Reconsidering the Inclusive Research Approach: Proxy Intervention Interview as an Opportunity for the Participation of People With Cognitive Disability and Communication Challenges
Qualitative researchers who need to interview people with cognitive disability, including intellectual, developmental, mental disabilities and Autism Spectrum Disorder (ASD), can experience limitations in implementing an inclusive research approach using conventional methods like verbal communicatio...
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| Format: | Article |
| Language: | English |
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SAGE Publishing
2023-07-01
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| Series: | International Journal of Qualitative Methods |
| Online Access: | https://doi.org/10.1177/16094069231191686 |
| _version_ | 1797661939762987008 |
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| author | Jung Hyoung Yoon |
| author_facet | Jung Hyoung Yoon |
| author_sort | Jung Hyoung Yoon |
| collection | DOAJ |
| description | Qualitative researchers who need to interview people with cognitive disability, including intellectual, developmental, mental disabilities and Autism Spectrum Disorder (ASD), can experience limitations in implementing an inclusive research approach using conventional methods like verbal communication. In this paper ‘proxy intervention interview’ is shown to be an inclusive research approach for incorporating the voices of artists who cannot articulate their thoughts or describe their own experiences concerning their career development. The author introduces a step-by-step process for implementing this method, including such aspects as research design, recruitment, and informed consent. Five key ethical considerations are suggested for designing an appropriate inclusive research approach to encourage the participation of people with cognitive disability, regardless of their level of capacity. |
| first_indexed | 2024-03-11T18:52:48Z |
| format | Article |
| id | doaj.art-97893f7377d8462aa29a8fb1e888c740 |
| institution | Directory Open Access Journal |
| issn | 1609-4069 |
| language | English |
| last_indexed | 2024-03-11T18:52:48Z |
| publishDate | 2023-07-01 |
| publisher | SAGE Publishing |
| record_format | Article |
| series | International Journal of Qualitative Methods |
| spelling | doaj.art-97893f7377d8462aa29a8fb1e888c7402023-10-11T08:33:34ZengSAGE PublishingInternational Journal of Qualitative Methods1609-40692023-07-012210.1177/16094069231191686Reconsidering the Inclusive Research Approach: Proxy Intervention Interview as an Opportunity for the Participation of People With Cognitive Disability and Communication ChallengesJung Hyoung YoonQualitative researchers who need to interview people with cognitive disability, including intellectual, developmental, mental disabilities and Autism Spectrum Disorder (ASD), can experience limitations in implementing an inclusive research approach using conventional methods like verbal communication. In this paper ‘proxy intervention interview’ is shown to be an inclusive research approach for incorporating the voices of artists who cannot articulate their thoughts or describe their own experiences concerning their career development. The author introduces a step-by-step process for implementing this method, including such aspects as research design, recruitment, and informed consent. Five key ethical considerations are suggested for designing an appropriate inclusive research approach to encourage the participation of people with cognitive disability, regardless of their level of capacity.https://doi.org/10.1177/16094069231191686 |
| spellingShingle | Jung Hyoung Yoon Reconsidering the Inclusive Research Approach: Proxy Intervention Interview as an Opportunity for the Participation of People With Cognitive Disability and Communication Challenges International Journal of Qualitative Methods |
| title | Reconsidering the Inclusive Research Approach: Proxy Intervention Interview as an Opportunity for the Participation of People With Cognitive Disability and Communication Challenges |
| title_full | Reconsidering the Inclusive Research Approach: Proxy Intervention Interview as an Opportunity for the Participation of People With Cognitive Disability and Communication Challenges |
| title_fullStr | Reconsidering the Inclusive Research Approach: Proxy Intervention Interview as an Opportunity for the Participation of People With Cognitive Disability and Communication Challenges |
| title_full_unstemmed | Reconsidering the Inclusive Research Approach: Proxy Intervention Interview as an Opportunity for the Participation of People With Cognitive Disability and Communication Challenges |
| title_short | Reconsidering the Inclusive Research Approach: Proxy Intervention Interview as an Opportunity for the Participation of People With Cognitive Disability and Communication Challenges |
| title_sort | reconsidering the inclusive research approach proxy intervention interview as an opportunity for the participation of people with cognitive disability and communication challenges |
| url | https://doi.org/10.1177/16094069231191686 |
| work_keys_str_mv | AT junghyoungyoon reconsideringtheinclusiveresearchapproachproxyinterventioninterviewasanopportunityfortheparticipationofpeoplewithcognitivedisabilityandcommunicationchallenges |