Assessing quality of life in pediatric fibrous dysplasia and McCune Albright syndrome: PEDS-QL and HADS data from the Fibrous Dysplasia Foundation Patient Registry

Assessing quality of life in pediatric fibrous dysplasia and McCune Albright syndrome: PEDS-QL and HADS data from the Fibrous Dysplasia Foundation Patient Registry

Abstract Purpose The International FD/MAS Consortium recently encouraged using the Pediatric Quality of Life Inventory (PEDS-QL) and the Hospital Anxiety and Depression scales (HADS) in clinical care. This study examines scores on these measures among pediatric fibrous dysplasia and McCune Albright...

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Bibliographic Details
Main Author: Amanda Konradi
Format: Article
Language:English
Published: SpringerOpen 2021-04-01
Series:Journal of Patient-Reported Outcomes
Subjects:
Fibrous dysplasia
Quality of life
Depression
Anxiety
Children
McCune Albright syndrome
Online Access:https://doi.org/10.1186/s41687-021-00304-2

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