Community engagement in patient-centered outcomes research: Benefits, barriers, and measurement
AbstractIntroduction:This study employed the Delphi method, an exploratory method used for group consensus building, to determine the benefits and challenges associated with community engagement in patient-centered outcomes research.Methods:A series of email surveys were sent to the Patient-Centered...
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| Format: | Article |
| Language: | English |
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Cambridge University Press
2018-12-01
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| Series: | Journal of Clinical and Translational Science |
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| Online Access: | https://www.cambridge.org/core/product/identifier/S2059866118003412/type/journal_article |
| _version_ | 1811156868562681856 |
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| author | Linda Sprague Martinez Kelsi Carolan Arden O’Donnell Yareliz Diaz Elmer R. Freeman |
| author_facet | Linda Sprague Martinez Kelsi Carolan Arden O’Donnell Yareliz Diaz Elmer R. Freeman |
| author_sort | Linda Sprague Martinez |
| collection | DOAJ |
| description | AbstractIntroduction:This study employed the Delphi method, an exploratory method used for group consensus building, to determine the benefits and challenges associated with community engagement in patient-centered outcomes research.Methods:A series of email surveys were sent to the Patient-Centered Outcomes Research Institute (PCORI)-funded researchers (n = 103) in New England. Consensus was achieved through gathering themes and engaging participants in ranking their level of agreement over three rounds. In round one, participant responses were coded thematically and then tallied. In round two participants were asked to state their level of agreement with each of the themes using a Likert scale. Finally, in round three, the group was asked to rank the round two themes based on potential impact.Results:Results suggested the greatest benefit of community engagement is that it brings multiple perspectives to the table, with 92% ranking it as the first or second most important contribution. Time was ranked as the most significant barrier to engaging community. Strategies to overcome barriers to community engagement include engaging key stakeholders early in the research, being kind and respectful and spending time with stakeholders. The most significant finding was that no researchers reported having specific measures to evaluate community engagement.Conclusion:Community engagement can enhance both research relevance and methodology when researchers are engaged in meaningful collaborations. Advancing the science of community engagement will require the development of evaluation metrics to examine the multiple domains of partnership. |
| first_indexed | 2024-04-10T04:57:13Z |
| format | Article |
| id | doaj.art-97ccb2555b064c4c9c76631d19ff967e |
| institution | Directory Open Access Journal |
| issn | 2059-8661 |
| language | English |
| last_indexed | 2024-04-10T04:57:13Z |
| publishDate | 2018-12-01 |
| publisher | Cambridge University Press |
| record_format | Article |
| series | Journal of Clinical and Translational Science |
| spelling | doaj.art-97ccb2555b064c4c9c76631d19ff967e2023-03-09T12:29:41ZengCambridge University PressJournal of Clinical and Translational Science2059-86612018-12-01237137610.1017/cts.2018.341Community engagement in patient-centered outcomes research: Benefits, barriers, and measurementLinda Sprague Martinez0Kelsi Carolan1Arden O’Donnell2Yareliz Diaz3Elmer R. Freeman4Boston University School of Social Work, Boston, MA, USABoston University School of Social Work, Boston, MA, USABoston University School of Social Work, Boston, MA, USACenter for Community Health Education Research and Service, Inc., Boston, MA, USACenter for Community Health Education Research and Service, Inc., Boston, MA, USAAbstractIntroduction:This study employed the Delphi method, an exploratory method used for group consensus building, to determine the benefits and challenges associated with community engagement in patient-centered outcomes research.Methods:A series of email surveys were sent to the Patient-Centered Outcomes Research Institute (PCORI)-funded researchers (n = 103) in New England. Consensus was achieved through gathering themes and engaging participants in ranking their level of agreement over three rounds. In round one, participant responses were coded thematically and then tallied. In round two participants were asked to state their level of agreement with each of the themes using a Likert scale. Finally, in round three, the group was asked to rank the round two themes based on potential impact.Results:Results suggested the greatest benefit of community engagement is that it brings multiple perspectives to the table, with 92% ranking it as the first or second most important contribution. Time was ranked as the most significant barrier to engaging community. Strategies to overcome barriers to community engagement include engaging key stakeholders early in the research, being kind and respectful and spending time with stakeholders. The most significant finding was that no researchers reported having specific measures to evaluate community engagement.Conclusion:Community engagement can enhance both research relevance and methodology when researchers are engaged in meaningful collaborations. Advancing the science of community engagement will require the development of evaluation metrics to examine the multiple domains of partnership.https://www.cambridge.org/core/product/identifier/S2059866118003412/type/journal_articleDelphi methodstakeholder engagementcommunity partnershipspatient centered outcomes researchPCORIimplementationpolicy and community engagement |
| spellingShingle | Linda Sprague Martinez Kelsi Carolan Arden O’Donnell Yareliz Diaz Elmer R. Freeman Community engagement in patient-centered outcomes research: Benefits, barriers, and measurement Journal of Clinical and Translational Science Delphi method stakeholder engagement community partnerships patient centered outcomes research PCORI implementation policy and community engagement |
| title | Community engagement in patient-centered outcomes research: Benefits, barriers, and measurement |
| title_full | Community engagement in patient-centered outcomes research: Benefits, barriers, and measurement |
| title_fullStr | Community engagement in patient-centered outcomes research: Benefits, barriers, and measurement |
| title_full_unstemmed | Community engagement in patient-centered outcomes research: Benefits, barriers, and measurement |
| title_short | Community engagement in patient-centered outcomes research: Benefits, barriers, and measurement |
| title_sort | community engagement in patient centered outcomes research benefits barriers and measurement |
| topic | Delphi method stakeholder engagement community partnerships patient centered outcomes research PCORI implementation policy and community engagement |
| url | https://www.cambridge.org/core/product/identifier/S2059866118003412/type/journal_article |
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