Patient engagement in Canada: a scoping review of the ‘how’ and ‘what’ of patient engagement in health research
Abstract Background Over the last 10 years, patient engagement in health research has emerged as the next evolution in healthcare research. However, limited evidence about the clear role and scope of patient engagement in health research and a lack of evidence about its impact have influenced the up...
| Main Authors: | , , , |
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| Format: | Article |
| Language: | English |
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BMC
2018-02-01
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| Series: | Health Research Policy and Systems |
| Online Access: | http://link.springer.com/article/10.1186/s12961-018-0282-4 |
| _version_ | 1818369002216357888 |
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| author | Elizabeth Manafo Lisa Petermann Ping Mason-Lai Virginia Vandall-Walker |
| author_facet | Elizabeth Manafo Lisa Petermann Ping Mason-Lai Virginia Vandall-Walker |
| author_sort | Elizabeth Manafo |
| collection | DOAJ |
| description | Abstract Background Over the last 10 years, patient engagement in health research has emerged as the next evolution in healthcare research. However, limited evidence about the clear role and scope of patient engagement in health research and a lack of evidence about its impact have influenced the uptake, implementation and ongoing evolution of patient engagement. The present study aims to conduct a scoping review to identify methods for and outcomes of patient engagement in health research. Methods An adaptation of the scoping review methodology originally described by Arksey and O’Malley and updated by Levac, Colquhoun and O’Brien was applied. Sources from a formal database search and relevant documents from a grey literature search were compiled into data extraction tables. Articles were synthesised into key themes according to the (1) methods and (2) outcomes of patient engagement in health research. Results The total yield for the scoping review was 55 records from across Canada, the United Kingdom and the United States. While evidence about the methods used to engage patients in health research is increasing, stronger evidence of specific patient and healthcare system outcomes is required. This necessitates further mobilisation of research that explores outcomes and that validates specific tools to evaluate engagement. Additionally, theoretical frameworks that can better inform and sustain patient engagement across the lifecycle of health research are lacking. Conclusion Further increasing the volume and reach of evidence about patient engagement in health research will support the paradigmatic shift needed to normalise the patient’s role in research beyond ‘subject’ or ‘participant’, so as to ultimately improve patient health outcomes and better address healthcare reform in Canada. |
| first_indexed | 2024-12-13T23:16:55Z |
| format | Article |
| id | doaj.art-9b2a317a2846498b949ab0f354ba6415 |
| institution | Directory Open Access Journal |
| issn | 1478-4505 |
| language | English |
| last_indexed | 2024-12-13T23:16:55Z |
| publishDate | 2018-02-01 |
| publisher | BMC |
| record_format | Article |
| series | Health Research Policy and Systems |
| spelling | doaj.art-9b2a317a2846498b949ab0f354ba64152022-12-21T23:27:54ZengBMCHealth Research Policy and Systems1478-45052018-02-0116111110.1186/s12961-018-0282-4Patient engagement in Canada: a scoping review of the ‘how’ and ‘what’ of patient engagement in health researchElizabeth Manafo0Lisa Petermann1Ping Mason-Lai2Virginia Vandall-Walker3Patient Engagement Platform, Alberta SPOR SUPPORT Unit, Faculty of Health Disciplines, Athabasca UniversityPatient Engagement Platform, Alberta SPOR SUPPORT Unit, Faculty of Health Disciplines, Athabasca UniversityPatient Engagement Platform, Alberta SPOR SUPPORT Unit, Faculty of Health Disciplines, Athabasca UniversityPatient Engagement Platform, Alberta SPOR SUPPORT Unit, Faculty of Health Disciplines, Athabasca UniversityAbstract Background Over the last 10 years, patient engagement in health research has emerged as the next evolution in healthcare research. However, limited evidence about the clear role and scope of patient engagement in health research and a lack of evidence about its impact have influenced the uptake, implementation and ongoing evolution of patient engagement. The present study aims to conduct a scoping review to identify methods for and outcomes of patient engagement in health research. Methods An adaptation of the scoping review methodology originally described by Arksey and O’Malley and updated by Levac, Colquhoun and O’Brien was applied. Sources from a formal database search and relevant documents from a grey literature search were compiled into data extraction tables. Articles were synthesised into key themes according to the (1) methods and (2) outcomes of patient engagement in health research. Results The total yield for the scoping review was 55 records from across Canada, the United Kingdom and the United States. While evidence about the methods used to engage patients in health research is increasing, stronger evidence of specific patient and healthcare system outcomes is required. This necessitates further mobilisation of research that explores outcomes and that validates specific tools to evaluate engagement. Additionally, theoretical frameworks that can better inform and sustain patient engagement across the lifecycle of health research are lacking. Conclusion Further increasing the volume and reach of evidence about patient engagement in health research will support the paradigmatic shift needed to normalise the patient’s role in research beyond ‘subject’ or ‘participant’, so as to ultimately improve patient health outcomes and better address healthcare reform in Canada.http://link.springer.com/article/10.1186/s12961-018-0282-4 |
| spellingShingle | Elizabeth Manafo Lisa Petermann Ping Mason-Lai Virginia Vandall-Walker Patient engagement in Canada: a scoping review of the ‘how’ and ‘what’ of patient engagement in health research Health Research Policy and Systems |
| title | Patient engagement in Canada: a scoping review of the ‘how’ and ‘what’ of patient engagement in health research |
| title_full | Patient engagement in Canada: a scoping review of the ‘how’ and ‘what’ of patient engagement in health research |
| title_fullStr | Patient engagement in Canada: a scoping review of the ‘how’ and ‘what’ of patient engagement in health research |
| title_full_unstemmed | Patient engagement in Canada: a scoping review of the ‘how’ and ‘what’ of patient engagement in health research |
| title_short | Patient engagement in Canada: a scoping review of the ‘how’ and ‘what’ of patient engagement in health research |
| title_sort | patient engagement in canada a scoping review of the how and what of patient engagement in health research |
| url | http://link.springer.com/article/10.1186/s12961-018-0282-4 |
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