Hungarian Linguistic, Cross-Cultural, and Age Adaptation of the Patient Satisfaction with Health Care in Inflammatory Bowel Disease Questionnaire (CACHE) and the Medication Adherence Report Scale (MARS)
Background: The TRANS-IBD study examines the superiority of joint transition visits, with drug adherence and patient satisfaction among the outcome measures. Our aim was a cross-cultural, age- and disease-specific adaptation of the ‘Medication Adherence Rating Scale’ (MARS) and ‘Patient satisfaction...
| Main Authors: | , , , , , , , , , |
|---|---|
| Format: | Article |
| Language: | English |
| Published: |
MDPI AG
2022-07-01
|
| Series: | Children |
| Subjects: | |
| Online Access: | https://www.mdpi.com/2227-9067/9/8/1143 |
| _version_ | 1827628854390292480 |
|---|---|
| author | Dóra Dohos Alex Váradi Nelli Farkas Adrienn Erős Andrea Párniczky Eszter Schäfer Éva Kosaras Judit Czelecz Péter Hegyi Patrícia Sarlós |
| author_facet | Dóra Dohos Alex Váradi Nelli Farkas Adrienn Erős Andrea Párniczky Eszter Schäfer Éva Kosaras Judit Czelecz Péter Hegyi Patrícia Sarlós |
| author_sort | Dóra Dohos |
| collection | DOAJ |
| description | Background: The TRANS-IBD study examines the superiority of joint transition visits, with drug adherence and patient satisfaction among the outcome measures. Our aim was a cross-cultural, age- and disease-specific adaptation of the ‘Medication Adherence Rating Scale’ (MARS) and ‘Patient satisfaction with health care in inflammatory bowel disease questionnaire’ (CACHE) questionnaires in patients with inflammatory bowel disease (IBD). Methods: Linguistic and cultural adaptation using test and re-test procedures were performed. Internal consistency with Cronbach’s α coefficients, confirmatory factor analyses with root Mean Square Error of Approximation (RMSEA), Comparative Fit Index (CFI), and Tucker-Lewis Index (TLI) were determined. Results: A total of 122 adolescents and 164 adults completed the questionnaires (47.5% male, mean age 17 ± 1; and 29.3% male, mean age 38 ± 11, respectively). In the MARS questionnaire, Cronbach’s α scores were found good in adolescents (0.864) and acceptable in adults (0.790), while in the CACHE questionnaire, scores were rated as excellent in both populations (0.906 and 0.945, respectively). The test-retest reliabilities were satisfactory in both groups (MARS questionnaire: r = 0.814 and r = 0.780, CACHE questionnaire: r = 0.892 and r = 0.898, respectively). RMSEA showed poor fit values in the MARS questionnaire and reasonable fit values in the CAHCE questionnaire, CFI and TLI had statistically acceptable results. Conclusion: Age-and disease-specific Hungarian versions of the questionnaires were developed, which are appropriate tools for TRANS-IBD RCT and daily IBD care. |
| first_indexed | 2024-03-09T13:39:33Z |
| format | Article |
| id | doaj.art-9fbef630ad664261a673f39374fd2ddb |
| institution | Directory Open Access Journal |
| issn | 2227-9067 |
| language | English |
| last_indexed | 2024-03-09T13:39:33Z |
| publishDate | 2022-07-01 |
| publisher | MDPI AG |
| record_format | Article |
| series | Children |
| spelling | doaj.art-9fbef630ad664261a673f39374fd2ddb2023-11-30T21:08:15ZengMDPI AGChildren2227-90672022-07-0198114310.3390/children9081143Hungarian Linguistic, Cross-Cultural, and Age Adaptation of the Patient Satisfaction with Health Care in Inflammatory Bowel Disease Questionnaire (CACHE) and the Medication Adherence Report Scale (MARS)Dóra Dohos0Alex Váradi1Nelli Farkas2Adrienn Erős3Andrea Párniczky4Eszter Schäfer5Éva Kosaras6Judit Czelecz7Péter Hegyi8Patrícia Sarlós9Institute for Translational Medicine, Medical School, University of Pécs, 7624 Pécs, HungaryInstitute for Translational Medicine, Medical School, University of Pécs, 7624 Pécs, HungaryInstitute for Translational Medicine, Medical School, University of Pécs, 7624 Pécs, HungaryHeim Pál National Institute of Pediatrics, 1089 Budapest, HungaryInstitute for Translational Medicine, Medical School, University of Pécs, 7624 Pécs, HungaryMedical Centre, Hungarian Defence Forces, 1134 Budapest, HungaryDepartment of Pediatrics, Central Hospital of Borsod-Abaúj-Zemplén County and University Teaching Hospital, 3526 Miskolc, HungaryBethesda Children’s Hospital, 1146 Budapest, HungaryInstitute for Translational Medicine, Medical School, University of Pécs, 7624 Pécs, HungaryFirst Department of Medicine, Division of Gastroenterology, Medical School, University of Pécs, 7624 Pécs, HungaryBackground: The TRANS-IBD study examines the superiority of joint transition visits, with drug adherence and patient satisfaction among the outcome measures. Our aim was a cross-cultural, age- and disease-specific adaptation of the ‘Medication Adherence Rating Scale’ (MARS) and ‘Patient satisfaction with health care in inflammatory bowel disease questionnaire’ (CACHE) questionnaires in patients with inflammatory bowel disease (IBD). Methods: Linguistic and cultural adaptation using test and re-test procedures were performed. Internal consistency with Cronbach’s α coefficients, confirmatory factor analyses with root Mean Square Error of Approximation (RMSEA), Comparative Fit Index (CFI), and Tucker-Lewis Index (TLI) were determined. Results: A total of 122 adolescents and 164 adults completed the questionnaires (47.5% male, mean age 17 ± 1; and 29.3% male, mean age 38 ± 11, respectively). In the MARS questionnaire, Cronbach’s α scores were found good in adolescents (0.864) and acceptable in adults (0.790), while in the CACHE questionnaire, scores were rated as excellent in both populations (0.906 and 0.945, respectively). The test-retest reliabilities were satisfactory in both groups (MARS questionnaire: r = 0.814 and r = 0.780, CACHE questionnaire: r = 0.892 and r = 0.898, respectively). RMSEA showed poor fit values in the MARS questionnaire and reasonable fit values in the CAHCE questionnaire, CFI and TLI had statistically acceptable results. Conclusion: Age-and disease-specific Hungarian versions of the questionnaires were developed, which are appropriate tools for TRANS-IBD RCT and daily IBD care.https://www.mdpi.com/2227-9067/9/8/1143adaptationinflammatory bowel diseaseTRANS-IBDquestionnaireCACHEMARS |
| spellingShingle | Dóra Dohos Alex Váradi Nelli Farkas Adrienn Erős Andrea Párniczky Eszter Schäfer Éva Kosaras Judit Czelecz Péter Hegyi Patrícia Sarlós Hungarian Linguistic, Cross-Cultural, and Age Adaptation of the Patient Satisfaction with Health Care in Inflammatory Bowel Disease Questionnaire (CACHE) and the Medication Adherence Report Scale (MARS) Children adaptation inflammatory bowel disease TRANS-IBD questionnaire CACHE MARS |
| title | Hungarian Linguistic, Cross-Cultural, and Age Adaptation of the Patient Satisfaction with Health Care in Inflammatory Bowel Disease Questionnaire (CACHE) and the Medication Adherence Report Scale (MARS) |
| title_full | Hungarian Linguistic, Cross-Cultural, and Age Adaptation of the Patient Satisfaction with Health Care in Inflammatory Bowel Disease Questionnaire (CACHE) and the Medication Adherence Report Scale (MARS) |
| title_fullStr | Hungarian Linguistic, Cross-Cultural, and Age Adaptation of the Patient Satisfaction with Health Care in Inflammatory Bowel Disease Questionnaire (CACHE) and the Medication Adherence Report Scale (MARS) |
| title_full_unstemmed | Hungarian Linguistic, Cross-Cultural, and Age Adaptation of the Patient Satisfaction with Health Care in Inflammatory Bowel Disease Questionnaire (CACHE) and the Medication Adherence Report Scale (MARS) |
| title_short | Hungarian Linguistic, Cross-Cultural, and Age Adaptation of the Patient Satisfaction with Health Care in Inflammatory Bowel Disease Questionnaire (CACHE) and the Medication Adherence Report Scale (MARS) |
| title_sort | hungarian linguistic cross cultural and age adaptation of the patient satisfaction with health care in inflammatory bowel disease questionnaire cache and the medication adherence report scale mars |
| topic | adaptation inflammatory bowel disease TRANS-IBD questionnaire CACHE MARS |
| url | https://www.mdpi.com/2227-9067/9/8/1143 |
| work_keys_str_mv | AT doradohos hungarianlinguisticcrossculturalandageadaptationofthepatientsatisfactionwithhealthcareininflammatoryboweldiseasequestionnairecacheandthemedicationadherencereportscalemars AT alexvaradi hungarianlinguisticcrossculturalandageadaptationofthepatientsatisfactionwithhealthcareininflammatoryboweldiseasequestionnairecacheandthemedicationadherencereportscalemars AT nellifarkas hungarianlinguisticcrossculturalandageadaptationofthepatientsatisfactionwithhealthcareininflammatoryboweldiseasequestionnairecacheandthemedicationadherencereportscalemars AT adrienneros hungarianlinguisticcrossculturalandageadaptationofthepatientsatisfactionwithhealthcareininflammatoryboweldiseasequestionnairecacheandthemedicationadherencereportscalemars AT andreaparniczky hungarianlinguisticcrossculturalandageadaptationofthepatientsatisfactionwithhealthcareininflammatoryboweldiseasequestionnairecacheandthemedicationadherencereportscalemars AT eszterschafer hungarianlinguisticcrossculturalandageadaptationofthepatientsatisfactionwithhealthcareininflammatoryboweldiseasequestionnairecacheandthemedicationadherencereportscalemars AT evakosaras hungarianlinguisticcrossculturalandageadaptationofthepatientsatisfactionwithhealthcareininflammatoryboweldiseasequestionnairecacheandthemedicationadherencereportscalemars AT juditczelecz hungarianlinguisticcrossculturalandageadaptationofthepatientsatisfactionwithhealthcareininflammatoryboweldiseasequestionnairecacheandthemedicationadherencereportscalemars AT peterhegyi hungarianlinguisticcrossculturalandageadaptationofthepatientsatisfactionwithhealthcareininflammatoryboweldiseasequestionnairecacheandthemedicationadherencereportscalemars AT patriciasarlos hungarianlinguisticcrossculturalandageadaptationofthepatientsatisfactionwithhealthcareininflammatoryboweldiseasequestionnairecacheandthemedicationadherencereportscalemars |