Why Do Women with Eating Disorders Decline Treatment? A Qualitative Study of Barriers to Specialized Eating Disorder Treatment

Despite the fact that eating disorders (EDs) are conditions that are potentially life-threatening, many people decline treatment. The aim of this study was to investigate why women decline specialized ED treatment, including their viewpoints on treatment services. Eighteen semi-structured qualitativ...

Full description

Bibliographic Details
Main Authors: Sofie T. Andersen, Thea Linkhorst, Frederik A. Gildberg, Magnus Sjögren
Format: Article
Language:English
Published: MDPI AG 2021-11-01
Series:Nutrients
Subjects:
Online Access:https://www.mdpi.com/2072-6643/13/11/4033
_version_ 1797508946419777536
author Sofie T. Andersen
Thea Linkhorst
Frederik A. Gildberg
Magnus Sjögren
author_facet Sofie T. Andersen
Thea Linkhorst
Frederik A. Gildberg
Magnus Sjögren
author_sort Sofie T. Andersen
collection DOAJ
description Despite the fact that eating disorders (EDs) are conditions that are potentially life-threatening, many people decline treatment. The aim of this study was to investigate why women decline specialized ED treatment, including their viewpoints on treatment services. Eighteen semi-structured qualitative interviews were conducted with women who had declined inpatient or outpatient specialized ED treatment. A thematic analysis revealed five main themes: (1) Disagreement on treatment needs, (2) rigid standard procedures, (3) failure to listen, (4) deprivation of identity, and (5) mistrust and fear. The women had declined ED treatment because they believed that treatment was only focused on nutritional rehabilitation and that it failed to address their self-identified needs. From their perspectives treatment was characterized by rigid standard procedures that could not be adapted to their individual situations and preferences. They felt that the therapists failed to listen to them, and they felt deprived of identity and reduced to an ED instead of a real person. This investigation is one of the first of its kind to provide clues as to how treatment could be moderated to better meet the needs of women who decline specialized ED treatment.
first_indexed 2024-03-10T05:11:03Z
format Article
id doaj.art-9da6679a849c43e4b2fcfbaa7352a379
institution Directory Open Access Journal
issn 2072-6643
language English
last_indexed 2024-03-10T05:11:03Z
publishDate 2021-11-01
publisher MDPI AG
record_format Article
series Nutrients
spelling doaj.art-9da6679a849c43e4b2fcfbaa7352a3792023-11-23T00:49:37ZengMDPI AGNutrients2072-66432021-11-011311403310.3390/nu13114033Why Do Women with Eating Disorders Decline Treatment? A Qualitative Study of Barriers to Specialized Eating Disorder TreatmentSofie T. Andersen0Thea Linkhorst1Frederik A. Gildberg2Magnus Sjögren3Department of Studies and Analysis, National Association against Eating Disorders and Self-Harm, 2500 Valby, DenmarkForensic Mental Health Research Unit Middelfart, Department of Regional Health Research, Faculty of Health Sciences, University of Southern Denmark, 5500 Middelfart, DenmarkForensic Mental Health Research Unit Middelfart, Department of Regional Health Research, Faculty of Health Sciences, University of Southern Denmark, 5500 Middelfart, DenmarkPsychiatric Center Ballerup, 2750 Ballerup, DenmarkDespite the fact that eating disorders (EDs) are conditions that are potentially life-threatening, many people decline treatment. The aim of this study was to investigate why women decline specialized ED treatment, including their viewpoints on treatment services. Eighteen semi-structured qualitative interviews were conducted with women who had declined inpatient or outpatient specialized ED treatment. A thematic analysis revealed five main themes: (1) Disagreement on treatment needs, (2) rigid standard procedures, (3) failure to listen, (4) deprivation of identity, and (5) mistrust and fear. The women had declined ED treatment because they believed that treatment was only focused on nutritional rehabilitation and that it failed to address their self-identified needs. From their perspectives treatment was characterized by rigid standard procedures that could not be adapted to their individual situations and preferences. They felt that the therapists failed to listen to them, and they felt deprived of identity and reduced to an ED instead of a real person. This investigation is one of the first of its kind to provide clues as to how treatment could be moderated to better meet the needs of women who decline specialized ED treatment.https://www.mdpi.com/2072-6643/13/11/4033eating disordersanorexia nervosabarrierstreatmentadultqualitative
spellingShingle Sofie T. Andersen
Thea Linkhorst
Frederik A. Gildberg
Magnus Sjögren
Why Do Women with Eating Disorders Decline Treatment? A Qualitative Study of Barriers to Specialized Eating Disorder Treatment
Nutrients
eating disorders
anorexia nervosa
barriers
treatment
adult
qualitative
title Why Do Women with Eating Disorders Decline Treatment? A Qualitative Study of Barriers to Specialized Eating Disorder Treatment
title_full Why Do Women with Eating Disorders Decline Treatment? A Qualitative Study of Barriers to Specialized Eating Disorder Treatment
title_fullStr Why Do Women with Eating Disorders Decline Treatment? A Qualitative Study of Barriers to Specialized Eating Disorder Treatment
title_full_unstemmed Why Do Women with Eating Disorders Decline Treatment? A Qualitative Study of Barriers to Specialized Eating Disorder Treatment
title_short Why Do Women with Eating Disorders Decline Treatment? A Qualitative Study of Barriers to Specialized Eating Disorder Treatment
title_sort why do women with eating disorders decline treatment a qualitative study of barriers to specialized eating disorder treatment
topic eating disorders
anorexia nervosa
barriers
treatment
adult
qualitative
url https://www.mdpi.com/2072-6643/13/11/4033
work_keys_str_mv AT sofietandersen whydowomenwitheatingdisordersdeclinetreatmentaqualitativestudyofbarrierstospecializedeatingdisordertreatment
AT thealinkhorst whydowomenwitheatingdisordersdeclinetreatmentaqualitativestudyofbarrierstospecializedeatingdisordertreatment
AT frederikagildberg whydowomenwitheatingdisordersdeclinetreatmentaqualitativestudyofbarrierstospecializedeatingdisordertreatment
AT magnussjogren whydowomenwitheatingdisordersdeclinetreatmentaqualitativestudyofbarrierstospecializedeatingdisordertreatment