Counseling regarding the care of people with dementia with a focus on §7a SGB XI in Germany: a "gray-shaded" scoping review

Abstract Background Care counseling is an important psychosocial intervention for people with care needs and their relatives and can contribute to maintaining and/or improving a patient’s quality of life and reducing the burden of caregivers. This is especially the case for people with dementia and...

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Main Authors: Mike Rommerskirch-Manietta, Christina Manietta, Daniel Purwins, Martina Roes
Format: Article
Language:English
Published: BMC 2023-04-01
Series:BMC Health Services Research
Subjects:
Online Access:https://doi.org/10.1186/s12913-023-09155-7
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author Mike Rommerskirch-Manietta
Christina Manietta
Daniel Purwins
Martina Roes
author_facet Mike Rommerskirch-Manietta
Christina Manietta
Daniel Purwins
Martina Roes
author_sort Mike Rommerskirch-Manietta
collection DOAJ
description Abstract Background Care counseling is an important psychosocial intervention for people with care needs and their relatives and can contribute to maintaining and/or improving a patient’s quality of life and reducing the burden of caregivers. This is especially the case for people with dementia and their relatives, in which the methods of care counseling need to be different than those for individuals with non-dementia related care needs. Furthermore, the counseling content needs to be adjusted to the specific form and stage of dementia. In Germany, every person who receives support per the German Social Law Book XI (SBG XI) can take advantage of care counseling according to §7a SGB XI. To date, there is no systematic overview of counseling services for people with dementia and their relatives related to this specific provision in Germany. Methods We conducted a gray-shaded scoping review with a focus on the evaluation of care counseling according to §7a SGB XI for people with dementia and their relatives. For this purpose, we applied five search strategies. We researched (1) national electronic databases, (2) Google, (3) targeted websites, (4) experts, and (5) academic electronic databases. Additionally, for the included gray literature, we conducted backward citation tracking via reference lists and forward citation tracking via Google Scholar for scientific articles. Screening of the identified potentially relevant records was performed independently by two reviewers. Results We identified 985 records and included 6 studies in our review. We divided the identified studies into three themes: understanding conceptual dimensions, digitalization of counseling, and understanding the perspective of those being counseled. No studies investigated the perspective and experience of people with dementia and their relatives regarding the counseling service according to §7a SGB XI. Conclusions Our results show that further research is needed, especially regarding the experience of people with dementia and their relatives who participated in counseling according to §7a SGB XI. It seems essential to understand the perspective of people with dementia and their relatives to improve and tailor counseling services in Germany. Registration The review protocol was prospectively published (BMJ Open 12:e059771, 2022).
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spelling doaj.art-97755d9e2ffe47a8b78c43a724d132e52023-04-16T11:09:59ZengBMCBMC Health Services Research1472-69632023-04-0123111510.1186/s12913-023-09155-7Counseling regarding the care of people with dementia with a focus on §7a SGB XI in Germany: a "gray-shaded" scoping reviewMike Rommerskirch-Manietta0Christina Manietta1Daniel Purwins2Martina Roes3Deutsches Zentrum für Neurodegenerative Erkrankungen (DZNE), Site WittenDeutsches Zentrum für Neurodegenerative Erkrankungen (DZNE), Site WittenDeutsches Zentrum für Neurodegenerative Erkrankungen (DZNE), Site WittenDeutsches Zentrum für Neurodegenerative Erkrankungen (DZNE), Site WittenAbstract Background Care counseling is an important psychosocial intervention for people with care needs and their relatives and can contribute to maintaining and/or improving a patient’s quality of life and reducing the burden of caregivers. This is especially the case for people with dementia and their relatives, in which the methods of care counseling need to be different than those for individuals with non-dementia related care needs. Furthermore, the counseling content needs to be adjusted to the specific form and stage of dementia. In Germany, every person who receives support per the German Social Law Book XI (SBG XI) can take advantage of care counseling according to §7a SGB XI. To date, there is no systematic overview of counseling services for people with dementia and their relatives related to this specific provision in Germany. Methods We conducted a gray-shaded scoping review with a focus on the evaluation of care counseling according to §7a SGB XI for people with dementia and their relatives. For this purpose, we applied five search strategies. We researched (1) national electronic databases, (2) Google, (3) targeted websites, (4) experts, and (5) academic electronic databases. Additionally, for the included gray literature, we conducted backward citation tracking via reference lists and forward citation tracking via Google Scholar for scientific articles. Screening of the identified potentially relevant records was performed independently by two reviewers. Results We identified 985 records and included 6 studies in our review. We divided the identified studies into three themes: understanding conceptual dimensions, digitalization of counseling, and understanding the perspective of those being counseled. No studies investigated the perspective and experience of people with dementia and their relatives regarding the counseling service according to §7a SGB XI. Conclusions Our results show that further research is needed, especially regarding the experience of people with dementia and their relatives who participated in counseling according to §7a SGB XI. It seems essential to understand the perspective of people with dementia and their relatives to improve and tailor counseling services in Germany. Registration The review protocol was prospectively published (BMJ Open 12:e059771, 2022).https://doi.org/10.1186/s12913-023-09155-7SupportFamilyCaregiversHealth service
spellingShingle Mike Rommerskirch-Manietta
Christina Manietta
Daniel Purwins
Martina Roes
Counseling regarding the care of people with dementia with a focus on §7a SGB XI in Germany: a "gray-shaded" scoping review
BMC Health Services Research
Support
Family
Caregivers
Health service
title Counseling regarding the care of people with dementia with a focus on §7a SGB XI in Germany: a "gray-shaded" scoping review
title_full Counseling regarding the care of people with dementia with a focus on §7a SGB XI in Germany: a "gray-shaded" scoping review
title_fullStr Counseling regarding the care of people with dementia with a focus on §7a SGB XI in Germany: a "gray-shaded" scoping review
title_full_unstemmed Counseling regarding the care of people with dementia with a focus on §7a SGB XI in Germany: a "gray-shaded" scoping review
title_short Counseling regarding the care of people with dementia with a focus on §7a SGB XI in Germany: a "gray-shaded" scoping review
title_sort counseling regarding the care of people with dementia with a focus on §7a sgb xi in germany a gray shaded scoping review
topic Support
Family
Caregivers
Health service
url https://doi.org/10.1186/s12913-023-09155-7
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