Adapting a social network intervention for use in secondary mental health services using a collaborative approach with service users, carers/supporters and health professionals in the United Kingdom

Abstract Background Social integration, shared decision-making and personalised care are key elements of mental health and social care policy. Although these elements have been shown to improve service user and service-level outcomes, their translation into practice has been inconsistent and social...

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Main Authors: Helen Brooks, Angela Devereux-Fitzgerald, Laura Richmond, Neil Caton, Alice Newton, James Downs, Karina Lovell, Penny Bee, Mary Gemma Cherry, Bridget Young, Ivaylo Vassilev, Clare Rotheram, Anne Rogers
Format: Article
Language:English
Published: BMC 2022-09-01
Series:BMC Health Services Research
Subjects:
Online Access:https://doi.org/10.1186/s12913-022-08521-1
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author Helen Brooks
Angela Devereux-Fitzgerald
Laura Richmond
Neil Caton
Alice Newton
James Downs
Karina Lovell
Penny Bee
Mary Gemma Cherry
Bridget Young
Ivaylo Vassilev
Clare Rotheram
Anne Rogers
author_facet Helen Brooks
Angela Devereux-Fitzgerald
Laura Richmond
Neil Caton
Alice Newton
James Downs
Karina Lovell
Penny Bee
Mary Gemma Cherry
Bridget Young
Ivaylo Vassilev
Clare Rotheram
Anne Rogers
author_sort Helen Brooks
collection DOAJ
description Abstract Background Social integration, shared decision-making and personalised care are key elements of mental health and social care policy. Although these elements have been shown to improve service user and service-level outcomes, their translation into practice has been inconsistent and social isolation amongst service users persists. Aim To co-adapt, with service users, carers/supporters and health professionals, a web-based social network intervention, GENIE™, for use in secondary mental health services. The intervention is designed to support social activity and preference discussions between mental healthcare professionals and service users as a means of connecting individuals to local resources. Methods In Phase 1 (LEARN), we completed two systematic reviews to synthesise the existing evidence relating to the i) effectiveness and ii) the implementation of social network interventions for people with mental health difficulties. We undertook semi-structured interviews with a convenience sample of 15 stakeholders previously involved in the implementation of the intervention in physical healthcare settings. Interviews were also conducted with 5 national key stakeholders in mental health (e.g., policy makers, commissioners, third sector leads) to explore wider implementation issues. In Phase 2 (ADAPT), we worked iteratively with eight service users, nine carers, six professionals/volunteers and our patient and public advisory group. We drew on a framework for experience-based co-design, consisting of a series of stakeholder consultation events, to discuss the use of the social network intervention, in mental health services. Participants also considered factors that could serve as enablers, barriers, and challenges to local implementation. Results Across the stakeholder groups there was broad agreement that the social network intervention had potential to be useful within mental health services. In terms of appropriate and effective implementation, such an intervention was predicted to work best within the care planning process, on discharge from hospital and within early intervention services. There were indications that the social connection mapping and needs assessment components were of most value and feasible to implement which points to the potential utility of a simplified version compared to the one used in this study. The training provided to facilitators was considered to be more important than their profession and there were indications that service users should be offered the opportunity to invite a carer, friend, or family member to join them in the intervention. Conclusion The GENIE™ intervention has been co-adapted for use in mental health services and a plan for optimal implementation has been co-produced. The next phase of the programme of work is to design and implement a randomised controlled trial to evaluate clinical and cost effectiveness of a simplified version of the intervention.
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spelling doaj.art-a0ed849d92ea45159bdb154f04340e042022-12-22T03:12:54ZengBMCBMC Health Services Research1472-69632022-09-0122111810.1186/s12913-022-08521-1Adapting a social network intervention for use in secondary mental health services using a collaborative approach with service users, carers/supporters and health professionals in the United KingdomHelen Brooks0Angela Devereux-Fitzgerald1Laura Richmond2Neil Caton3Alice Newton4James Downs5Karina Lovell6Penny Bee7Mary Gemma Cherry8Bridget Young9Ivaylo Vassilev10Clare Rotheram11Anne Rogers12Mental Health Research Group, Jean McFarlane Building, Division of Nursing, Midwifery and Social Work, School of Health Sciences, Faculty of Biology, Medicine and Health, University of Manchester, Manchester Academic Health Science CentreMental Health Research Group, Jean McFarlane Building, Division of Nursing, Midwifery and Social Work, School of Health Sciences, Faculty of Biology, Medicine and Health, University of Manchester, Manchester Academic Health Science CentreMental Health Research Group, Jean McFarlane Building, Division of Nursing, Midwifery and Social Work, School of Health Sciences, Faculty of Biology, Medicine and Health, University of Manchester, Manchester Academic Health Science CentrePatient and Public Involvement Contributor, University of ManchesterPatient and Public Involvement Contributor, University of ManchesterPatient and Public Involvement Contributor, University of ManchesterMental Health Research Group, Jean McFarlane Building, Division of Nursing, Midwifery and Social Work, School of Health Sciences, Faculty of Biology, Medicine and Health, University of Manchester, Manchester Academic Health Science CentreMental Health Research Group, Jean McFarlane Building, Division of Nursing, Midwifery and Social Work, School of Health Sciences, Faculty of Biology, Medicine and Health, University of Manchester, Manchester Academic Health Science CentreDepartment of Primary Care and Mental Health, Institute of Population Health, University of LiverpoolDepartment of Public Health, Policy and Systems, Institute of Population Health, University of LiverpoolFaculty of Health Sciences, University of SouthamptonThe Life Rooms, Merseycare Foundation TrustFaculty of Health Sciences, University of SouthamptonAbstract Background Social integration, shared decision-making and personalised care are key elements of mental health and social care policy. Although these elements have been shown to improve service user and service-level outcomes, their translation into practice has been inconsistent and social isolation amongst service users persists. Aim To co-adapt, with service users, carers/supporters and health professionals, a web-based social network intervention, GENIE™, for use in secondary mental health services. The intervention is designed to support social activity and preference discussions between mental healthcare professionals and service users as a means of connecting individuals to local resources. Methods In Phase 1 (LEARN), we completed two systematic reviews to synthesise the existing evidence relating to the i) effectiveness and ii) the implementation of social network interventions for people with mental health difficulties. We undertook semi-structured interviews with a convenience sample of 15 stakeholders previously involved in the implementation of the intervention in physical healthcare settings. Interviews were also conducted with 5 national key stakeholders in mental health (e.g., policy makers, commissioners, third sector leads) to explore wider implementation issues. In Phase 2 (ADAPT), we worked iteratively with eight service users, nine carers, six professionals/volunteers and our patient and public advisory group. We drew on a framework for experience-based co-design, consisting of a series of stakeholder consultation events, to discuss the use of the social network intervention, in mental health services. Participants also considered factors that could serve as enablers, barriers, and challenges to local implementation. Results Across the stakeholder groups there was broad agreement that the social network intervention had potential to be useful within mental health services. In terms of appropriate and effective implementation, such an intervention was predicted to work best within the care planning process, on discharge from hospital and within early intervention services. There were indications that the social connection mapping and needs assessment components were of most value and feasible to implement which points to the potential utility of a simplified version compared to the one used in this study. The training provided to facilitators was considered to be more important than their profession and there were indications that service users should be offered the opportunity to invite a carer, friend, or family member to join them in the intervention. Conclusion The GENIE™ intervention has been co-adapted for use in mental health services and a plan for optimal implementation has been co-produced. The next phase of the programme of work is to design and implement a randomised controlled trial to evaluate clinical and cost effectiveness of a simplified version of the intervention.https://doi.org/10.1186/s12913-022-08521-1Social networksMental healthCo-adaptationPatient and public involvementImplementation
spellingShingle Helen Brooks
Angela Devereux-Fitzgerald
Laura Richmond
Neil Caton
Alice Newton
James Downs
Karina Lovell
Penny Bee
Mary Gemma Cherry
Bridget Young
Ivaylo Vassilev
Clare Rotheram
Anne Rogers
Adapting a social network intervention for use in secondary mental health services using a collaborative approach with service users, carers/supporters and health professionals in the United Kingdom
BMC Health Services Research
Social networks
Mental health
Co-adaptation
Patient and public involvement
Implementation
title Adapting a social network intervention for use in secondary mental health services using a collaborative approach with service users, carers/supporters and health professionals in the United Kingdom
title_full Adapting a social network intervention for use in secondary mental health services using a collaborative approach with service users, carers/supporters and health professionals in the United Kingdom
title_fullStr Adapting a social network intervention for use in secondary mental health services using a collaborative approach with service users, carers/supporters and health professionals in the United Kingdom
title_full_unstemmed Adapting a social network intervention for use in secondary mental health services using a collaborative approach with service users, carers/supporters and health professionals in the United Kingdom
title_short Adapting a social network intervention for use in secondary mental health services using a collaborative approach with service users, carers/supporters and health professionals in the United Kingdom
title_sort adapting a social network intervention for use in secondary mental health services using a collaborative approach with service users carers supporters and health professionals in the united kingdom
topic Social networks
Mental health
Co-adaptation
Patient and public involvement
Implementation
url https://doi.org/10.1186/s12913-022-08521-1
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