Understanding the patient and supporter journey in cocaine use disorder
BackgroundThere is a paucity of literature describing experiences and journey of individuals with cocaine use disorder (CUD) and supporters who care for them. The aim of this study was to understand and document the journey of individuals with current CUD, those in CUD remission, and supporters.Meth...
| Main Authors: | , , , , , , , |
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| Format: | Article |
| Language: | English |
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Frontiers Media S.A.
2024-04-01
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| Series: | Frontiers in Psychiatry |
| Subjects: | |
| Online Access: | https://www.frontiersin.org/articles/10.3389/fpsyt.2024.1230626/full |
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| author | Denise Leclair Katherine M. Waye Baltazar Gomez-Mancilla Baltazar Gomez-Mancilla Brian D. Kiluk Ananda Krishna Karanam Partha S. Banerjee Velusamy Shanmuganathan Muthusamy Suzanne Maahs |
| author_facet | Denise Leclair Katherine M. Waye Baltazar Gomez-Mancilla Baltazar Gomez-Mancilla Brian D. Kiluk Ananda Krishna Karanam Partha S. Banerjee Velusamy Shanmuganathan Muthusamy Suzanne Maahs |
| author_sort | Denise Leclair |
| collection | DOAJ |
| description | BackgroundThere is a paucity of literature describing experiences and journey of individuals with cocaine use disorder (CUD) and supporters who care for them. The aim of this study was to understand and document the journey of individuals with current CUD, those in CUD remission, and supporters.MethodsThe online bulletin board (OBB) is a qualitative tool where participants engage in an interactive discussion on a virtual forum. After completing a 15-minute screening questionnaire determining eligibility, individuals in CUD remission and supporters participated in an OBB for 60 minutes, split across 8 days over 2 weeks. Individuals with current CUD participated in a one-time virtual focus group discussion for 90 minutes.ResultsIndividuals in CUD remission (n=35) were from Brazil, France, Spain, the UK, and the US; those with current CUD (n=5) and supporters (n=6) were from the US. Key insights were that individuals with current CUD were seeking a ‘euphoric high’ that cocaine provides. Those in CUD remission described a ‘euphoric high’ when they first tried cocaine, but over time it became harder to re-create this feeling. Individuals in CUD remission expressed a ‘rollercoaster’ of emotions from when they first started using cocaine to when they stopped. Supporters were sad, isolated, and worried about a potential cocaine overdose for their loved ones with CUD.ConclusionThe study provides valuable insights into the experiences and journey of individuals with CUD and their supporters. Data generated from this study gives insights into this under-served and growing population. |
| first_indexed | 2024-04-24T11:36:26Z |
| format | Article |
| id | doaj.art-9b61de0da8c64d1db075b0c6a4860695 |
| institution | Directory Open Access Journal |
| issn | 1664-0640 |
| language | English |
| last_indexed | 2024-04-24T11:36:26Z |
| publishDate | 2024-04-01 |
| publisher | Frontiers Media S.A. |
| record_format | Article |
| series | Frontiers in Psychiatry |
| spelling | doaj.art-9b61de0da8c64d1db075b0c6a48606952024-04-10T05:21:12ZengFrontiers Media S.A.Frontiers in Psychiatry1664-06402024-04-011510.3389/fpsyt.2024.12306261230626Understanding the patient and supporter journey in cocaine use disorderDenise Leclair0Katherine M. Waye1Baltazar Gomez-Mancilla2Baltazar Gomez-Mancilla3Brian D. Kiluk4Ananda Krishna Karanam5Partha S. Banerjee6Velusamy Shanmuganathan Muthusamy7Suzanne Maahs8Novartis Pharmaceuticals Corporation, One Health Plaza, East Hanover, NJ, United StatesNovartis BioMedical Research, Cambridge, MA, United StatesNovartis BioMedical Research, Novartis Pharma AG, Basel, SwitzerlandMcGill University, Montreal, QC, CanadaYale School of Medicine, New Haven, CT, United StatesNovartis Healthcare Pvt. Ltd., Hyderabad, IndiaNovartis Healthcare Pvt. Ltd., Hyderabad, IndiaNovartis Healthcare Pvt. Ltd., Hyderabad, IndiaNovartis BioMedical Research, Cambridge, MA, United StatesBackgroundThere is a paucity of literature describing experiences and journey of individuals with cocaine use disorder (CUD) and supporters who care for them. The aim of this study was to understand and document the journey of individuals with current CUD, those in CUD remission, and supporters.MethodsThe online bulletin board (OBB) is a qualitative tool where participants engage in an interactive discussion on a virtual forum. After completing a 15-minute screening questionnaire determining eligibility, individuals in CUD remission and supporters participated in an OBB for 60 minutes, split across 8 days over 2 weeks. Individuals with current CUD participated in a one-time virtual focus group discussion for 90 minutes.ResultsIndividuals in CUD remission (n=35) were from Brazil, France, Spain, the UK, and the US; those with current CUD (n=5) and supporters (n=6) were from the US. Key insights were that individuals with current CUD were seeking a ‘euphoric high’ that cocaine provides. Those in CUD remission described a ‘euphoric high’ when they first tried cocaine, but over time it became harder to re-create this feeling. Individuals in CUD remission expressed a ‘rollercoaster’ of emotions from when they first started using cocaine to when they stopped. Supporters were sad, isolated, and worried about a potential cocaine overdose for their loved ones with CUD.ConclusionThe study provides valuable insights into the experiences and journey of individuals with CUD and their supporters. Data generated from this study gives insights into this under-served and growing population.https://www.frontiersin.org/articles/10.3389/fpsyt.2024.1230626/fullcocainecocaine use disorderjourneyonline bulletin boardpatient perspectivesqualitative research |
| spellingShingle | Denise Leclair Katherine M. Waye Baltazar Gomez-Mancilla Baltazar Gomez-Mancilla Brian D. Kiluk Ananda Krishna Karanam Partha S. Banerjee Velusamy Shanmuganathan Muthusamy Suzanne Maahs Understanding the patient and supporter journey in cocaine use disorder Frontiers in Psychiatry cocaine cocaine use disorder journey online bulletin board patient perspectives qualitative research |
| title | Understanding the patient and supporter journey in cocaine use disorder |
| title_full | Understanding the patient and supporter journey in cocaine use disorder |
| title_fullStr | Understanding the patient and supporter journey in cocaine use disorder |
| title_full_unstemmed | Understanding the patient and supporter journey in cocaine use disorder |
| title_short | Understanding the patient and supporter journey in cocaine use disorder |
| title_sort | understanding the patient and supporter journey in cocaine use disorder |
| topic | cocaine cocaine use disorder journey online bulletin board patient perspectives qualitative research |
| url | https://www.frontiersin.org/articles/10.3389/fpsyt.2024.1230626/full |
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