Exploring the Quality of Life of People with Incomplete Spinal Cord Injury Who Can Ambulate
(1) Purpose: To examine associations between subjective quality of life and other socio-demographic variables and to explore differences in experiences of people with different levels of quality of life (low, moderate, high). (2) Materials and methods: Semi-structured interviews and standardized mea...
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| Format: | Article |
| Language: | English |
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MDPI AG
2023-10-01
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| Series: | Disabilities |
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| Online Access: | https://www.mdpi.com/2673-7272/3/4/29 |
| _version_ | 1797381398446735360 |
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| author | Murveena Jeawon Bethany Hase Susanna Miller Janice Eng Andrea Bundon Habib Chaudhury Jocelyn Maffin Ryan Clarkson Jenna Wright W. Ben Mortenson |
| author_facet | Murveena Jeawon Bethany Hase Susanna Miller Janice Eng Andrea Bundon Habib Chaudhury Jocelyn Maffin Ryan Clarkson Jenna Wright W. Ben Mortenson |
| author_sort | Murveena Jeawon |
| collection | DOAJ |
| description | (1) Purpose: To examine associations between subjective quality of life and other socio-demographic variables and to explore differences in experiences of people with different levels of quality of life (low, moderate, high). (2) Materials and methods: Semi-structured interviews and standardized measures of mobility, function, health-related quality-of-life, and quality-of-life were used to collect the data for this mixed-method study. (3) Results: Twenty-four participants were interviewed with an average age of 55 years and 54% were male. High quality of life, according to quantitative analysis, was strongly associated with being male, attending rehabilitation, and being married. The qualitative findings supported the quantitative findings and also revealed that people with a low quality of life felt the neighborhood-built environment was not supportive of people with incomplete spinal cord injury who can walk. Participants who reported a low/moderate quality of life reported feeling devalued by able-bodied people and that their mobility was getting worse over time. (4) Conclusion: Findings suggest that those with incomplete spinal cord injuries who can walk could benefit from improved quality of life by modifying their social support and neighborhood’s built environment. For instance, sensitivity training for the general population could help to reduce negative attitudes and misperceptions about invisible impairments and promote inclusion. |
| first_indexed | 2024-03-08T20:50:56Z |
| format | Article |
| id | doaj.art-9a9d1977f0244a69b1b7f33bc7a4f6ac |
| institution | Directory Open Access Journal |
| issn | 2673-7272 |
| language | English |
| last_indexed | 2024-03-08T20:50:56Z |
| publishDate | 2023-10-01 |
| publisher | MDPI AG |
| record_format | Article |
| series | Disabilities |
| spelling | doaj.art-9a9d1977f0244a69b1b7f33bc7a4f6ac2023-12-22T14:03:24ZengMDPI AGDisabilities2673-72722023-10-013445547610.3390/disabilities3040029Exploring the Quality of Life of People with Incomplete Spinal Cord Injury Who Can AmbulateMurveena Jeawon0Bethany Hase1Susanna Miller2Janice Eng3Andrea Bundon4Habib Chaudhury5Jocelyn Maffin6Ryan Clarkson7Jenna Wright8W. Ben Mortenson9Department of Occupational Sciences and Occupational Therapy, University of British Columbia, Vancouver, BC V6T 2B5, CanadaDepartment of Occupational Sciences and Occupational Therapy, University of British Columbia, Vancouver, BC V6T 2B5, CanadaDepartment of Occupational Sciences and Occupational Therapy, University of British Columbia, Vancouver, BC V6T 2B5, CanadaGF Strong Rehabilitation Centre, Vancouver, BC V5Z 2G9, CanadaInternational Collaboration on Repair Discoveries, Vancouver, BC V5Z 1M9, CanadaDepartment of Gerontology, Simon Fraser University, Vancouver, BC V6B 5K3, CanadaSpinal Cord Injury—British Columbia, Vancouver, BC V6P 5Y7, CanadaSpinal Cord Injury—British Columbia, Vancouver, BC V6P 5Y7, CanadaSpinal Cord Injury—British Columbia, Vancouver, BC V6P 5Y7, CanadaDepartment of Occupational Sciences and Occupational Therapy, University of British Columbia, Vancouver, BC V6T 2B5, Canada(1) Purpose: To examine associations between subjective quality of life and other socio-demographic variables and to explore differences in experiences of people with different levels of quality of life (low, moderate, high). (2) Materials and methods: Semi-structured interviews and standardized measures of mobility, function, health-related quality-of-life, and quality-of-life were used to collect the data for this mixed-method study. (3) Results: Twenty-four participants were interviewed with an average age of 55 years and 54% were male. High quality of life, according to quantitative analysis, was strongly associated with being male, attending rehabilitation, and being married. The qualitative findings supported the quantitative findings and also revealed that people with a low quality of life felt the neighborhood-built environment was not supportive of people with incomplete spinal cord injury who can walk. Participants who reported a low/moderate quality of life reported feeling devalued by able-bodied people and that their mobility was getting worse over time. (4) Conclusion: Findings suggest that those with incomplete spinal cord injuries who can walk could benefit from improved quality of life by modifying their social support and neighborhood’s built environment. For instance, sensitivity training for the general population could help to reduce negative attitudes and misperceptions about invisible impairments and promote inclusion.https://www.mdpi.com/2673-7272/3/4/29quality of lifeexperiencesinvisible impairmentssocial scrutinyexcludedresilience |
| spellingShingle | Murveena Jeawon Bethany Hase Susanna Miller Janice Eng Andrea Bundon Habib Chaudhury Jocelyn Maffin Ryan Clarkson Jenna Wright W. Ben Mortenson Exploring the Quality of Life of People with Incomplete Spinal Cord Injury Who Can Ambulate Disabilities quality of life experiences invisible impairments social scrutiny excluded resilience |
| title | Exploring the Quality of Life of People with Incomplete Spinal Cord Injury Who Can Ambulate |
| title_full | Exploring the Quality of Life of People with Incomplete Spinal Cord Injury Who Can Ambulate |
| title_fullStr | Exploring the Quality of Life of People with Incomplete Spinal Cord Injury Who Can Ambulate |
| title_full_unstemmed | Exploring the Quality of Life of People with Incomplete Spinal Cord Injury Who Can Ambulate |
| title_short | Exploring the Quality of Life of People with Incomplete Spinal Cord Injury Who Can Ambulate |
| title_sort | exploring the quality of life of people with incomplete spinal cord injury who can ambulate |
| topic | quality of life experiences invisible impairments social scrutiny excluded resilience |
| url | https://www.mdpi.com/2673-7272/3/4/29 |
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