Long-term multidisciplinary follow-up programs in pediatric cardiac arrest survivors
Long-term outcome studies after pediatric cardiac arrest (CA) are few. They require a CA registry and dedicated outcome teams. Learning about the long-term outcomes is very important for developing prognostication guidelines, improving post-cardiac care, counseling caregivers about the future of the...
| Main Authors: | , , , , |
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| Format: | Article |
| Language: | English |
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Elsevier
2024-03-01
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| Series: | Resuscitation Plus |
| Subjects: | |
| Online Access: | http://www.sciencedirect.com/science/article/pii/S2666520424000146 |
| _version_ | 1797242967354769408 |
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| author | M. Hunfeld K. Dulfer J. Del Castillo M. Vázquez C.M.P. Buysse |
| author_facet | M. Hunfeld K. Dulfer J. Del Castillo M. Vázquez C.M.P. Buysse |
| author_sort | M. Hunfeld |
| collection | DOAJ |
| description | Long-term outcome studies after pediatric cardiac arrest (CA) are few. They require a CA registry and dedicated outcome teams. Learning about the long-term outcomes is very important for developing prognostication guidelines, improving post-cardiac care, counseling caregivers about the future of their child, and creating opportunities for therapeutic intervention studies to improve outcomes.Few PICUs worldwide provide a multidisciplinary follow-up program as routine practice at an outpatient clinic with standardized measurements, using validated instruments including neuropsychological assessments by psychologists. The primary goal of such a follow-up program should be to provide excellent care to children and their caregivers, thereby resulting in a high attendance. Pediatric psychologists, neurologists and pediatricians/pediatric intensivists should ideally be involved to screen for delayed development and psychosocial problems and offer appropriate care at the same time. Preferably, outcomes should consist of evaluation of morbidity (physical and neuropsychological), functional health and Health Related Quality Of Life (QoL) of the patient and their caregivers. |
| first_indexed | 2024-03-08T06:54:11Z |
| format | Article |
| id | doaj.art-9c506bd9b3214876b0c0914c00350a2e |
| institution | Directory Open Access Journal |
| issn | 2666-5204 |
| language | English |
| last_indexed | 2024-04-24T18:47:38Z |
| publishDate | 2024-03-01 |
| publisher | Elsevier |
| record_format | Article |
| series | Resuscitation Plus |
| spelling | doaj.art-9c506bd9b3214876b0c0914c00350a2e2024-03-27T04:53:05ZengElsevierResuscitation Plus2666-52042024-03-0117100563Long-term multidisciplinary follow-up programs in pediatric cardiac arrest survivorsM. Hunfeld0K. Dulfer1J. Del Castillo2M. Vázquez3C.M.P. Buysse4Department of Neonatal and Pediatric Intensive Care Unit, Division of Pediatric Intensive Care Unit, Erasmus MC Children’s Hospital, Rotterdam, the NetherlandsDepartment of Neonatal and Pediatric Intensive Care Unit, Division of Pediatric Intensive Care Unit, Erasmus MC Children’s Hospital, Rotterdam, the NetherlandsPediatric Intensive Care Department, Hospital General Universitario Gregorio Marañón, Instituto de Investigación Sanitaria Gregorio Marañón, Madrid, Primary Care Interventions to Prevent Maternal and Child Chronic Diseases of Perinatal and Development Origen Network (RICORS-RD21/0012/0011), SpainPediatric Intensive Care Department, Hospital General Universitario Gregorio Marañón, Instituto de Investigación Sanitaria Gregorio Marañón, Madrid, Primary Care Interventions to Prevent Maternal and Child Chronic Diseases of Perinatal and Development Origen Network (RICORS-RD21/0012/0011), SpainDepartment of Neonatal and Pediatric Intensive Care Unit, Division of Pediatric Intensive Care Unit, Erasmus MC Children’s Hospital, Rotterdam, the Netherlands; Corresponding author.Long-term outcome studies after pediatric cardiac arrest (CA) are few. They require a CA registry and dedicated outcome teams. Learning about the long-term outcomes is very important for developing prognostication guidelines, improving post-cardiac care, counseling caregivers about the future of their child, and creating opportunities for therapeutic intervention studies to improve outcomes.Few PICUs worldwide provide a multidisciplinary follow-up program as routine practice at an outpatient clinic with standardized measurements, using validated instruments including neuropsychological assessments by psychologists. The primary goal of such a follow-up program should be to provide excellent care to children and their caregivers, thereby resulting in a high attendance. Pediatric psychologists, neurologists and pediatricians/pediatric intensivists should ideally be involved to screen for delayed development and psychosocial problems and offer appropriate care at the same time. Preferably, outcomes should consist of evaluation of morbidity (physical and neuropsychological), functional health and Health Related Quality Of Life (QoL) of the patient and their caregivers.http://www.sciencedirect.com/science/article/pii/S2666520424000146Cardiac arrestChildrenNeuroprognosticationLong-term outcomeFollow-up |
| spellingShingle | M. Hunfeld K. Dulfer J. Del Castillo M. Vázquez C.M.P. Buysse Long-term multidisciplinary follow-up programs in pediatric cardiac arrest survivors Resuscitation Plus Cardiac arrest Children Neuroprognostication Long-term outcome Follow-up |
| title | Long-term multidisciplinary follow-up programs in pediatric cardiac arrest survivors |
| title_full | Long-term multidisciplinary follow-up programs in pediatric cardiac arrest survivors |
| title_fullStr | Long-term multidisciplinary follow-up programs in pediatric cardiac arrest survivors |
| title_full_unstemmed | Long-term multidisciplinary follow-up programs in pediatric cardiac arrest survivors |
| title_short | Long-term multidisciplinary follow-up programs in pediatric cardiac arrest survivors |
| title_sort | long term multidisciplinary follow up programs in pediatric cardiac arrest survivors |
| topic | Cardiac arrest Children Neuroprognostication Long-term outcome Follow-up |
| url | http://www.sciencedirect.com/science/article/pii/S2666520424000146 |
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