Recruitment and retention of US South Asians for an epidemiologic cohort: Experience from the MASALA study
AbstractIntroduction:There are few longitudinal studies about South Asians (SAs) and little information about recruitment and retention approaches for this ethnic group.Methods:We followed 906 SAs enrolled in the Mediators of Atherosclerosis in South Asians Living in America (MASALA) cohort for 5 ye...
| Main Authors: | , , , , , , , , , , |
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| Format: | Article |
| Language: | English |
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Cambridge University Press
2019-06-01
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| Series: | Journal of Clinical and Translational Science |
| Subjects: | |
| Online Access: | https://www.cambridge.org/core/product/identifier/S2059866119003716/type/journal_article |
| _version_ | 1811156867537174528 |
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| author | Alka M. Kanaya Ann Chang Michael Schembri Ankita Puri-Taneja Shweta Srivastava Swapna S. Dave Evangeline N. Vijayakumar Zubaida Qamar Hemalatha D. Naik Faiza Siddiqui Namratha R. Kandula |
| author_facet | Alka M. Kanaya Ann Chang Michael Schembri Ankita Puri-Taneja Shweta Srivastava Swapna S. Dave Evangeline N. Vijayakumar Zubaida Qamar Hemalatha D. Naik Faiza Siddiqui Namratha R. Kandula |
| author_sort | Alka M. Kanaya |
| collection | DOAJ |
| description | AbstractIntroduction:There are few longitudinal studies about South Asians (SAs) and little information about recruitment and retention approaches for this ethnic group.Methods:We followed 906 SAs enrolled in the Mediators of Atherosclerosis in South Asians Living in America (MASALA) cohort for 5 years. Surviving participants were invited for a second clinical exam from 2015 to 2018. A new wave of participants was recruited during 2017–2018. We assessed the yields from different methods of recruitment and retention.Results:A total of 759 (83%) completed the second clinical exam, and 258 new participants were enrolled. Providing a nearby community hospital location for the study exam, offering cab/shared ride reimbursement, and conducting home visits were the most effective methods for enhancing retention. New participant recruitment targeted women and individuals with lower socioeconomic status, and we found that participant referrals and active community engagement were most effective. Mailing invitational letters to those identified by electronic health records had very low yield.Conclusion:Recruitment and retention strategies that address transportation barriers and increase community engagement will help increase the representation of SAs in health research. |
| first_indexed | 2024-04-10T04:57:11Z |
| format | Article |
| id | doaj.art-9392237c7eac4cf7a40c547cc85b8957 |
| institution | Directory Open Access Journal |
| issn | 2059-8661 |
| language | English |
| last_indexed | 2024-04-10T04:57:11Z |
| publishDate | 2019-06-01 |
| publisher | Cambridge University Press |
| record_format | Article |
| series | Journal of Clinical and Translational Science |
| spelling | doaj.art-9392237c7eac4cf7a40c547cc85b89572023-03-09T12:29:47ZengCambridge University PressJournal of Clinical and Translational Science2059-86612019-06-0139710410.1017/cts.2019.371Recruitment and retention of US South Asians for an epidemiologic cohort: Experience from the MASALA studyAlka M. Kanaya0Ann Chang1Michael Schembri2Ankita Puri-Taneja3Shweta Srivastava4Swapna S. Dave5Evangeline N. Vijayakumar6Zubaida Qamar7Hemalatha D. Naik8Faiza Siddiqui9Namratha R. Kandula10Department of Medicine, University of California, San Francisco, San Francisco, California, USADepartment of Medicine, University of California, San Francisco, San Francisco, California, USADepartment of Medicine, University of California, San Francisco, San Francisco, California, USADepartment of Medicine, Northwestern University, Chicago, Illinois, USADepartment of Medicine, University of California, San Francisco, San Francisco, California, USADepartment of Medicine, Northwestern University, Chicago, Illinois, USADepartment of Medicine, University of California, San Francisco, San Francisco, California, USADepartment of Medicine, University of California, San Francisco, San Francisco, California, USA Family, Interiors, Nutrition and Apparel Department, San Francisco State University, San Francisco, California, USADepartment of Medicine, Northwestern University, Chicago, Illinois, USADepartment of Medicine, Northwestern University, Chicago, Illinois, USADepartment of Medicine, Northwestern University, Chicago, Illinois, USA Department of Preventive Medicine, Northwestern University, Chicago, Illinois, USAAbstractIntroduction:There are few longitudinal studies about South Asians (SAs) and little information about recruitment and retention approaches for this ethnic group.Methods:We followed 906 SAs enrolled in the Mediators of Atherosclerosis in South Asians Living in America (MASALA) cohort for 5 years. Surviving participants were invited for a second clinical exam from 2015 to 2018. A new wave of participants was recruited during 2017–2018. We assessed the yields from different methods of recruitment and retention.Results:A total of 759 (83%) completed the second clinical exam, and 258 new participants were enrolled. Providing a nearby community hospital location for the study exam, offering cab/shared ride reimbursement, and conducting home visits were the most effective methods for enhancing retention. New participant recruitment targeted women and individuals with lower socioeconomic status, and we found that participant referrals and active community engagement were most effective. Mailing invitational letters to those identified by electronic health records had very low yield.Conclusion:Recruitment and retention strategies that address transportation barriers and increase community engagement will help increase the representation of SAs in health research.https://www.cambridge.org/core/product/identifier/S2059866119003716/type/journal_articleEthnic minorityrecruitmentretentionlongitudinal studyepidemiology |
| spellingShingle | Alka M. Kanaya Ann Chang Michael Schembri Ankita Puri-Taneja Shweta Srivastava Swapna S. Dave Evangeline N. Vijayakumar Zubaida Qamar Hemalatha D. Naik Faiza Siddiqui Namratha R. Kandula Recruitment and retention of US South Asians for an epidemiologic cohort: Experience from the MASALA study Journal of Clinical and Translational Science Ethnic minority recruitment retention longitudinal study epidemiology |
| title | Recruitment and retention of US South Asians for an epidemiologic cohort: Experience from the MASALA study |
| title_full | Recruitment and retention of US South Asians for an epidemiologic cohort: Experience from the MASALA study |
| title_fullStr | Recruitment and retention of US South Asians for an epidemiologic cohort: Experience from the MASALA study |
| title_full_unstemmed | Recruitment and retention of US South Asians for an epidemiologic cohort: Experience from the MASALA study |
| title_short | Recruitment and retention of US South Asians for an epidemiologic cohort: Experience from the MASALA study |
| title_sort | recruitment and retention of us south asians for an epidemiologic cohort experience from the masala study |
| topic | Ethnic minority recruitment retention longitudinal study epidemiology |
| url | https://www.cambridge.org/core/product/identifier/S2059866119003716/type/journal_article |
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