Organization of rehabilitation services for youth with physical disabilities and mental health problems: A scoping review
IntroductionYouth with childhood-onset physical disabilities receiving rehabilitation services often present with many complex needs. Emerging evidence confirms co-occurrence of mental health problems in this population is common, and mental health is often overlooked during rehabilitation for chron...
| Main Authors: | , , , , |
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| Format: | Article |
| Language: | English |
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Frontiers Media S.A.
2023-02-01
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| Series: | Frontiers in Rehabilitation Sciences |
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| Online Access: | https://www.frontiersin.org/articles/10.3389/fresc.2023.1085827/full |
| _version_ | 1797902730386210816 |
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| author | Stephanie Tremblay Stephanie Tremblay Stephanie Tremblay Shalini Lal Shalini Lal Shalini Lal Lucille Xiang Lucille Xiang Mark A. Ferro Dana Anaby Dana Anaby |
| author_facet | Stephanie Tremblay Stephanie Tremblay Stephanie Tremblay Shalini Lal Shalini Lal Shalini Lal Lucille Xiang Lucille Xiang Mark A. Ferro Dana Anaby Dana Anaby |
| author_sort | Stephanie Tremblay |
| collection | DOAJ |
| description | IntroductionYouth with childhood-onset physical disabilities receiving rehabilitation services often present with many complex needs. Emerging evidence confirms co-occurrence of mental health problems in this population is common, and mental health is often overlooked during rehabilitation for chronic physical conditions. For example, symptoms of depression and anxiety are frequently present in adolescents with physical disability such as spina bifida or Duchenne muscular dystrophy, and access to mental health services is often limited. Addressing mental health concerns for this age group is particularly critical as it encompasses a challenging transition to adulthood.ObjectivesBuilding upon findings from a recent scoping review on the co-occurrence of physical disabilities and mental health problems, this paper synthesizes scientific literature related to the organization and delivery of services for youth with co-occurring childhood-onset physical disabilities (e.g., cerebral palsy, spina bifida) and mental health problems (e.g., depression, anxiety).MethodsA scoping review protocol stemming from Arksey & O'Malley's framework and updated guidelines from the Joanna Briggs Institute was developed. Four databases (Medline, PsycINFO, CINAHL, Embase) were searched. The search was limited to French or English peer-reviewed articles published between 2000 and 2021. Articles included were primary papers addressing: 1) youth aged 15 to 24 with a childhood-onset physical disability, 2) mental health problems, and 3) healthcare service organization or delivery. They were screened by two reviewers and discussed with a third to establish consensus on the inclusion criteria and resolve disagreements.ResultsSixteen articles were retained from the 1,010 screened. Many (9/16) were from the United States. Two models were found: the Biopsychosocial, Collaborative, Agency-Based Service Integration Approach (including psychiatry in a pediatric rehabilitation hospital) and the Client Network Consultation (an interagency collaboration in mental health care for children with complex healthcare needs). Twelve key principles for service organization and delivery were identified and categorized into: collaboration and coordination, training and support, and delivery of care.ConclusionIdentified principles can guide improved service delivery for this population. Highlighted research gaps include the need for developing models of collaborative healthcare delivery and subsequently evaluating their effectiveness. |
| first_indexed | 2024-04-10T09:22:19Z |
| format | Article |
| id | doaj.art-9f1dca235bf6499e9ee9e69529d3c3a5 |
| institution | Directory Open Access Journal |
| issn | 2673-6861 |
| language | English |
| last_indexed | 2024-04-10T09:22:19Z |
| publishDate | 2023-02-01 |
| publisher | Frontiers Media S.A. |
| record_format | Article |
| series | Frontiers in Rehabilitation Sciences |
| spelling | doaj.art-9f1dca235bf6499e9ee9e69529d3c3a52023-02-20T11:24:54ZengFrontiers Media S.A.Frontiers in Rehabilitation Sciences2673-68612023-02-01410.3389/fresc.2023.10858271085827Organization of rehabilitation services for youth with physical disabilities and mental health problems: A scoping reviewStephanie Tremblay0Stephanie Tremblay1Stephanie Tremblay2Shalini Lal3Shalini Lal4Shalini Lal5Lucille Xiang6Lucille Xiang7Mark A. Ferro8Dana Anaby9Dana Anaby10School of Physical and Occupational Therapy, McGill University, Montreal, QC, CanadaPEPP Montreal and ACCESS Open Minds, Douglas Mental Health University Institute, Montreal, QC, CanadaCenter for Interdisciplinary Research in Rehabilitation of Greater Montreal (CRIR), Montreal, QC, CanadaPEPP Montreal and ACCESS Open Minds, Douglas Mental Health University Institute, Montreal, QC, CanadaSchool of Rehabilitation, University of Montreal, Montreal, QC, CanadaHealth Innovation and Evaluation Hub, University of Montreal Hospital Research Center, Montreal, QC, CanadaSchool of Physical and Occupational Therapy, McGill University, Montreal, QC, CanadaSchool of Public Health, Brown University, Providence, RI, United StatesSchool of Public Health Sciences, University of Waterloo, Waterloo, ON, CanadaSchool of Physical and Occupational Therapy, McGill University, Montreal, QC, CanadaCenter for Interdisciplinary Research in Rehabilitation of Greater Montreal (CRIR), Montreal, QC, CanadaIntroductionYouth with childhood-onset physical disabilities receiving rehabilitation services often present with many complex needs. Emerging evidence confirms co-occurrence of mental health problems in this population is common, and mental health is often overlooked during rehabilitation for chronic physical conditions. For example, symptoms of depression and anxiety are frequently present in adolescents with physical disability such as spina bifida or Duchenne muscular dystrophy, and access to mental health services is often limited. Addressing mental health concerns for this age group is particularly critical as it encompasses a challenging transition to adulthood.ObjectivesBuilding upon findings from a recent scoping review on the co-occurrence of physical disabilities and mental health problems, this paper synthesizes scientific literature related to the organization and delivery of services for youth with co-occurring childhood-onset physical disabilities (e.g., cerebral palsy, spina bifida) and mental health problems (e.g., depression, anxiety).MethodsA scoping review protocol stemming from Arksey & O'Malley's framework and updated guidelines from the Joanna Briggs Institute was developed. Four databases (Medline, PsycINFO, CINAHL, Embase) were searched. The search was limited to French or English peer-reviewed articles published between 2000 and 2021. Articles included were primary papers addressing: 1) youth aged 15 to 24 with a childhood-onset physical disability, 2) mental health problems, and 3) healthcare service organization or delivery. They were screened by two reviewers and discussed with a third to establish consensus on the inclusion criteria and resolve disagreements.ResultsSixteen articles were retained from the 1,010 screened. Many (9/16) were from the United States. Two models were found: the Biopsychosocial, Collaborative, Agency-Based Service Integration Approach (including psychiatry in a pediatric rehabilitation hospital) and the Client Network Consultation (an interagency collaboration in mental health care for children with complex healthcare needs). Twelve key principles for service organization and delivery were identified and categorized into: collaboration and coordination, training and support, and delivery of care.ConclusionIdentified principles can guide improved service delivery for this population. Highlighted research gaps include the need for developing models of collaborative healthcare delivery and subsequently evaluating their effectiveness.https://www.frontiersin.org/articles/10.3389/fresc.2023.1085827/fullservice organizationrehabilitationco-occurring diagnosesmental health servicesservice delivery |
| spellingShingle | Stephanie Tremblay Stephanie Tremblay Stephanie Tremblay Shalini Lal Shalini Lal Shalini Lal Lucille Xiang Lucille Xiang Mark A. Ferro Dana Anaby Dana Anaby Organization of rehabilitation services for youth with physical disabilities and mental health problems: A scoping review Frontiers in Rehabilitation Sciences service organization rehabilitation co-occurring diagnoses mental health services service delivery |
| title | Organization of rehabilitation services for youth with physical disabilities and mental health problems: A scoping review |
| title_full | Organization of rehabilitation services for youth with physical disabilities and mental health problems: A scoping review |
| title_fullStr | Organization of rehabilitation services for youth with physical disabilities and mental health problems: A scoping review |
| title_full_unstemmed | Organization of rehabilitation services for youth with physical disabilities and mental health problems: A scoping review |
| title_short | Organization of rehabilitation services for youth with physical disabilities and mental health problems: A scoping review |
| title_sort | organization of rehabilitation services for youth with physical disabilities and mental health problems a scoping review |
| topic | service organization rehabilitation co-occurring diagnoses mental health services service delivery |
| url | https://www.frontiersin.org/articles/10.3389/fresc.2023.1085827/full |
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