Impact of neurofibromatosis type 1 with plexiform neurofibromas on the health-related quality of life and work productivity of adult patients and caregivers in the UK: a cross-sectional survey

Impact of neurofibromatosis type 1 with plexiform neurofibromas on the health-related quality of life and work productivity of adult patients and caregivers in the UK: a cross-sectional survey

Abstract Background Plexiform neurofibromas (PN) are complex, benign nerve-sheath tumours that occur in 30–50% of patients with neurofibromatosis type 1 (NF1), a rare, genetic disorder. PN are associated with substantial, heterogeneous morbidities that impact health-related quality of life (HRQoL),...

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Bibliographic Details
Main Authors: Hyun Kyoo Yoo, Alex Porteous, Alvin Ng, Keval Haria, Annabel Griffiths, Andrew Lloyd, Xiaoqin Yang, Gbenga Kazeem, Volkan Barut
Format: Article
Language:English
Published: BMC 2023-11-01
Series:BMC Neurology
Subjects:
Neurofibromatosis
Plexiform neurofibromas
Quality of life
Utility
EQ-5D
Caregivers
Online Access:https://doi.org/10.1186/s12883-023-03429-7

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