Delivering Advance Care Planning Support at Scale: A Qualitative Interview Study in Twelve International Healthcare Organisations
<p><strong>Context:</strong> Globally, populations are ageing, with people increasingly likely to die with chronic progressive illness. In this context, there is widespread interest in advance care planning (ACP), where people are supported to think about and express preferences co...
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| Format: | Article |
| Language: | English |
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LSE Press
2019-10-01
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| Series: | Journal of Long-Term Care |
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| Online Access: | https://journal.ilpnetwork.org/articles/7 |
| _version_ | 1797961795923607552 |
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| author | Josie Dixon Martin Knapp |
| author_facet | Josie Dixon Martin Knapp |
| author_sort | Josie Dixon |
| collection | DOAJ |
| description | <p><strong>Context:</strong> Globally, populations are ageing, with people increasingly likely to die with chronic progressive illness. In this context, there is widespread interest in advance care planning (ACP), where people are supported to think about and express preferences concerning their future care. However, to date there has been limited systematic implementation.</p><p><strong>Objectives:</strong> In a purposive sample of 12 international health and care organisations working to provide system-wide ACP support, we examined organisational aims, leaders’ perspectives on the economic case and promising approaches for efficiently delivering ACP support at scale.</p><p><strong>Methods:</strong> In-depth qualitive interviews (average 13 in each organisation) with leaders, ACP specialists and front-line staff.</p><p><strong>Findings:</strong> Organisational aims for ACP support were multiple and complex; they included optimizing patient and family care, supporting staff and mitigating risks of complaints from bereaved families, reputational damage, poor staff morale and potential legal challenges. The economic case comprised intrinsic benefits for patients, families and staff; averting costs associated with potential risks; and making best use of resources by reducing reactive care and provision of unwanted, low-value treatments. A degree of staff specialism, team-based delivery, use of decision aids, group-based facilitations, public health approaches and supportive parallel system changes and initiatives appear likely to support the efficient and effective delivery of ACP support at scale.</p><p><strong>Limitations:</strong> We recruited organisations using snowball sampling. Quantitative information was inquired about to complement data from interviews but availability was limited.</p><p><strong>Implications:</strong> ACP support may be usefully understood as both an individual- and system-level intervention. We identify various approaches for delivering ACP support more efficiently at scale.</p> |
| first_indexed | 2024-04-11T01:03:20Z |
| format | Article |
| id | doaj.art-9cb155b13d7748a38a9fc765758b34e6 |
| institution | Directory Open Access Journal |
| issn | 2516-9122 |
| language | English |
| last_indexed | 2024-04-11T01:03:20Z |
| publishDate | 2019-10-01 |
| publisher | LSE Press |
| record_format | Article |
| series | Journal of Long-Term Care |
| spelling | doaj.art-9cb155b13d7748a38a9fc765758b34e62023-01-04T15:00:29ZengLSE PressJournal of Long-Term Care2516-91222019-10-010201910.31389/jltc.713Delivering Advance Care Planning Support at Scale: A Qualitative Interview Study in Twelve International Healthcare OrganisationsJosie Dixon0Martin Knapp1London School of Economics and Political ScienceLondon School of Economics and Political Science<p><strong>Context:</strong> Globally, populations are ageing, with people increasingly likely to die with chronic progressive illness. In this context, there is widespread interest in advance care planning (ACP), where people are supported to think about and express preferences concerning their future care. However, to date there has been limited systematic implementation.</p><p><strong>Objectives:</strong> In a purposive sample of 12 international health and care organisations working to provide system-wide ACP support, we examined organisational aims, leaders’ perspectives on the economic case and promising approaches for efficiently delivering ACP support at scale.</p><p><strong>Methods:</strong> In-depth qualitive interviews (average 13 in each organisation) with leaders, ACP specialists and front-line staff.</p><p><strong>Findings:</strong> Organisational aims for ACP support were multiple and complex; they included optimizing patient and family care, supporting staff and mitigating risks of complaints from bereaved families, reputational damage, poor staff morale and potential legal challenges. The economic case comprised intrinsic benefits for patients, families and staff; averting costs associated with potential risks; and making best use of resources by reducing reactive care and provision of unwanted, low-value treatments. A degree of staff specialism, team-based delivery, use of decision aids, group-based facilitations, public health approaches and supportive parallel system changes and initiatives appear likely to support the efficient and effective delivery of ACP support at scale.</p><p><strong>Limitations:</strong> We recruited organisations using snowball sampling. Quantitative information was inquired about to complement data from interviews but availability was limited.</p><p><strong>Implications:</strong> ACP support may be usefully understood as both an individual- and system-level intervention. We identify various approaches for delivering ACP support more efficiently at scale.</p>https://journal.ilpnetwork.org/articles/7advance care planning, chronic conditions, chronic illness, multi-morbidity, end of life care, end-of-life caredementia, personalization, population health, cost-effectiveness, health economics |
| spellingShingle | Josie Dixon Martin Knapp Delivering Advance Care Planning Support at Scale: A Qualitative Interview Study in Twelve International Healthcare Organisations Journal of Long-Term Care advance care planning, chronic conditions, chronic illness, multi-morbidity, end of life care, end-of-life care dementia, personalization, population health, cost-effectiveness, health economics |
| title | Delivering Advance Care Planning Support at Scale: A Qualitative Interview Study in Twelve International Healthcare Organisations |
| title_full | Delivering Advance Care Planning Support at Scale: A Qualitative Interview Study in Twelve International Healthcare Organisations |
| title_fullStr | Delivering Advance Care Planning Support at Scale: A Qualitative Interview Study in Twelve International Healthcare Organisations |
| title_full_unstemmed | Delivering Advance Care Planning Support at Scale: A Qualitative Interview Study in Twelve International Healthcare Organisations |
| title_short | Delivering Advance Care Planning Support at Scale: A Qualitative Interview Study in Twelve International Healthcare Organisations |
| title_sort | delivering advance care planning support at scale a qualitative interview study in twelve international healthcare organisations |
| topic | advance care planning, chronic conditions, chronic illness, multi-morbidity, end of life care, end-of-life care dementia, personalization, population health, cost-effectiveness, health economics |
| url | https://journal.ilpnetwork.org/articles/7 |
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