Clinical characteristics, healthcare use, and annual costs among patients with dystrophic epidermolysis bullosa

Clinical characteristics, healthcare use, and annual costs among patients with dystrophic epidermolysis bullosa

Abstract Background Dystrophic epidermolysis bullosa (DEB) is a serious, ultra-rare, genetic blistering disease that requires a multidisciplinary care team and lifelong, proactive disease management. To organize and optimize care, we comprehensively examined diagnoses, healthcare use, and annual cos...

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Bibliographic Details
Main Authors: James A. Feinstein, Anna L. Bruckner, Benjamin Chastek, Amy Anderson, Juan Roman
Format: Article
Language:English
Published: BMC 2022-09-01
Series:Orphanet Journal of Rare Diseases
Subjects:
Administrative claims
Bandages
Comorbidity
Cost of illness
Disease burden
Epidermolysis bullosa
Online Access:https://doi.org/10.1186/s13023-022-02509-0

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