National Cancer Information System Within the Framework of Health Insurance in Colombia: A Real-World Data Approach to Evaluate Access to Cancer Care

PURPOSEThe National Cancer Information System (NCIS) has been operating since 2014, including information reported by health care insurers and providers on people with cancer diagnosed and treated within the Colombian health system. Its main purpose is to identify barriers to an effective access to...

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Main Authors: Juliana Alexandra Hernández Vargas, Paula Ximena Ramírez Barbosa, Ana Maria Valbuena-Garcia, Lizbeth Alexandra Acuña-Merchán, Jaime A. González-Diaz, Gilberto Lopes
Format: Article
Language:English
Published: American Society of Clinical Oncology 2021-12-01
Series:JCO Global Oncology
Online Access:https://ascopubs.org/doi/10.1200/GO.21.00155
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author Juliana Alexandra Hernández Vargas
Paula Ximena Ramírez Barbosa
Ana Maria Valbuena-Garcia
Lizbeth Alexandra Acuña-Merchán
Jaime A. González-Diaz
Gilberto Lopes
author_facet Juliana Alexandra Hernández Vargas
Paula Ximena Ramírez Barbosa
Ana Maria Valbuena-Garcia
Lizbeth Alexandra Acuña-Merchán
Jaime A. González-Diaz
Gilberto Lopes
author_sort Juliana Alexandra Hernández Vargas
collection DOAJ
description PURPOSEThe National Cancer Information System (NCIS) has been operating since 2014, including information reported by health care insurers and providers on people with cancer diagnosed and treated within the Colombian health system. Its main purpose is to identify barriers to an effective access to cancer diagnosis and treatment across the country. We aimed to describe the methodology, scope and results in terms of access to health services with real-world data provided by the NCIS.METHODSReporting of all cases of cancer by insurers and providers is mandatory by law. Data gathered include demographic and clinical information about new and old cases of cancer who receive health services. Over the years, the reporting process has been automated and it is currently performed in real time. Data quality is ensured through a standardized data-monitoring process. Access to health services is monitored by quality measures defined by consensus.RESULTSSince 2015, prevalent cases of invasive cancer have increased from 163,776 to 331,021 in 2020 (increment of 102.12%). Regarding quality measures, the proportion of people staged at diagnosis has increased over the years, especially in breast cancer. Meanwhile, early diagnosis is still concerning for breast and prostate cancer. Time to diagnosis and treatment have not consistently reached the expected goals in breast, cervical, and prostate cancer, whereas they have shown a better level of compliance for stomach and colon and rectum tumors, still not reaching the highest performance.CONCLUSIONThe real-world information approach provided by the NCIS may be complementary for cancer control planning in Colombia, emphasizing better management processes of health insurers and providers by identifying barriers for timely access to health care.
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spelling doaj.art-94151550c0654a9984587a5c50bc17892022-12-21T23:33:13ZengAmerican Society of Clinical OncologyJCO Global Oncology2687-89412021-12-0171329134010.1200/GO.21.00155National Cancer Information System Within the Framework of Health Insurance in Colombia: A Real-World Data Approach to Evaluate Access to Cancer CareJuliana Alexandra Hernández Vargas0Paula Ximena Ramírez Barbosa1Ana Maria Valbuena-Garcia2Lizbeth Alexandra Acuña-Merchán3Jaime A. González-Diaz4Gilberto Lopes5Cuenta de Alto Costo, Fondo Colombiano de Enfermedades de Alto Costo, Bogotá, ColombiaCuenta de Alto Costo, Fondo Colombiano de Enfermedades de Alto Costo, Bogotá, ColombiaCuenta de Alto Costo, Fondo Colombiano de Enfermedades de Alto Costo, Bogotá, ColombiaCuenta de Alto Costo, Fondo Colombiano de Enfermedades de Alto Costo, Bogotá, ColombiaAsociación Colombiana de Hematología y Oncología, Bogotá, ColombiaDivision of Medical Oncology at University of Miami Sylvester Comprehensive Cancer Center, Miami, FLPURPOSEThe National Cancer Information System (NCIS) has been operating since 2014, including information reported by health care insurers and providers on people with cancer diagnosed and treated within the Colombian health system. Its main purpose is to identify barriers to an effective access to cancer diagnosis and treatment across the country. We aimed to describe the methodology, scope and results in terms of access to health services with real-world data provided by the NCIS.METHODSReporting of all cases of cancer by insurers and providers is mandatory by law. Data gathered include demographic and clinical information about new and old cases of cancer who receive health services. Over the years, the reporting process has been automated and it is currently performed in real time. Data quality is ensured through a standardized data-monitoring process. Access to health services is monitored by quality measures defined by consensus.RESULTSSince 2015, prevalent cases of invasive cancer have increased from 163,776 to 331,021 in 2020 (increment of 102.12%). Regarding quality measures, the proportion of people staged at diagnosis has increased over the years, especially in breast cancer. Meanwhile, early diagnosis is still concerning for breast and prostate cancer. Time to diagnosis and treatment have not consistently reached the expected goals in breast, cervical, and prostate cancer, whereas they have shown a better level of compliance for stomach and colon and rectum tumors, still not reaching the highest performance.CONCLUSIONThe real-world information approach provided by the NCIS may be complementary for cancer control planning in Colombia, emphasizing better management processes of health insurers and providers by identifying barriers for timely access to health care.https://ascopubs.org/doi/10.1200/GO.21.00155
spellingShingle Juliana Alexandra Hernández Vargas
Paula Ximena Ramírez Barbosa
Ana Maria Valbuena-Garcia
Lizbeth Alexandra Acuña-Merchán
Jaime A. González-Diaz
Gilberto Lopes
National Cancer Information System Within the Framework of Health Insurance in Colombia: A Real-World Data Approach to Evaluate Access to Cancer Care
JCO Global Oncology
title National Cancer Information System Within the Framework of Health Insurance in Colombia: A Real-World Data Approach to Evaluate Access to Cancer Care
title_full National Cancer Information System Within the Framework of Health Insurance in Colombia: A Real-World Data Approach to Evaluate Access to Cancer Care
title_fullStr National Cancer Information System Within the Framework of Health Insurance in Colombia: A Real-World Data Approach to Evaluate Access to Cancer Care
title_full_unstemmed National Cancer Information System Within the Framework of Health Insurance in Colombia: A Real-World Data Approach to Evaluate Access to Cancer Care
title_short National Cancer Information System Within the Framework of Health Insurance in Colombia: A Real-World Data Approach to Evaluate Access to Cancer Care
title_sort national cancer information system within the framework of health insurance in colombia a real world data approach to evaluate access to cancer care
url https://ascopubs.org/doi/10.1200/GO.21.00155
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