Navigating Without a Roadmap
Caregivers of individuals with Alzheimer’s disease are willing to make large sacrifices to attend to the everyday demands of their loved one’s health. Many still lack the necessary skills, information, and resources from medical professionals needed to fully execute this role. The aim of this study...
| Main Authors: | , , , , |
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| Format: | Article |
| Language: | English |
| Published: |
SAGE Publishing
2016-10-01
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| Series: | Global Qualitative Nursing Research |
| Online Access: | https://doi.org/10.1177/2333393616673465 |
| _version_ | 1819080063299092480 |
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| author | Max Zubatsky Mayra Aragon-Prada Fatima Muse Peter Rainey Robert Martin |
| author_facet | Max Zubatsky Mayra Aragon-Prada Fatima Muse Peter Rainey Robert Martin |
| author_sort | Max Zubatsky |
| collection | DOAJ |
| description | Caregivers of individuals with Alzheimer’s disease are willing to make large sacrifices to attend to the everyday demands of their loved one’s health. Many still lack the necessary skills, information, and resources from medical professionals needed to fully execute this role. The aim of this study is to explore the challenges that first-time Alzheimer’s caregivers encountered with members of their health care team around a loved one’s diagnosis. Four focus groups ( N = 13) were conducted in a primary care clinic and academic setting, using a semi-structured interview format facilitated by a mental health professional. The authors used thematic analysis to generate three overarching themes regarding lack of information given about the diagnosis, complications with medication management, and level of confidence in their medical team. Medical professionals should consider educating Alzheimer’s disease caregivers during the initial stage of this role, providing greater continuity of care with the family throughout treatment. |
| first_indexed | 2024-12-21T19:38:55Z |
| format | Article |
| id | doaj.art-9a0d7e145ad944a7a50138b84695c5db |
| institution | Directory Open Access Journal |
| issn | 2333-3936 |
| language | English |
| last_indexed | 2024-12-21T19:38:55Z |
| publishDate | 2016-10-01 |
| publisher | SAGE Publishing |
| record_format | Article |
| series | Global Qualitative Nursing Research |
| spelling | doaj.art-9a0d7e145ad944a7a50138b84695c5db2022-12-21T18:52:32ZengSAGE PublishingGlobal Qualitative Nursing Research2333-39362016-10-01310.1177/233339361667346510.1177_2333393616673465Navigating Without a RoadmapMax Zubatsky0Mayra Aragon-Prada1Fatima Muse2Peter Rainey3Robert Martin4Saint Louis University, St. Louis, Missouri, USASaint Louis University, St. Louis, Missouri, USASaint Louis University, St. Louis, Missouri, USAThe Pennsylvania State University, State College, Pennsylvania, USAAdvocate Health Care, Chicago, Illinois, USACaregivers of individuals with Alzheimer’s disease are willing to make large sacrifices to attend to the everyday demands of their loved one’s health. Many still lack the necessary skills, information, and resources from medical professionals needed to fully execute this role. The aim of this study is to explore the challenges that first-time Alzheimer’s caregivers encountered with members of their health care team around a loved one’s diagnosis. Four focus groups ( N = 13) were conducted in a primary care clinic and academic setting, using a semi-structured interview format facilitated by a mental health professional. The authors used thematic analysis to generate three overarching themes regarding lack of information given about the diagnosis, complications with medication management, and level of confidence in their medical team. Medical professionals should consider educating Alzheimer’s disease caregivers during the initial stage of this role, providing greater continuity of care with the family throughout treatment.https://doi.org/10.1177/2333393616673465 |
| spellingShingle | Max Zubatsky Mayra Aragon-Prada Fatima Muse Peter Rainey Robert Martin Navigating Without a Roadmap Global Qualitative Nursing Research |
| title | Navigating Without a Roadmap |
| title_full | Navigating Without a Roadmap |
| title_fullStr | Navigating Without a Roadmap |
| title_full_unstemmed | Navigating Without a Roadmap |
| title_short | Navigating Without a Roadmap |
| title_sort | navigating without a roadmap |
| url | https://doi.org/10.1177/2333393616673465 |
| work_keys_str_mv | AT maxzubatsky navigatingwithoutaroadmap AT mayraaragonprada navigatingwithoutaroadmap AT fatimamuse navigatingwithoutaroadmap AT peterrainey navigatingwithoutaroadmap AT robertmartin navigatingwithoutaroadmap |