A feasibility pilot- a personalised physiotherapy led remote ACHD cardiac rehabilitation program
Objective: To determine the feasibility of physiotherapy led remote cardiac rehabilitation (RCR) for Adult Congenital Heart Disease (ACHD) patients and quantify the impact on physical activity levels and well-being. Method: ACHD cardiologists referred sedentary complex ACHD patients over 3 months, f...
| Main Authors: | , , , , , |
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| Format: | Article |
| Language: | English |
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Elsevier
2021-10-01
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| Series: | International Journal of Cardiology Congenital Heart Disease |
| Subjects: | |
| Online Access: | http://www.sciencedirect.com/science/article/pii/S2666668521001440 |
| _version_ | 1818988966928449536 |
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| author | Caroline Evans Stephanie Curtis Radwa Bedair Mark Turner Gergely Szantho Alan Graham Stuart |
| author_facet | Caroline Evans Stephanie Curtis Radwa Bedair Mark Turner Gergely Szantho Alan Graham Stuart |
| author_sort | Caroline Evans |
| collection | DOAJ |
| description | Objective: To determine the feasibility of physiotherapy led remote cardiac rehabilitation (RCR) for Adult Congenital Heart Disease (ACHD) patients and quantify the impact on physical activity levels and well-being. Method: ACHD cardiologists referred sedentary complex ACHD patients over 3 months, for 12-week physiotherapy-led RCR. RCR provided individualised exercise program and coaching via telephone clinics and apps. Outcomes in Self Efficacy for Exercise (SEE) and Satisfaction with Life Score (SWLC) were assessed by comparing patients' responses upon program completion to baseline. Results: 23 patients were referred, 11 completed the programme, 3 had learning difficulties. Participants were mainly female (9); age range 18–61 (median 24). Reasons for not completing RCR included; failure to attend initial appointments (7), lack of interest (1), too unwell (1), lost at follow up (1) and a death unrelated to RCR.Initially no patients were achieving the UK Physical Activity Guidelines; all 11 became more active fulfilling the guidelines. Improvements were seen in SEE with a mean increase of 23 (SD 12) and a mean improvement of 10 (SD 4) in SWLC. Participants (9) responded well to apps. Reasons for not using apps included limited phone storage capacity to download the app (1) or lack of device (2). Patients found RCR acceptable and a personalised approach was essential to improving efficacy. Conclusion: RCR is feasible, allowing patients to access specialised, personalised exercise advice and prescription and become more active, improving quality of life (QOL). Future work is required to improve uptake and extend to larger patient numbers. |
| first_indexed | 2024-12-20T19:30:59Z |
| format | Article |
| id | doaj.art-9faeafc48335453fa4942269737a2439 |
| institution | Directory Open Access Journal |
| issn | 2666-6685 |
| language | English |
| last_indexed | 2024-12-20T19:30:59Z |
| publishDate | 2021-10-01 |
| publisher | Elsevier |
| record_format | Article |
| series | International Journal of Cardiology Congenital Heart Disease |
| spelling | doaj.art-9faeafc48335453fa4942269737a24392022-12-21T19:28:47ZengElsevierInternational Journal of Cardiology Congenital Heart Disease2666-66852021-10-015100220A feasibility pilot- a personalised physiotherapy led remote ACHD cardiac rehabilitation programCaroline Evans0Stephanie Curtis1Radwa Bedair2Mark Turner3Gergely Szantho4Alan Graham Stuart5Corresponding author. Bristol Heart Institute, Bristol, BS2 8ED, UK.; National Institute of Health Research (NIHR) Cardiovascular Biomedical Research Centre, Bristol Heart Institute, Bristol, BS2 8ED, UKNational Institute of Health Research (NIHR) Cardiovascular Biomedical Research Centre, Bristol Heart Institute, Bristol, BS2 8ED, UKNational Institute of Health Research (NIHR) Cardiovascular Biomedical Research Centre, Bristol Heart Institute, Bristol, BS2 8ED, UKNational Institute of Health Research (NIHR) Cardiovascular Biomedical Research Centre, Bristol Heart Institute, Bristol, BS2 8ED, UKNational Institute of Health Research (NIHR) Cardiovascular Biomedical Research Centre, Bristol Heart Institute, Bristol, BS2 8ED, UKNational Institute of Health Research (NIHR) Cardiovascular Biomedical Research Centre, Bristol Heart Institute, Bristol, BS2 8ED, UKObjective: To determine the feasibility of physiotherapy led remote cardiac rehabilitation (RCR) for Adult Congenital Heart Disease (ACHD) patients and quantify the impact on physical activity levels and well-being. Method: ACHD cardiologists referred sedentary complex ACHD patients over 3 months, for 12-week physiotherapy-led RCR. RCR provided individualised exercise program and coaching via telephone clinics and apps. Outcomes in Self Efficacy for Exercise (SEE) and Satisfaction with Life Score (SWLC) were assessed by comparing patients' responses upon program completion to baseline. Results: 23 patients were referred, 11 completed the programme, 3 had learning difficulties. Participants were mainly female (9); age range 18–61 (median 24). Reasons for not completing RCR included; failure to attend initial appointments (7), lack of interest (1), too unwell (1), lost at follow up (1) and a death unrelated to RCR.Initially no patients were achieving the UK Physical Activity Guidelines; all 11 became more active fulfilling the guidelines. Improvements were seen in SEE with a mean increase of 23 (SD 12) and a mean improvement of 10 (SD 4) in SWLC. Participants (9) responded well to apps. Reasons for not using apps included limited phone storage capacity to download the app (1) or lack of device (2). Patients found RCR acceptable and a personalised approach was essential to improving efficacy. Conclusion: RCR is feasible, allowing patients to access specialised, personalised exercise advice and prescription and become more active, improving quality of life (QOL). Future work is required to improve uptake and extend to larger patient numbers.http://www.sciencedirect.com/science/article/pii/S2666668521001440Adult congenital heart diseaseCardiac rehabilitation |
| spellingShingle | Caroline Evans Stephanie Curtis Radwa Bedair Mark Turner Gergely Szantho Alan Graham Stuart A feasibility pilot- a personalised physiotherapy led remote ACHD cardiac rehabilitation program International Journal of Cardiology Congenital Heart Disease Adult congenital heart disease Cardiac rehabilitation |
| title | A feasibility pilot- a personalised physiotherapy led remote ACHD cardiac rehabilitation program |
| title_full | A feasibility pilot- a personalised physiotherapy led remote ACHD cardiac rehabilitation program |
| title_fullStr | A feasibility pilot- a personalised physiotherapy led remote ACHD cardiac rehabilitation program |
| title_full_unstemmed | A feasibility pilot- a personalised physiotherapy led remote ACHD cardiac rehabilitation program |
| title_short | A feasibility pilot- a personalised physiotherapy led remote ACHD cardiac rehabilitation program |
| title_sort | feasibility pilot a personalised physiotherapy led remote achd cardiac rehabilitation program |
| topic | Adult congenital heart disease Cardiac rehabilitation |
| url | http://www.sciencedirect.com/science/article/pii/S2666668521001440 |
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