Family caregivers' emotional and communication needs in Canadian pediatric emergency departments.
<h4>Objectives</h4>To describe the extent to which caregivers' emotional and communication needs were met during pediatric emergency department (PED) visits. Secondary objectives included describing the association of caregiver emotional needs, satisfaction with care, and comfort in...
| Main Authors: | , , , , , , , , , , , , , , , , , , , |
|---|---|
| Format: | Article |
| Language: | English |
| Published: |
Public Library of Science (PLoS)
2023-01-01
|
| Series: | PLoS ONE |
| Online Access: | https://journals.plos.org/plosone/article/file?id=10.1371/journal.pone.0294597&type=printable |
| _version_ | 1827587753444900864 |
|---|---|
| author | Samina Ali Claudia Maki Asa Rahimi Keon Ma Maryna Yaskina Helen Wong Antonia Stang Tania Principi Naveen Poonai Serge Gouin Sylvia Froese R N Paul Clerc Redjana Carciumaru Waleed Alqurashi Manasi Rajagopal Elise Kammerer Julie Leung Bruce Wright Shannon D Scott Pediatric Emergency Research Canada Family Needs Study Group |
| author_facet | Samina Ali Claudia Maki Asa Rahimi Keon Ma Maryna Yaskina Helen Wong Antonia Stang Tania Principi Naveen Poonai Serge Gouin Sylvia Froese R N Paul Clerc Redjana Carciumaru Waleed Alqurashi Manasi Rajagopal Elise Kammerer Julie Leung Bruce Wright Shannon D Scott Pediatric Emergency Research Canada Family Needs Study Group |
| author_sort | Samina Ali |
| collection | DOAJ |
| description | <h4>Objectives</h4>To describe the extent to which caregivers' emotional and communication needs were met during pediatric emergency department (PED) visits. Secondary objectives included describing the association of caregiver emotional needs, satisfaction with care, and comfort in caring for their child's illness at the time of discharge with demographic characteristics, caregiver experiences, and ED visit details.<h4>Study design</h4>Electronic surveys with medical record review were deployed at ten Canadian PEDs from October 2018 -March 2020. A convenience sample of families with children <18 years presenting to a PED were enrolled, for one week every three months, for one year per site. Caregivers completed one in-PED survey and a follow-up survey, up to seven days post-visit.<h4>Results</h4>This study recruited 2005 caregivers who self-identified as mothers (74.3%, 1462/1969); mean age was 37.8 years (SD 7.7). 71.7% (1081/1507) of caregivers felt their emotional needs were met. 86.4% (1293/1496) identified communication with the doctor as good/very good and 83.4% (1249/1498) with their child's nurse. Caregiver involvement in their child's care was reported as good/very good 85.6% (1271/1485) of the time. 81.8% (1074/1313) of caregivers felt comfortable in caring for their child at home at the time of discharge. Lower caregiver anxiety scores, caregiver involvement in their child's care, satisfactory updates, and having questions adequately addressed positively impacted caregiver emotional needs and increased caregiver comfort in caring for their child's illness at home.<h4>Conclusion</h4>Approximately 30% of caregivers presenting to PEDs have unmet emotional needs, over 15% had unmet communication needs, and 15% felt inadequately involved in their child's care. Family caregiver involvement in care and good communication from PED staff are key elements in improving overall patient experience and satisfaction. |
| first_indexed | 2024-03-09T00:22:34Z |
| format | Article |
| id | doaj.art-9b9c857fc66f40d89b879d78c7e10365 |
| institution | Directory Open Access Journal |
| issn | 1932-6203 |
| language | English |
| last_indexed | 2024-03-09T00:22:34Z |
| publishDate | 2023-01-01 |
| publisher | Public Library of Science (PLoS) |
| record_format | Article |
| series | PLoS ONE |
| spelling | doaj.art-9b9c857fc66f40d89b879d78c7e103652023-12-12T05:33:39ZengPublic Library of Science (PLoS)PLoS ONE1932-62032023-01-011811e029459710.1371/journal.pone.0294597Family caregivers' emotional and communication needs in Canadian pediatric emergency departments.Samina AliClaudia MakiAsa RahimiKeon MaMaryna YaskinaHelen WongAntonia StangTania PrincipiNaveen PoonaiSerge GouinSylvia Froese R NPaul ClercRedjana CarciumaruWaleed AlqurashiManasi RajagopalElise KammererJulie LeungBruce WrightShannon D ScottPediatric Emergency Research Canada Family Needs Study Group<h4>Objectives</h4>To describe the extent to which caregivers' emotional and communication needs were met during pediatric emergency department (PED) visits. Secondary objectives included describing the association of caregiver emotional needs, satisfaction with care, and comfort in caring for their child's illness at the time of discharge with demographic characteristics, caregiver experiences, and ED visit details.<h4>Study design</h4>Electronic surveys with medical record review were deployed at ten Canadian PEDs from October 2018 -March 2020. A convenience sample of families with children <18 years presenting to a PED were enrolled, for one week every three months, for one year per site. Caregivers completed one in-PED survey and a follow-up survey, up to seven days post-visit.<h4>Results</h4>This study recruited 2005 caregivers who self-identified as mothers (74.3%, 1462/1969); mean age was 37.8 years (SD 7.7). 71.7% (1081/1507) of caregivers felt their emotional needs were met. 86.4% (1293/1496) identified communication with the doctor as good/very good and 83.4% (1249/1498) with their child's nurse. Caregiver involvement in their child's care was reported as good/very good 85.6% (1271/1485) of the time. 81.8% (1074/1313) of caregivers felt comfortable in caring for their child at home at the time of discharge. Lower caregiver anxiety scores, caregiver involvement in their child's care, satisfactory updates, and having questions adequately addressed positively impacted caregiver emotional needs and increased caregiver comfort in caring for their child's illness at home.<h4>Conclusion</h4>Approximately 30% of caregivers presenting to PEDs have unmet emotional needs, over 15% had unmet communication needs, and 15% felt inadequately involved in their child's care. Family caregiver involvement in care and good communication from PED staff are key elements in improving overall patient experience and satisfaction.https://journals.plos.org/plosone/article/file?id=10.1371/journal.pone.0294597&type=printable |
| spellingShingle | Samina Ali Claudia Maki Asa Rahimi Keon Ma Maryna Yaskina Helen Wong Antonia Stang Tania Principi Naveen Poonai Serge Gouin Sylvia Froese R N Paul Clerc Redjana Carciumaru Waleed Alqurashi Manasi Rajagopal Elise Kammerer Julie Leung Bruce Wright Shannon D Scott Pediatric Emergency Research Canada Family Needs Study Group Family caregivers' emotional and communication needs in Canadian pediatric emergency departments. PLoS ONE |
| title | Family caregivers' emotional and communication needs in Canadian pediatric emergency departments. |
| title_full | Family caregivers' emotional and communication needs in Canadian pediatric emergency departments. |
| title_fullStr | Family caregivers' emotional and communication needs in Canadian pediatric emergency departments. |
| title_full_unstemmed | Family caregivers' emotional and communication needs in Canadian pediatric emergency departments. |
| title_short | Family caregivers' emotional and communication needs in Canadian pediatric emergency departments. |
| title_sort | family caregivers emotional and communication needs in canadian pediatric emergency departments |
| url | https://journals.plos.org/plosone/article/file?id=10.1371/journal.pone.0294597&type=printable |
| work_keys_str_mv | AT saminaali familycaregiversemotionalandcommunicationneedsincanadianpediatricemergencydepartments AT claudiamaki familycaregiversemotionalandcommunicationneedsincanadianpediatricemergencydepartments AT asarahimi familycaregiversemotionalandcommunicationneedsincanadianpediatricemergencydepartments AT keonma familycaregiversemotionalandcommunicationneedsincanadianpediatricemergencydepartments AT marynayaskina familycaregiversemotionalandcommunicationneedsincanadianpediatricemergencydepartments AT helenwong familycaregiversemotionalandcommunicationneedsincanadianpediatricemergencydepartments AT antoniastang familycaregiversemotionalandcommunicationneedsincanadianpediatricemergencydepartments AT taniaprincipi familycaregiversemotionalandcommunicationneedsincanadianpediatricemergencydepartments AT naveenpoonai familycaregiversemotionalandcommunicationneedsincanadianpediatricemergencydepartments AT sergegouin familycaregiversemotionalandcommunicationneedsincanadianpediatricemergencydepartments AT sylviafroesern familycaregiversemotionalandcommunicationneedsincanadianpediatricemergencydepartments AT paulclerc familycaregiversemotionalandcommunicationneedsincanadianpediatricemergencydepartments AT redjanacarciumaru familycaregiversemotionalandcommunicationneedsincanadianpediatricemergencydepartments AT waleedalqurashi familycaregiversemotionalandcommunicationneedsincanadianpediatricemergencydepartments AT manasirajagopal familycaregiversemotionalandcommunicationneedsincanadianpediatricemergencydepartments AT elisekammerer familycaregiversemotionalandcommunicationneedsincanadianpediatricemergencydepartments AT julieleung familycaregiversemotionalandcommunicationneedsincanadianpediatricemergencydepartments AT brucewright familycaregiversemotionalandcommunicationneedsincanadianpediatricemergencydepartments AT shannondscott familycaregiversemotionalandcommunicationneedsincanadianpediatricemergencydepartments AT pediatricemergencyresearchcanadafamilyneedsstudygroup familycaregiversemotionalandcommunicationneedsincanadianpediatricemergencydepartments |