Recruitment via social media: advantages and potential biases

Background Adolescent and young adult (AYA) cancer survivors are under-represented in research. Social media is increasingly used for recruitment given its ability to reach large audiences. Differences in participant characteristics and potential biases due to recruitment source are not well underst...

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Main Authors: Catherine Benedict, Alexandria L Hahn, Michael A Diefenbach, Jennifer S Ford
Format: Article
Language:English
Published: SAGE Publishing 2019-08-01
Series:Digital Health
Online Access:https://doi.org/10.1177/2055207619867223
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author Catherine Benedict
Alexandria L Hahn
Michael A Diefenbach
Jennifer S Ford
author_facet Catherine Benedict
Alexandria L Hahn
Michael A Diefenbach
Jennifer S Ford
author_sort Catherine Benedict
collection DOAJ
description Background Adolescent and young adult (AYA) cancer survivors are under-represented in research. Social media is increasingly used for recruitment given its ability to reach large audiences. Differences in participant characteristics and potential biases due to recruitment source are not well understood. Purpose This study aimed to: (a) compare recruitment strategies (hospital-based v. social media) in enrollment metrics, and (b) among enrolled participants, evaluate group differences in patient characteristics and patient reported outcomes (PROs). Methods Preliminary data from a cancer and fertility study with female AYAs were evaluated. Hospital-based recruitment used electronic medical records (EMR) to identify eligible patients. Social media recruitment involved posting on partner organizations’ social media outlets. PROs included validated measures related to the parent study. Descriptive statistics evaluated recruitment metrics. Independent samples t -tests and chi-square identified differences in participant characteristics and PROs based on recruitment. Results Social media yielded a higher enrollment rate (37%; n  = 54/146) compared with hospital-based recruitment (7%; n  = 21/289) and required fewer study resources. Compared with hospital-based recruitment, participants from social media were more likely to be White ( p  = 0.01), with a longer time since treatment ( p  = 0.03); and reported higher levels of reproductive concern ( p  = 0.004) and negative mood ( p  = 0.02), and more negative illness perceptions ( p s < 0.05). Conclusion Recruitment via social media may be a more effective and efficient strategy compared with hospital-based methods. However, group differences were identified that could bias findings and limit generalizability. Advantages of social media should be considered with an understanding of how methodology may impact enrollment and results.
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spelling doaj.art-945c5b3868034c76bc2cadab2bc493032022-12-22T00:06:47ZengSAGE PublishingDigital Health2055-20762019-08-01510.1177/2055207619867223Recruitment via social media: advantages and potential biasesCatherine BenedictAlexandria L HahnMichael A DiefenbachJennifer S FordBackground Adolescent and young adult (AYA) cancer survivors are under-represented in research. Social media is increasingly used for recruitment given its ability to reach large audiences. Differences in participant characteristics and potential biases due to recruitment source are not well understood. Purpose This study aimed to: (a) compare recruitment strategies (hospital-based v. social media) in enrollment metrics, and (b) among enrolled participants, evaluate group differences in patient characteristics and patient reported outcomes (PROs). Methods Preliminary data from a cancer and fertility study with female AYAs were evaluated. Hospital-based recruitment used electronic medical records (EMR) to identify eligible patients. Social media recruitment involved posting on partner organizations’ social media outlets. PROs included validated measures related to the parent study. Descriptive statistics evaluated recruitment metrics. Independent samples t -tests and chi-square identified differences in participant characteristics and PROs based on recruitment. Results Social media yielded a higher enrollment rate (37%; n  = 54/146) compared with hospital-based recruitment (7%; n  = 21/289) and required fewer study resources. Compared with hospital-based recruitment, participants from social media were more likely to be White ( p  = 0.01), with a longer time since treatment ( p  = 0.03); and reported higher levels of reproductive concern ( p  = 0.004) and negative mood ( p  = 0.02), and more negative illness perceptions ( p s < 0.05). Conclusion Recruitment via social media may be a more effective and efficient strategy compared with hospital-based methods. However, group differences were identified that could bias findings and limit generalizability. Advantages of social media should be considered with an understanding of how methodology may impact enrollment and results.https://doi.org/10.1177/2055207619867223
spellingShingle Catherine Benedict
Alexandria L Hahn
Michael A Diefenbach
Jennifer S Ford
Recruitment via social media: advantages and potential biases
Digital Health
title Recruitment via social media: advantages and potential biases
title_full Recruitment via social media: advantages and potential biases
title_fullStr Recruitment via social media: advantages and potential biases
title_full_unstemmed Recruitment via social media: advantages and potential biases
title_short Recruitment via social media: advantages and potential biases
title_sort recruitment via social media advantages and potential biases
url https://doi.org/10.1177/2055207619867223
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