Assessment of the face validity, feasibility and utility of a patient-completed questionnaire for polymyalgia rheumatica: a postal survey using the QQ-10 questionnaire
Abstract Background The development of a patient-reported outcome measure (PROM) for polymyalgia rheumatica (PMR), a condition that causes pain, stiffness and disability, is necessary as there is no current validated disease-specific measure. Initial literature synthesis and qualitative research est...
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| Format: | Article |
| Language: | English |
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BMC
2017-07-01
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| Series: | Pilot and Feasibility Studies |
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| Online Access: | http://link.springer.com/article/10.1186/s40814-017-0150-y |
| _version_ | 1818417157731516416 |
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| author | Helen Twohig Georgina Jones Sarah Mackie Christian Mallen Caroline Mitchell |
| author_facet | Helen Twohig Georgina Jones Sarah Mackie Christian Mallen Caroline Mitchell |
| author_sort | Helen Twohig |
| collection | DOAJ |
| description | Abstract Background The development of a patient-reported outcome measure (PROM) for polymyalgia rheumatica (PMR), a condition that causes pain, stiffness and disability, is necessary as there is no current validated disease-specific measure. Initial literature synthesis and qualitative research established a conceptual framework for the condition along with a list of symptoms and effects of PMR that patients felt were important to them. These findings were used to derive the candidate items for a patient-completed questionnaire. We aim to establish the face validity of this initial “long form” of a PROM. Methods People with a current or previous diagnosis of PMR were recruited both from the community and from rheumatology clinics. They were asked to complete the PMR questionnaire along with the QQ-10 questionnaire, which is a measure used to assess the face validity, feasibility and utility of patient healthcare questionnaires. Results A total of 28 participants with an age range of 59–85 years and a length of time since diagnosis from 4 months to 18 years completed the QQ-10. The overall mean “value” score was 79% (SD 12), and the mean “burden” score was 21% (SD 18). The free-text comments were analysed thematically and were found to focus on layout, content, where in the clinical pathway the questionnaire would be most beneficial, specific items missing and other areas for consideration. Conclusions The high mean value score and low burden score indicate that the questionnaire has good face validity and is acceptable to patients. The questionnaire now needs to undergo further psychometric evaluation and refinement to develop the final tool for use in clinical practice and research. |
| first_indexed | 2024-12-14T12:02:19Z |
| format | Article |
| id | doaj.art-94fc4972204c42f297e2e9beb60cf939 |
| institution | Directory Open Access Journal |
| issn | 2055-5784 |
| language | English |
| last_indexed | 2024-12-14T12:02:19Z |
| publishDate | 2017-07-01 |
| publisher | BMC |
| record_format | Article |
| series | Pilot and Feasibility Studies |
| spelling | doaj.art-94fc4972204c42f297e2e9beb60cf9392022-12-21T23:01:57ZengBMCPilot and Feasibility Studies2055-57842017-07-01411710.1186/s40814-017-0150-yAssessment of the face validity, feasibility and utility of a patient-completed questionnaire for polymyalgia rheumatica: a postal survey using the QQ-10 questionnaireHelen Twohig0Georgina Jones1Sarah Mackie2Christian Mallen3Caroline Mitchell4Academic Unit of Primary Medical Care, University of Sheffield, Samuel Fox House, Northern General HospitalFaculty of Health and Social Sciences, Leeds Beckett UniversityLeeds Institute of Rheumatic and Musculoskeletal Medicine, University of LeedsArthritis Research UK Primary Care Centre, Institute for Primary Care and Health Sciences, Keele UniversityAcademic Unit of Primary Medical Care, University of SheffieldAbstract Background The development of a patient-reported outcome measure (PROM) for polymyalgia rheumatica (PMR), a condition that causes pain, stiffness and disability, is necessary as there is no current validated disease-specific measure. Initial literature synthesis and qualitative research established a conceptual framework for the condition along with a list of symptoms and effects of PMR that patients felt were important to them. These findings were used to derive the candidate items for a patient-completed questionnaire. We aim to establish the face validity of this initial “long form” of a PROM. Methods People with a current or previous diagnosis of PMR were recruited both from the community and from rheumatology clinics. They were asked to complete the PMR questionnaire along with the QQ-10 questionnaire, which is a measure used to assess the face validity, feasibility and utility of patient healthcare questionnaires. Results A total of 28 participants with an age range of 59–85 years and a length of time since diagnosis from 4 months to 18 years completed the QQ-10. The overall mean “value” score was 79% (SD 12), and the mean “burden” score was 21% (SD 18). The free-text comments were analysed thematically and were found to focus on layout, content, where in the clinical pathway the questionnaire would be most beneficial, specific items missing and other areas for consideration. Conclusions The high mean value score and low burden score indicate that the questionnaire has good face validity and is acceptable to patients. The questionnaire now needs to undergo further psychometric evaluation and refinement to develop the final tool for use in clinical practice and research.http://link.springer.com/article/10.1186/s40814-017-0150-yPolymyalgia rheumaticaPatient perspectiveOutcomes researchPatient-reported outcome measuresQuestionnaire validity and utility assessment |
| spellingShingle | Helen Twohig Georgina Jones Sarah Mackie Christian Mallen Caroline Mitchell Assessment of the face validity, feasibility and utility of a patient-completed questionnaire for polymyalgia rheumatica: a postal survey using the QQ-10 questionnaire Pilot and Feasibility Studies Polymyalgia rheumatica Patient perspective Outcomes research Patient-reported outcome measures Questionnaire validity and utility assessment |
| title | Assessment of the face validity, feasibility and utility of a patient-completed questionnaire for polymyalgia rheumatica: a postal survey using the QQ-10 questionnaire |
| title_full | Assessment of the face validity, feasibility and utility of a patient-completed questionnaire for polymyalgia rheumatica: a postal survey using the QQ-10 questionnaire |
| title_fullStr | Assessment of the face validity, feasibility and utility of a patient-completed questionnaire for polymyalgia rheumatica: a postal survey using the QQ-10 questionnaire |
| title_full_unstemmed | Assessment of the face validity, feasibility and utility of a patient-completed questionnaire for polymyalgia rheumatica: a postal survey using the QQ-10 questionnaire |
| title_short | Assessment of the face validity, feasibility and utility of a patient-completed questionnaire for polymyalgia rheumatica: a postal survey using the QQ-10 questionnaire |
| title_sort | assessment of the face validity feasibility and utility of a patient completed questionnaire for polymyalgia rheumatica a postal survey using the qq 10 questionnaire |
| topic | Polymyalgia rheumatica Patient perspective Outcomes research Patient-reported outcome measures Questionnaire validity and utility assessment |
| url | http://link.springer.com/article/10.1186/s40814-017-0150-y |
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