International federation of genomic medicine databases using GA4GH standards
We promote a shared vision and guide for how and when to federate genomic and health-related data sharing, enabling connections and insights across independent, secure databases. The GA4GH encourages a federated approach wherein data providers have the mandate and resources to share, but where data...
| Main Authors: | , , , , , , , , , , , , , , |
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| Format: | Article |
| Language: | English |
| Published: |
Elsevier
2021-11-01
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| Series: | Cell Genomics |
| Subjects: | |
| Online Access: | http://www.sciencedirect.com/science/article/pii/S2666979X21000392 |
| _version_ | 1817992886008938496 |
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| author | Adrian Thorogood Heidi L. Rehm Peter Goodhand Angela J.H. Page Yann Joly Michael Baudis Jordi Rambla Arcadi Navarro Tommi H. Nyronen Mikael Linden Edward S. Dove Marc Fiume Michael Brudno Melissa S. Cline Ewan Birney |
| author_facet | Adrian Thorogood Heidi L. Rehm Peter Goodhand Angela J.H. Page Yann Joly Michael Baudis Jordi Rambla Arcadi Navarro Tommi H. Nyronen Mikael Linden Edward S. Dove Marc Fiume Michael Brudno Melissa S. Cline Ewan Birney |
| author_sort | Adrian Thorogood |
| collection | DOAJ |
| description | We promote a shared vision and guide for how and when to federate genomic and health-related data sharing, enabling connections and insights across independent, secure databases. The GA4GH encourages a federated approach wherein data providers have the mandate and resources to share, but where data cannot move for legal or technical reasons. We recommend a federated approach to connect national genomics initiatives into a global network and precision medicine resource. |
| first_indexed | 2024-04-14T01:32:06Z |
| format | Article |
| id | doaj.art-987b2c84029b42118da264cdf8f943f0 |
| institution | Directory Open Access Journal |
| issn | 2666-979X |
| language | English |
| last_indexed | 2024-04-14T01:32:06Z |
| publishDate | 2021-11-01 |
| publisher | Elsevier |
| record_format | Article |
| series | Cell Genomics |
| spelling | doaj.art-987b2c84029b42118da264cdf8f943f02022-12-22T02:20:09ZengElsevierCell Genomics2666-979X2021-11-0112100032International federation of genomic medicine databases using GA4GH standardsAdrian Thorogood0Heidi L. Rehm1Peter Goodhand2Angela J.H. Page3Yann Joly4Michael Baudis5Jordi Rambla6Arcadi Navarro7Tommi H. Nyronen8Mikael Linden9Edward S. Dove10Marc Fiume11Michael Brudno12Melissa S. Cline13Ewan Birney14ELIXIR-Luxembourg and Biocore, Luxembourg Centre for Systems Biomedicine, University of Luxembourg, Belvaux, Luxembourg; Centre of Genomics and Policy, Department of Human Genetics, McGill University, Montreal, QC, Canada; Corresponding authorCenter for Genomic Medicine, Massachusetts General Hospital, Boston, MA, USA; Broad Institute of MIT and Harvard, Cambridge, MA, USAGlobal Alliance for Genomics and Health, Toronto, ON, Canada; Ontario Institute for Cancer Research, Toronto, ON, CanadaBroad Institute of MIT and Harvard, Cambridge, MA, USA; Global Alliance for Genomics and Health, Toronto, ON, CanadaCentre of Genomics and Policy, Department of Human Genetics, McGill University, Montreal, QC, CanadaUniversity of Zurich and Swiss Institute of Bioinformatics, Zurich, SwitzerlandCentre for Genomic Regulation (CRG), The Barcelona Institute of Science and Technology, Barcelona, Spain; Universitat Pompeu Fabra, Barcelona, SpainCentre for Genomic Regulation (CRG), The Barcelona Institute of Science and Technology, Barcelona, Spain; Institute of Evolutionary Biology (UPF-CSIC), Department of Experimental and Health Sciences, Universitat Pompeu Fabra, Barcelona, Spain; Institució Catalana de Recerca i Estudis Avançats (ICREA), Barcelona, Spain; Barcelonaβeta Brain Research Center (BBRC), Pasqual Maragall Foundation, Barcelona, SpainCSC - IT Center for Science, Life Science Center, Espoo, Finland; ELIXIR-Europe (Finland), Wellcome Genome Campus, Hinxton, Cambridgeshire, UKCSC - IT Center for Science, Life Science Center, Espoo, Finland; ELIXIR-Europe (Finland), Wellcome Genome Campus, Hinxton, Cambridgeshire, UKSchool of Law, University of Edinburgh, Edinburgh, UKDNAstack, Toronto, ON, CanadaDepartment of Computer Science, University of Toronto and University Health Network, Toronto, ON, CanadaUC Santa Cruz Genomics Institute, Mail Stop: Genomics, 1156 High Street, Santa Cruz, CA 95064, USAEuropean Molecular Biology Laboratory, European Bioinformatics Institute, Wellcome Genome Campus, Cambridgeshire, UKWe promote a shared vision and guide for how and when to federate genomic and health-related data sharing, enabling connections and insights across independent, secure databases. The GA4GH encourages a federated approach wherein data providers have the mandate and resources to share, but where data cannot move for legal or technical reasons. We recommend a federated approach to connect national genomics initiatives into a global network and precision medicine resource.http://www.sciencedirect.com/science/article/pii/S2666979X21000392data sharingfederationgenomicsstandardsnetworksdata security |
| spellingShingle | Adrian Thorogood Heidi L. Rehm Peter Goodhand Angela J.H. Page Yann Joly Michael Baudis Jordi Rambla Arcadi Navarro Tommi H. Nyronen Mikael Linden Edward S. Dove Marc Fiume Michael Brudno Melissa S. Cline Ewan Birney International federation of genomic medicine databases using GA4GH standards Cell Genomics data sharing federation genomics standards networks data security |
| title | International federation of genomic medicine databases using GA4GH standards |
| title_full | International federation of genomic medicine databases using GA4GH standards |
| title_fullStr | International federation of genomic medicine databases using GA4GH standards |
| title_full_unstemmed | International federation of genomic medicine databases using GA4GH standards |
| title_short | International federation of genomic medicine databases using GA4GH standards |
| title_sort | international federation of genomic medicine databases using ga4gh standards |
| topic | data sharing federation genomics standards networks data security |
| url | http://www.sciencedirect.com/science/article/pii/S2666979X21000392 |
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