Research ethics recommendations for whole-genome research: consensus statement.

Research ethics recommendations for whole-genome research: consensus statement.

Bibliographic Details
Main Authors:	Timothy Caulfield, Amy L McGuire, Mildred Cho, Janet A Buchanan, Michael M Burgess, Ursula Danilczyk, Christina M Diaz, Kelly Fryer-Edwards, Shane K Green, Marc A Hodosh, Eric T Juengst, Jane Kaye, Laurence Kedes, Bartha Maria Knoppers, Trudo Lemmens, Eric M Meslin, Juli Murphy, Robert L Nussbaum, Margaret Otlowski, Daryl Pullman, Peter N Ray, Jeremy Sugarman, Michael Timmons
Format:	Article
Language:	English
Published:	Public Library of Science (PLoS) 2008-03-01
Series:	PLoS Biology
Online Access:	https://www.ncbi.nlm.nih.gov/pmc/articles/pmid/18366258/?tool=EBI

Similar Items

Research ethics recommendations for whole-genome research: Consensus statement
by: Caulfield, T, et al.
Published: (2008)

Research ethics recommendations for whole-genome research: consensus statement
by: Caulfield, T, et al.
Published: (2008)

Regulating the market in human research participants.
by: Trudo Lemmens, et al.
Published: (2006-08-01)

Research Ethics Boards: Reply from Trudo Lemmens and Carl Elliott.
by: Trudo Lemmens, et al.
Published: (2006-10-01)

Correction: Regulating the Market in Human Research Participants.
by: Trudo Lemmens, et al.
Published: (2006-10-01)

Ethics approval in applications for open-access clinical trial data: An analysis of researcher statements to clinicalstudydatarequest.com.
by: Derek So, et al.
Published: (2017-01-01)

Research priorities. ELSI 2.0 for genomics and society.
by: Kaye, J, et al.
Published: (2012)

Building a data sharing model for global genomic research.
by: Kosseim, P, et al.
Published: (2014)

Should society allow research ethics boards to be run as for-profit enterprises?
by: Ezekiel J Emanuel, et al.
Published: (2006-07-01)

Correction: Should Society Allow Research Ethics Boards to Be Run As For-Profit Enterprises?
by: Ezekiel J Emanuel, et al.
Published: (2006-09-01)

“The Stakes Are Higher”- Patient and Caregiver Perspectives on Cystic Fibrosis Research and Personalized Medicine
by: Terese Knoppers, et al.
Published: (2022-03-01)

A Tale of Two Capacities: Including Children and Decisionally Vulnerable Adults in Biomedical Research
by: Gratien Dalpé, et al.
Published: (2019-04-01)

Emerging issues in paediatric health research consent forms in Canada: working towards best practices
by: Dove Edward S, et al.
Published: (2013-01-01)

An international policy on returning genomic research results
by: Anna C. F. Lewis, et al.
Published: (2021-07-01)

Re-contact Following Withdrawal of Minors from Research
by: Dimitri Patrinos, et al.
Published: (2022-03-01)

In a Familiar Voice: The Dominant Role of Women in Shaping Canadian Policy on Medical Assistance in Dying
by: Daryl Pullman
Published: (2020-11-01)

Legal remedies for medical ghostwriting: imposing fraud liability on guest authors of ghostwritten articles.
by: Simon Stern, et al.
Published: (2010-08-01)

Towards a data sharing Code of Conduct for international genomic research.
by: Knoppers, B, et al.
Published: (2011)

Ethical hurdles for translational research.
by: Sugarman, J, et al.
Published: (2003)

Regulation of health professions in Ontario: self-regulation with statutory- based public accountability
by: Trudo Lemmens, et al.
Published: (2019-05-01)

A Strategy for Archiving Government Data to Meet the Needs of the Research Community
by: Jake Knoppers
Published: (1981-01-01)

Canada's Assisted Human Reproduction Act: Pragmatic Reforms in Support of Research
by: Tania Bubela, et al.
Published: (2019-07-01)

How can journals respond to threats of libel litigation?
by: Nav Persaud, et al.
Published: (2014-03-01)

Citizen science or scientific citizenship? Disentangling the uses of public engagement rhetoric in national research initiatives
by: Woolley, J, et al.
Published: (2016)

Human gene editing: revisiting Canadian policy
by: Bartha Maria Knoppers, et al.
Published: (2017-01-01)

Public health research using cell phone derived mobility data in sub-Saharan Africa: Ethical issues
by: Stuart Rennie, et al.
Published: (2023-05-01)

Fast, approximate state estimation of concurrent probabilistic hybrid automata
by: Timmons, Eric (Eric M.)
Published: (2013)

From bench to clinic and back: Perspective on the 1<sup>st </sup>IQPC Translational Research conference
by: Hörig Heidi, et al.
Published: (2004-12-01)

Organizational challenges to equity in the delivery of services within a new personalized risk-based approach to breast cancer screening
by: Emmanuelle Lévesque, et al.
Published: (2019-01-01)

From the principles of genomic data sharing to the practices of data access committees
by: Mahsa Shabani, et al.
Published: (2015-05-01)

Computational tools for genomic data de-identification: facilitating data protection law compliance
by: Alexander Bernier, et al.
Published: (2021-11-01)

A policy Delphi study to validate the key implications of data sharing (KIDS) framework for pediatric genomics in Canada
by: Vasiliki Rahimzadeh, et al.
Published: (2021-06-01)

Transparency, trust, and community welfare: towards a precision public health ethics framework for the genomics era
by: Eric T. Juengst, et al.
Published: (2020-11-01)

“Media, politics and science policy: MS and evidence from the CCSVI Trenches”
by: Pullman Daryl, et al.
Published: (2013-02-01)

Of Screening, Stratification, and Scores
by: Bartha M. Knoppers, et al.
Published: (2021-07-01)

Recording the ethical provenance of data and automating data stewardship
by: Alexander Bernier, et al.
Published: (2023-01-01)

Exome/Genome-Wide Testing in Newborn Screening: A Proportionate Path Forward
by: Vasiliki Rahimzadeh, et al.
Published: (2022-07-01)

Model consent clauses for rare disease research
by: Minh Thu Nguyen, et al.
Published: (2019-08-01)

Recurrent syncope in the Andersen Tawil syndrome – Cardiac or neurological?
by: Michael David Fryer, et al.
Published: (2015-05-01)

Interpersonal communication in older adulthood : interdisciplinary theory and research
by: Hummert, Mary Lee, et al.
Published: (1994)