Institute of Public HealthCentre for Disease Burden, Norwegian Institute of Public HealthDepartment of Global Public Health and Primary Care, University of BergenDepartment of Research, Stavanger University HospitalAbstract Background Reliable statistics on the underlying cause of death are essential for monitoring the health in a population. When there is insufficient information to identify the true underlying cause of death, the death will be classified using less informative codes, garbage codes. If many deaths are assigned a garbage code, the information value of the cause-of-death statistics is reduced. The aim of this study was to analyse the use of garbage codes in the Norwegian Cause of Death Registry (NCoDR). Methods Data from NCoDR on all deaths among Norwegian residents in the years 1996–2019 were used to describe the occurrence of garbage codes. We used logistic regression analyses to identify determinants for the use of garbage codes. Possible explanatory factors were year of death, sex, age of death, place of death and whether an autopsy was performed. Results A total of 29.0% (290,469/1,000,128) of the deaths were coded with a garbage code; 14.1% (140,804/1,000,128) with a major and 15.0% (149,665/1,000,128) with a minor garbage code. The five most common major garbage codes overall were ICD-10 codes I50 (heart failure), R96 (sudden death), R54 (senility), X59 (exposure to unspecified factor), and A41 (other sepsis). The most prevalent minor garbage codes were I64 (unspecified stroke), J18 (unspecified pneumonia), C80 (malignant neoplasm with unknown primary site), E14 (unspecified diabetes mellitus), and I69 (sequelae of cerebrovascular disease). The most important determinants for the use of garbage codes were the age of the deceased (OR 17.4 for age ≥ 90 vs age < 1) and death outside hospital (OR 2.08 for unknown place of death vs hospital). Conclusion Over a 24-year period, garbage codes were used in 29.0% of all deaths. The most important determinants of a death to be assigned a garbage code were advanced age and place of death outside hospital. Knowledge of the national epidemiological situation, as well as the rules and guidelines for mortality coding, is essential for understanding the prevalence and distribution of garbage codes, in order to rely on vital statistics.https://doi.org/10.1186/s12889-022-13693-wCause of deathDeath certificateCause of death registerGarbage codeNon-informative code
spellingShingle Christian Lycke Ellingsen
G. Cecilie Alfsen
Marta Ebbing
Anne Gro Pedersen
Gerhard Sulo
Stein Emil Vollset
Geir Sverre Braut
Garbage codes in the Norwegian Cause of Death Registry 1996–2019
BMC Public Health
Cause of death
Death certificate
Cause of death register
Garbage code
Non-informative code
title Garbage codes in the Norwegian Cause of Death Registry 1996–2019
title_full Garbage codes in the Norwegian Cause of Death Registry 1996–2019
title_fullStr Garbage codes in the Norwegian Cause of Death Registry 1996–2019
title_full_unstemmed Garbage codes in the Norwegian Cause of Death Registry 1996–2019
title_short Garbage codes in the Norwegian Cause of Death Registry 1996–2019
title_sort garbage codes in the norwegian cause of death registry 1996 2019
topic Cause of death
Death certificate
Cause of death register
Garbage code
Non-informative code
url https://doi.org/10.1186/s12889-022-13693-w
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