Inclusion of Black and Latina Parents With Physical Disabilities in a Qualitative Research Study: A Peer Researcher Training Model
Public health qualitative research has largely failed to achieve full inclusion of people with disabilities and Black people and Latinx/as. Although there is a small, but growing, community of academic researchers from each of these communities, there has been limited involvement of non-academic com...
| Main Authors: | , , , , , , , , , |
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| Format: | Article |
| Language: | English |
| Published: |
SAGE Publishing
2024-10-01
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| Series: | International Journal of Qualitative Methods |
| Online Access: | https://doi.org/10.1177/16094069231207771 |
| _version_ | 1797300516303142912 |
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| author | Jennifer Lee-Rambharose Lauren D. Smith Kim The Willi Horner-Johnson Linda Long-Bellil Heather Watkins Jennifer Senda Nancy Garr-Colzie Maria R. Palacios Monika Mitra |
| author_facet | Jennifer Lee-Rambharose Lauren D. Smith Kim The Willi Horner-Johnson Linda Long-Bellil Heather Watkins Jennifer Senda Nancy Garr-Colzie Maria R. Palacios Monika Mitra |
| author_sort | Jennifer Lee-Rambharose |
| collection | DOAJ |
| description | Public health qualitative research has largely failed to achieve full inclusion of people with disabilities and Black people and Latinx/as. Although there is a small, but growing, community of academic researchers from each of these communities, there has been limited involvement of non-academic community members in research. While Community-Based Participatory Research (CBPR) has informed the inclusion of marginalized groups in research for decades, instances of full inclusion of disabled Black people and Latinx/as in public health research have been minimal. One way to ensure the inclusion of Black/Latinx community members with disabilities is to involve them as peer researchers. As part of a qualitative study examining pregnancy experiences of individuals with physical disabilities from Black/Latinx communities, academic researchers trained four peer researchers to conduct interviews and analyze the data. This paper describes our approach, which may serve as a model for training peer researchers in qualitative research methodology for future studies. All peer researchers were women who identified as Black or Latina parents with physical disabilities. This approach was chosen due to the study’s focus on the intersections of disability, race, ethnicity, and pregnancy, and applied a disability justice lens. Although CBPR offers important principles for research existing literature suggests CBPR is not always inclusive and power sharing. Therefore, we developed a research training model which places a unique and timely focus on the intersections of CBPR, racial and disability justice, the importance of building the capacity of Black and Latina disabled peer researchers, and its importance to building community relationships and trust. |
| first_indexed | 2024-03-07T23:08:17Z |
| format | Article |
| id | doaj.art-9e2234471ad8403caa309205af97a21c |
| institution | Directory Open Access Journal |
| issn | 1609-4069 |
| language | English |
| last_indexed | 2024-03-07T23:08:17Z |
| publishDate | 2024-10-01 |
| publisher | SAGE Publishing |
| record_format | Article |
| series | International Journal of Qualitative Methods |
| spelling | doaj.art-9e2234471ad8403caa309205af97a21c2024-02-21T18:03:45ZengSAGE PublishingInternational Journal of Qualitative Methods1609-40692024-10-012310.1177/16094069231207771Inclusion of Black and Latina Parents With Physical Disabilities in a Qualitative Research Study: A Peer Researcher Training ModelJennifer Lee-RambharoseLauren D. SmithKim TheWilli Horner-JohnsonLinda Long-BellilHeather WatkinsJennifer SendaNancy Garr-ColzieMaria R. PalaciosMonika MitraPublic health qualitative research has largely failed to achieve full inclusion of people with disabilities and Black people and Latinx/as. Although there is a small, but growing, community of academic researchers from each of these communities, there has been limited involvement of non-academic community members in research. While Community-Based Participatory Research (CBPR) has informed the inclusion of marginalized groups in research for decades, instances of full inclusion of disabled Black people and Latinx/as in public health research have been minimal. One way to ensure the inclusion of Black/Latinx community members with disabilities is to involve them as peer researchers. As part of a qualitative study examining pregnancy experiences of individuals with physical disabilities from Black/Latinx communities, academic researchers trained four peer researchers to conduct interviews and analyze the data. This paper describes our approach, which may serve as a model for training peer researchers in qualitative research methodology for future studies. All peer researchers were women who identified as Black or Latina parents with physical disabilities. This approach was chosen due to the study’s focus on the intersections of disability, race, ethnicity, and pregnancy, and applied a disability justice lens. Although CBPR offers important principles for research existing literature suggests CBPR is not always inclusive and power sharing. Therefore, we developed a research training model which places a unique and timely focus on the intersections of CBPR, racial and disability justice, the importance of building the capacity of Black and Latina disabled peer researchers, and its importance to building community relationships and trust.https://doi.org/10.1177/16094069231207771 |
| spellingShingle | Jennifer Lee-Rambharose Lauren D. Smith Kim The Willi Horner-Johnson Linda Long-Bellil Heather Watkins Jennifer Senda Nancy Garr-Colzie Maria R. Palacios Monika Mitra Inclusion of Black and Latina Parents With Physical Disabilities in a Qualitative Research Study: A Peer Researcher Training Model International Journal of Qualitative Methods |
| title | Inclusion of Black and Latina Parents With Physical Disabilities in a Qualitative Research Study: A Peer Researcher Training Model |
| title_full | Inclusion of Black and Latina Parents With Physical Disabilities in a Qualitative Research Study: A Peer Researcher Training Model |
| title_fullStr | Inclusion of Black and Latina Parents With Physical Disabilities in a Qualitative Research Study: A Peer Researcher Training Model |
| title_full_unstemmed | Inclusion of Black and Latina Parents With Physical Disabilities in a Qualitative Research Study: A Peer Researcher Training Model |
| title_short | Inclusion of Black and Latina Parents With Physical Disabilities in a Qualitative Research Study: A Peer Researcher Training Model |
| title_sort | inclusion of black and latina parents with physical disabilities in a qualitative research study a peer researcher training model |
| url | https://doi.org/10.1177/16094069231207771 |
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