Psychometric evaluation of the Indolent Systemic Mastocytosis Symptom Assessment Form (ISM-SAF©) and determination of a threshold score for moderate symptoms

Psychometric evaluation of the Indolent Systemic Mastocytosis Symptom Assessment Form (ISM-SAF©) and determination of a threshold score for moderate symptoms

Abstract Background The Indolent Systemic Mastocytosis Symptom Assessment Form (ISM-SAF) (©Blueprint Medicines Corporation), a 12-item daily diary that assesses 11 signs and symptoms of indolent systemic mastocytosis (ISM) and smoldering systemic mastocytosis (SSM), was psychometrically evaluated am...

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Bibliographic Details
Main Authors: Alan L. Shields, Fiona Taylor, Roger E. Lamoureux, Brad Padilla, Kas Severson, Tanya Green, Anthony L. Boral, Cem Akin, Frank Siebenhaar, Brenton Mar
Format: Article
Language:English
Published: BMC 2023-03-01
Series:Orphanet Journal of Rare Diseases
Subjects:
Psychometric evaluation
Instrument development
Patient-reported outcomes
Indolent systemic mastocytosis
Online Access:https://doi.org/10.1186/s13023-023-02661-1

Internet

https://doi.org/10.1186/s13023-023-02661-1

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