“The heart in a bag”: The lived experience of patient-caregiver dyads with left ventricular assist device during cardiac rehabilitation
ObjectiveThe Left Ventricular Assist Device (LVAD) has increasingly become a primary therapeutic option for longer-waiting heart transplant lists. Although survival rates are growing, the device requires complex home care. Therefore, the presence of a caregiver trained in the LVAD management is impo...
| Main Authors: | , , , , , , , |
|---|---|
| Format: | Article |
| Language: | English |
| Published: |
Frontiers Media S.A.
2023-03-01
|
| Series: | Frontiers in Psychology |
| Subjects: | |
| Online Access: | https://www.frontiersin.org/articles/10.3389/fpsyg.2023.1116739/full |
| _version_ | 1827972359024279552 |
|---|---|
| author | Giada Rapelli Emanuele Maria Giusti Silvia Donato Miriam Parise Ariela Francesca Pagani Giada Pietrabissa Giada Pietrabissa Anna Bertoni Gianluca Castelnuovo Gianluca Castelnuovo |
| author_facet | Giada Rapelli Emanuele Maria Giusti Silvia Donato Miriam Parise Ariela Francesca Pagani Giada Pietrabissa Giada Pietrabissa Anna Bertoni Gianluca Castelnuovo Gianluca Castelnuovo |
| author_sort | Giada Rapelli |
| collection | DOAJ |
| description | ObjectiveThe Left Ventricular Assist Device (LVAD) has increasingly become a primary therapeutic option for longer-waiting heart transplant lists. Although survival rates are growing, the device requires complex home care. Therefore, the presence of a caregiver trained in the LVAD management is important for the success of the therapy. The LVAD leads both patients and their caregivers to experience new challenges and adapt to new lifestyle changes and limitations – but their subjective beliefs before home management remained little explored.DesignThis study identified, using a phenomenological hermeneutic approach, the main components of the LVAD experience of six patient-caregiver dyads interviewed during cardiac rehabilitation.ResultsWe identified 4 master themes: Being between life and death, Being human with a heart of steel, Sharing is caring (and a burden), and Being small and passive.ConclusionThe knowledge from this study can be used as a guide for healthcare providers in counseling LVAD recipients and their caregivers. |
| first_indexed | 2024-04-09T19:21:23Z |
| format | Article |
| id | doaj.art-a0b8580add5249d89fea4a38b15b60f3 |
| institution | Directory Open Access Journal |
| issn | 1664-1078 |
| language | English |
| last_indexed | 2024-04-09T19:21:23Z |
| publishDate | 2023-03-01 |
| publisher | Frontiers Media S.A. |
| record_format | Article |
| series | Frontiers in Psychology |
| spelling | doaj.art-a0b8580add5249d89fea4a38b15b60f32023-04-05T12:01:29ZengFrontiers Media S.A.Frontiers in Psychology1664-10782023-03-011410.3389/fpsyg.2023.11167391116739“The heart in a bag”: The lived experience of patient-caregiver dyads with left ventricular assist device during cardiac rehabilitationGiada Rapelli0Emanuele Maria Giusti1Silvia Donato2Miriam Parise3Ariela Francesca Pagani4Giada Pietrabissa5Giada Pietrabissa6Anna Bertoni7Gianluca Castelnuovo8Gianluca Castelnuovo9Department of Medicine and Surgery, University of Parma, Parma, ItalyPsychology Research Laboratory, Istituto Auxologico Italiano IRCCS, Milan, Lombardy, ItalyDepartment of Psychology, Catholic University of the Sacred Heart, Milan, ItalyDepartment of Psychology, Catholic University of the Sacred Heart, Milan, ItalyDepartment of Humanities, Univerisity of Urbino Carlo BO, Urbino, ItalyPsychology Research Laboratory, Istituto Auxologico Italiano IRCCS, Milan, Lombardy, ItalyDepartment of Psychology, Catholic University of the Sacred Heart, Milan, ItalyDepartment of Psychology, Catholic University of the Sacred Heart, Milan, ItalyPsychology Research Laboratory, Istituto Auxologico Italiano IRCCS, Milan, Lombardy, ItalyDepartment of Psychology, Catholic University of the Sacred Heart, Milan, ItalyObjectiveThe Left Ventricular Assist Device (LVAD) has increasingly become a primary therapeutic option for longer-waiting heart transplant lists. Although survival rates are growing, the device requires complex home care. Therefore, the presence of a caregiver trained in the LVAD management is important for the success of the therapy. The LVAD leads both patients and their caregivers to experience new challenges and adapt to new lifestyle changes and limitations – but their subjective beliefs before home management remained little explored.DesignThis study identified, using a phenomenological hermeneutic approach, the main components of the LVAD experience of six patient-caregiver dyads interviewed during cardiac rehabilitation.ResultsWe identified 4 master themes: Being between life and death, Being human with a heart of steel, Sharing is caring (and a burden), and Being small and passive.ConclusionThe knowledge from this study can be used as a guide for healthcare providers in counseling LVAD recipients and their caregivers.https://www.frontiersin.org/articles/10.3389/fpsyg.2023.1116739/fullleft ventricular assist deviceheart failurecaregiverdyadlived experience |
| spellingShingle | Giada Rapelli Emanuele Maria Giusti Silvia Donato Miriam Parise Ariela Francesca Pagani Giada Pietrabissa Giada Pietrabissa Anna Bertoni Gianluca Castelnuovo Gianluca Castelnuovo “The heart in a bag”: The lived experience of patient-caregiver dyads with left ventricular assist device during cardiac rehabilitation Frontiers in Psychology left ventricular assist device heart failure caregiver dyad lived experience |
| title | “The heart in a bag”: The lived experience of patient-caregiver dyads with left ventricular assist device during cardiac rehabilitation |
| title_full | “The heart in a bag”: The lived experience of patient-caregiver dyads with left ventricular assist device during cardiac rehabilitation |
| title_fullStr | “The heart in a bag”: The lived experience of patient-caregiver dyads with left ventricular assist device during cardiac rehabilitation |
| title_full_unstemmed | “The heart in a bag”: The lived experience of patient-caregiver dyads with left ventricular assist device during cardiac rehabilitation |
| title_short | “The heart in a bag”: The lived experience of patient-caregiver dyads with left ventricular assist device during cardiac rehabilitation |
| title_sort | the heart in a bag the lived experience of patient caregiver dyads with left ventricular assist device during cardiac rehabilitation |
| topic | left ventricular assist device heart failure caregiver dyad lived experience |
| url | https://www.frontiersin.org/articles/10.3389/fpsyg.2023.1116739/full |
| work_keys_str_mv | AT giadarapelli theheartinabagthelivedexperienceofpatientcaregiverdyadswithleftventricularassistdeviceduringcardiacrehabilitation AT emanuelemariagiusti theheartinabagthelivedexperienceofpatientcaregiverdyadswithleftventricularassistdeviceduringcardiacrehabilitation AT silviadonato theheartinabagthelivedexperienceofpatientcaregiverdyadswithleftventricularassistdeviceduringcardiacrehabilitation AT miriamparise theheartinabagthelivedexperienceofpatientcaregiverdyadswithleftventricularassistdeviceduringcardiacrehabilitation AT arielafrancescapagani theheartinabagthelivedexperienceofpatientcaregiverdyadswithleftventricularassistdeviceduringcardiacrehabilitation AT giadapietrabissa theheartinabagthelivedexperienceofpatientcaregiverdyadswithleftventricularassistdeviceduringcardiacrehabilitation AT giadapietrabissa theheartinabagthelivedexperienceofpatientcaregiverdyadswithleftventricularassistdeviceduringcardiacrehabilitation AT annabertoni theheartinabagthelivedexperienceofpatientcaregiverdyadswithleftventricularassistdeviceduringcardiacrehabilitation AT gianlucacastelnuovo theheartinabagthelivedexperienceofpatientcaregiverdyadswithleftventricularassistdeviceduringcardiacrehabilitation AT gianlucacastelnuovo theheartinabagthelivedexperienceofpatientcaregiverdyadswithleftventricularassistdeviceduringcardiacrehabilitation |