Family experiences in the care of adolescents with cerebral palsy
Objective: To understand the experiences of families in the care of adolescents with cerebral palsy. Method: A qualitative, phenomenological research in the homes of five families in the Midwest region of Minas Gerais, from April to August 2017. After the approval of the research ethics committee, d...
| Main Authors: | , , |
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| Format: | Article |
| Language: | Portuguese |
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Universidade Federal de Santa Maria
2019-10-01
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| Series: | Revista de Enfermagem da Universidade Federal de Santa Maria |
| Subjects: | |
| Online Access: | https://periodicos.ufsm.br/reufsm/article/view/33267 |
| _version_ | 1818945651590823936 |
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| author | Bruna Teodoro Xavier Paloma Raysla da Silva Elaine Cristina Rodrigues Gesteira |
| author_facet | Bruna Teodoro Xavier Paloma Raysla da Silva Elaine Cristina Rodrigues Gesteira |
| author_sort | Bruna Teodoro Xavier |
| collection | DOAJ |
| description | Objective: To understand the experiences of families in the care of adolescents with cerebral palsy. Method: A qualitative, phenomenological research in the homes of five families in the Midwest region of Minas Gerais, from April to August 2017. After the approval of the research ethics committee, data was collected through semi-structured interviews and submitted to a comprehensive phenomenological analysis. Results: It was learned that the daily life of these families is impregnated with suffering and anguish to offer the adolescent with cerebral palsy a better quality of life. Health care is fragmented, which prevents progress in comprehensive care for this public. Conclusion: Adolescents with CP are considered to be poorly attended multi-professionally, and it is up to the nurse to create care strategies that can empower and support families in the search for resources available for integrality. |
| first_indexed | 2024-12-20T08:02:30Z |
| format | Article |
| id | doaj.art-95cfa87f43d4455fa3e07d81c4ce9250 |
| institution | Directory Open Access Journal |
| issn | 2179-7692 2179-7692 |
| language | Portuguese |
| last_indexed | 2024-12-20T08:02:30Z |
| publishDate | 2019-10-01 |
| publisher | Universidade Federal de Santa Maria |
| record_format | Article |
| series | Revista de Enfermagem da Universidade Federal de Santa Maria |
| spelling | doaj.art-95cfa87f43d4455fa3e07d81c4ce92502022-12-21T19:47:29ZporUniversidade Federal de Santa MariaRevista de Enfermagem da Universidade Federal de Santa Maria2179-76922179-76922019-10-0190e44e4410.5902/217976923326717164Family experiences in the care of adolescents with cerebral palsyBruna Teodoro Xavier0Paloma Raysla da Silva1Elaine Cristina Rodrigues Gesteira2Universidade Federal de São João Del-Rei, Divinópolis, MGUniversidade Federal de São João Del-Rei, Divinópolis, MGUniversidade Federal de São João Del-Rei, Divinópolis, MGObjective: To understand the experiences of families in the care of adolescents with cerebral palsy. Method: A qualitative, phenomenological research in the homes of five families in the Midwest region of Minas Gerais, from April to August 2017. After the approval of the research ethics committee, data was collected through semi-structured interviews and submitted to a comprehensive phenomenological analysis. Results: It was learned that the daily life of these families is impregnated with suffering and anguish to offer the adolescent with cerebral palsy a better quality of life. Health care is fragmented, which prevents progress in comprehensive care for this public. Conclusion: Adolescents with CP are considered to be poorly attended multi-professionally, and it is up to the nurse to create care strategies that can empower and support families in the search for resources available for integrality.https://periodicos.ufsm.br/reufsm/article/view/33267adolescenteparalisia cerebralfamília. |
| spellingShingle | Bruna Teodoro Xavier Paloma Raysla da Silva Elaine Cristina Rodrigues Gesteira Family experiences in the care of adolescents with cerebral palsy Revista de Enfermagem da Universidade Federal de Santa Maria adolescente paralisia cerebral família. |
| title | Family experiences in the care of adolescents with cerebral palsy |
| title_full | Family experiences in the care of adolescents with cerebral palsy |
| title_fullStr | Family experiences in the care of adolescents with cerebral palsy |
| title_full_unstemmed | Family experiences in the care of adolescents with cerebral palsy |
| title_short | Family experiences in the care of adolescents with cerebral palsy |
| title_sort | family experiences in the care of adolescents with cerebral palsy |
| topic | adolescente paralisia cerebral família. |
| url | https://periodicos.ufsm.br/reufsm/article/view/33267 |
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