‘Just because we're younger doesn't mean our opinions should be any less valued’: A qualitative study of youth perspectives on a Youth Advisory Council in a mental healthcare context

Abstract Introduction Recognition of the importance of youth engagement in youth mental health and/or addiction (MHA) service design and delivery is increasing. Youth Advisory Councils embedded in MHA organizations represent one strategy that allows youth to be involved in MHA at the individual, org...

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Main Authors: Adrienne Young, Anthony Levitt, Sugy Kodeeswaran, Roula Markoulakis
Format: Article
Language:English
Published: Wiley 2023-10-01
Series:Health Expectations
Subjects:
Online Access:https://doi.org/10.1111/hex.13794
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author Adrienne Young
Anthony Levitt
Sugy Kodeeswaran
Roula Markoulakis
author_facet Adrienne Young
Anthony Levitt
Sugy Kodeeswaran
Roula Markoulakis
author_sort Adrienne Young
collection DOAJ
description Abstract Introduction Recognition of the importance of youth engagement in youth mental health and/or addiction (MHA) service design and delivery is increasing. Youth Advisory Councils embedded in MHA organizations represent one strategy that allows youth to be involved in MHA at the individual, organization and systemic levels. This level of involvement can facilitate positive outcomes for both the youth and the organization. As these councils become more common, it is important that organizations are prepared to partner with the participating youth. This study uses a descriptive qualitative approach to understand the motivations and expectations of youth with lived experience with MHA concerns who were beginning to work on a Youth Advisory Council in an MHA setting in the Greater Toronto Area. Methods Semistructured interviews were conducted with each youth, ages 16–26, on the advisory council (N = 8) to understand their motivations, expectations and goals coming into the work. Interviews were transcribed verbatim and analysed using a reflexive thematic analysis. Results Analysis resulted in five overarching themes: providing opportunities for youth learning and growth, platforming youth, empowering youth, embracing youth leadership and promoting youth‐driven change. The findings illustrate that these youth came into the Youth Advisory Council motivated to create positive change in the mental health system, take on leadership roles and had high expectations for organizational support. Our analyses provide insight for organizations planning and implementing Youth Advisory Councils in the MHA sector with the goal of best supporting youth in driving positive change across the system. Conclusion Youth want to be provided authentic opportunities for their engagement to make a difference. MHA organizations must embrace youth leadership and move towards listening to youth experience and acting on youth recommendations to enhance service design and implementation to improve access and to better meet the needs of youth utilizing these services. Patient or Public Contributions This study incorporated service users, including youth ages 16–26 with lived experience of MHA concerns who served on the Youth Advisory Council at the Family Navigation Project, Sunnybrook. Youth Advisory Council members contributed to two relevant research activities: (1) youth reviewed the draft interview guide before data collection, and their feedback was prioritized in the final version and (2) youth contributed to knowledge translation through contributing to academic conference presentations.
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spelling doaj.art-97fa8ab0c2ea47b5a01cd9bb44d4062d2023-09-08T04:49:55ZengWileyHealth Expectations1369-65131369-76252023-10-012651883189410.1111/hex.13794‘Just because we're younger doesn't mean our opinions should be any less valued’: A qualitative study of youth perspectives on a Youth Advisory Council in a mental healthcare contextAdrienne Young0Anthony Levitt1Sugy Kodeeswaran2Roula Markoulakis3Sunnybrook Research Institute Toronto Ontario CanadaSunnybrook Research Institute Toronto Ontario CanadaSunnybrook Health Sciences Centre Toronto Ontario CanadaSunnybrook Research Institute Toronto Ontario CanadaAbstract Introduction Recognition of the importance of youth engagement in youth mental health and/or addiction (MHA) service design and delivery is increasing. Youth Advisory Councils embedded in MHA organizations represent one strategy that allows youth to be involved in MHA at the individual, organization and systemic levels. This level of involvement can facilitate positive outcomes for both the youth and the organization. As these councils become more common, it is important that organizations are prepared to partner with the participating youth. This study uses a descriptive qualitative approach to understand the motivations and expectations of youth with lived experience with MHA concerns who were beginning to work on a Youth Advisory Council in an MHA setting in the Greater Toronto Area. Methods Semistructured interviews were conducted with each youth, ages 16–26, on the advisory council (N = 8) to understand their motivations, expectations and goals coming into the work. Interviews were transcribed verbatim and analysed using a reflexive thematic analysis. Results Analysis resulted in five overarching themes: providing opportunities for youth learning and growth, platforming youth, empowering youth, embracing youth leadership and promoting youth‐driven change. The findings illustrate that these youth came into the Youth Advisory Council motivated to create positive change in the mental health system, take on leadership roles and had high expectations for organizational support. Our analyses provide insight for organizations planning and implementing Youth Advisory Councils in the MHA sector with the goal of best supporting youth in driving positive change across the system. Conclusion Youth want to be provided authentic opportunities for their engagement to make a difference. MHA organizations must embrace youth leadership and move towards listening to youth experience and acting on youth recommendations to enhance service design and implementation to improve access and to better meet the needs of youth utilizing these services. Patient or Public Contributions This study incorporated service users, including youth ages 16–26 with lived experience of MHA concerns who served on the Youth Advisory Council at the Family Navigation Project, Sunnybrook. Youth Advisory Council members contributed to two relevant research activities: (1) youth reviewed the draft interview guide before data collection, and their feedback was prioritized in the final version and (2) youth contributed to knowledge translation through contributing to academic conference presentations.https://doi.org/10.1111/hex.13794lived experiencemental healthnavigationYouth Advisory Councilyouth engagement
spellingShingle Adrienne Young
Anthony Levitt
Sugy Kodeeswaran
Roula Markoulakis
‘Just because we're younger doesn't mean our opinions should be any less valued’: A qualitative study of youth perspectives on a Youth Advisory Council in a mental healthcare context
Health Expectations
lived experience
mental health
navigation
Youth Advisory Council
youth engagement
title ‘Just because we're younger doesn't mean our opinions should be any less valued’: A qualitative study of youth perspectives on a Youth Advisory Council in a mental healthcare context
title_full ‘Just because we're younger doesn't mean our opinions should be any less valued’: A qualitative study of youth perspectives on a Youth Advisory Council in a mental healthcare context
title_fullStr ‘Just because we're younger doesn't mean our opinions should be any less valued’: A qualitative study of youth perspectives on a Youth Advisory Council in a mental healthcare context
title_full_unstemmed ‘Just because we're younger doesn't mean our opinions should be any less valued’: A qualitative study of youth perspectives on a Youth Advisory Council in a mental healthcare context
title_short ‘Just because we're younger doesn't mean our opinions should be any less valued’: A qualitative study of youth perspectives on a Youth Advisory Council in a mental healthcare context
title_sort just because we re younger doesn t mean our opinions should be any less valued a qualitative study of youth perspectives on a youth advisory council in a mental healthcare context
topic lived experience
mental health
navigation
Youth Advisory Council
youth engagement
url https://doi.org/10.1111/hex.13794
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