Equity and inclusivity in research: co-creation of a digital platform with representatives of marginalized populations to enhance the involvement in research of people with limited literacy skills
Plain English Summary People with limited literacy skills are often excluded from health research. Engaging patients and community members with limited literacy in research requires tailored approaches and methods that have been tried and tested with them. In 2017, building on an existing partnershi...
| Main Authors: | , , , , , , , , |
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| Format: | Article |
| Language: | English |
| Published: |
BMC
2021-10-01
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| Series: | Research Involvement and Engagement |
| Subjects: | |
| Online Access: | https://doi.org/10.1186/s40900-021-00313-x |
| _version_ | 1818825849880707072 |
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| author | Christine Loignon Sophie Dupéré Caroline Leblanc Karoline Truchon Amélie Bouchard Johanne Arsenault Julia Pinheiro Carvalho Alexandrine Boudreault-Fournier Sylvain Aimé Marcotte |
| author_facet | Christine Loignon Sophie Dupéré Caroline Leblanc Karoline Truchon Amélie Bouchard Johanne Arsenault Julia Pinheiro Carvalho Alexandrine Boudreault-Fournier Sylvain Aimé Marcotte |
| author_sort | Christine Loignon |
| collection | DOAJ |
| description | Plain English Summary People with limited literacy skills are often excluded from health research. Engaging patients and community members with limited literacy in research requires tailored approaches and methods that have been tried and tested with them. In 2017, building on an existing partnership between researchers well-versed in using participatory visual and sound methods and community partners, we undertook the co-creation of a digital platform. Our aim was to empower both academic researchers and community researchers and partners (lay persons, clinicians, stakeholders, community organizations) to engage in research projects with people with limited literacy skills. The result was a digital platform ( http://www.engageplus.com ) comprising several modules and resources available in French and English and accessible on the Web. In this commentary, we share our experience in co-creating this digital platform and discuss the facilitators and challenges encountered. |
| first_indexed | 2024-12-19T00:18:19Z |
| format | Article |
| id | doaj.art-a0522dd501954925b5611a355346fb8d |
| institution | Directory Open Access Journal |
| issn | 2056-7529 |
| language | English |
| last_indexed | 2024-12-19T00:18:19Z |
| publishDate | 2021-10-01 |
| publisher | BMC |
| record_format | Article |
| series | Research Involvement and Engagement |
| spelling | doaj.art-a0522dd501954925b5611a355346fb8d2022-12-21T20:45:40ZengBMCResearch Involvement and Engagement2056-75292021-10-01711610.1186/s40900-021-00313-xEquity and inclusivity in research: co-creation of a digital platform with representatives of marginalized populations to enhance the involvement in research of people with limited literacy skillsChristine Loignon0Sophie Dupéré1Caroline Leblanc2Karoline Truchon3Amélie Bouchard4Johanne Arsenault5Julia Pinheiro Carvalho6Alexandrine Boudreault-Fournier7Sylvain Aimé Marcotte8Department of Family and Emergency Medicine, Faculty of Medicine and Health Sciences, Université de SherbrookeFaculty of Nursing, Université LavalDepartment of Family and Emergency Medicine, Faculty of Medicine and Health Sciences, Université de SherbrookeDepartment of Social Sciences, Université du Québec en OutaouaisVilleray Literacy Center – La JarnigoineAtout-Lire Literacy CenterDepartment of Family and Emergency Medicine, Faculty of Medicine and Health Sciences, Université de SherbrookeDepartment of Anthropology, University of VictoriaLe Tour de Lire Literacy CenterPlain English Summary People with limited literacy skills are often excluded from health research. Engaging patients and community members with limited literacy in research requires tailored approaches and methods that have been tried and tested with them. In 2017, building on an existing partnership between researchers well-versed in using participatory visual and sound methods and community partners, we undertook the co-creation of a digital platform. Our aim was to empower both academic researchers and community researchers and partners (lay persons, clinicians, stakeholders, community organizations) to engage in research projects with people with limited literacy skills. The result was a digital platform ( http://www.engageplus.com ) comprising several modules and resources available in French and English and accessible on the Web. In this commentary, we share our experience in co-creating this digital platform and discuss the facilitators and challenges encountered.https://doi.org/10.1186/s40900-021-00313-xPatient and public involvementLiteracyCo-creationEquity in researchVisual methodsPopular education |
| spellingShingle | Christine Loignon Sophie Dupéré Caroline Leblanc Karoline Truchon Amélie Bouchard Johanne Arsenault Julia Pinheiro Carvalho Alexandrine Boudreault-Fournier Sylvain Aimé Marcotte Equity and inclusivity in research: co-creation of a digital platform with representatives of marginalized populations to enhance the involvement in research of people with limited literacy skills Research Involvement and Engagement Patient and public involvement Literacy Co-creation Equity in research Visual methods Popular education |
| title | Equity and inclusivity in research: co-creation of a digital platform with representatives of marginalized populations to enhance the involvement in research of people with limited literacy skills |
| title_full | Equity and inclusivity in research: co-creation of a digital platform with representatives of marginalized populations to enhance the involvement in research of people with limited literacy skills |
| title_fullStr | Equity and inclusivity in research: co-creation of a digital platform with representatives of marginalized populations to enhance the involvement in research of people with limited literacy skills |
| title_full_unstemmed | Equity and inclusivity in research: co-creation of a digital platform with representatives of marginalized populations to enhance the involvement in research of people with limited literacy skills |
| title_short | Equity and inclusivity in research: co-creation of a digital platform with representatives of marginalized populations to enhance the involvement in research of people with limited literacy skills |
| title_sort | equity and inclusivity in research co creation of a digital platform with representatives of marginalized populations to enhance the involvement in research of people with limited literacy skills |
| topic | Patient and public involvement Literacy Co-creation Equity in research Visual methods Popular education |
| url | https://doi.org/10.1186/s40900-021-00313-x |
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