Giving an account of patients' experience: A qualitative study on the care process of hip and knee osteoarthritis
Abstract Introduction Despite the publication of clinical practice guidelines, the quality of the care process as experienced by patients with osteoarthritis (OA) appears suboptimal. Hence, this study investigates how patients with OA experience their disease and care process, highlighting potential...
| Main Authors: | , , , , , |
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| Format: | Article |
| Language: | English |
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Wiley
2022-06-01
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| Series: | Health Expectations |
| Subjects: | |
| Online Access: | https://doi.org/10.1111/hex.13468 |
| _version_ | 1811257708439928832 |
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| author | Simone Battista Mattia Manoni Andrea Dell'Isola Martin Englund Alvisa Palese Marco Testa |
| author_facet | Simone Battista Mattia Manoni Andrea Dell'Isola Martin Englund Alvisa Palese Marco Testa |
| author_sort | Simone Battista |
| collection | DOAJ |
| description | Abstract Introduction Despite the publication of clinical practice guidelines, the quality of the care process as experienced by patients with osteoarthritis (OA) appears suboptimal. Hence, this study investigates how patients with OA experience their disease and care process, highlighting potential elements that can enhance or spoil it, to optimise their quality of care. Methods A qualitative study based on semi‐structured interviews. Patients with hip and knee OA in Italy were interviewed. The interview guide was created by a pool of health professionals and patients. The interviews were analysed through a theme‐based analysis following a philosophy of descriptive phenomenological research. Results Our analysis revealed seven main themes: (1) Experiencing a sense of uncertainty, as interviewees perceived treatment choices not to be based on medical evidence; (2) Establishing challenging relationships with the self and the other, as they did not feel understood and felt ashamed or hopeless about their condition; (3) Being stuck in one's own or the health professionals' beliefs about the disease management, as a common thought was the perception of movement as something dangerous together with a frequent prescription of passive therapies; (4) Dealing with one's own attitudes towards the disease; Understanding (5) the barriers to and (6) the facilitators of the adherence to therapeutic exercise, which revolve around the therapy cost, the time needed and the patients' willingness to change their life habits and (7) Developing an uneasy relationship with food since the diet was considered as something that “you force yourself to follow” and overeating as a way “to eat your feelings”. Conclusion The lack of clear explanations and a negative attitude towards first‐line nonsurgical treatments (mainly physical exercise), which are considered as a way to fill the time while waiting for surgery, underlines the importance of providing patients with adequate information about OA treatments and to better explain the role of first‐line intervention in the care of OA. This will enhance patient‐centred and shared decision‐making treatments. Patient Contribution Patients with hip and knee OA participated in creating the interview and contributed with their experience of their care process. |
| first_indexed | 2024-04-12T18:01:40Z |
| format | Article |
| id | doaj.art-a112e89bb3294726a6282328cad7e955 |
| institution | Directory Open Access Journal |
| issn | 1369-6513 1369-7625 |
| language | English |
| last_indexed | 2024-04-12T18:01:40Z |
| publishDate | 2022-06-01 |
| publisher | Wiley |
| record_format | Article |
| series | Health Expectations |
| spelling | doaj.art-a112e89bb3294726a6282328cad7e9552022-12-22T03:22:08ZengWileyHealth Expectations1369-65131369-76252022-06-012531140115610.1111/hex.13468Giving an account of patients' experience: A qualitative study on the care process of hip and knee osteoarthritisSimone Battista0Mattia Manoni1Andrea Dell'Isola2Martin Englund3Alvisa Palese4Marco Testa5Department of Neurosciences, Rehabilitation, Ophthalmology, Genetics, Maternal and Child Health University of Genova Savona ItalyDepartment of Neurosciences, Rehabilitation, Ophthalmology, Genetics, Maternal and Child Health University of Genova Savona ItalyDepartment of Clinical Sciences, Clinical Epidemiology Unit, Orthopedics Lund University Lund SwedenDepartment of Clinical Sciences, Clinical Epidemiology Unit, Orthopedics Lund University Lund SwedenDepartment of Medical Sciences, School of Nursing University of Udine Udine ItalyDepartment of Neurosciences, Rehabilitation, Ophthalmology, Genetics, Maternal and Child Health University of Genova Savona ItalyAbstract Introduction Despite the publication of clinical practice guidelines, the quality of the care process as experienced by patients with osteoarthritis (OA) appears suboptimal. Hence, this study investigates how patients with OA experience their disease and care process, highlighting potential elements that can enhance or spoil it, to optimise their quality of care. Methods A qualitative study based on semi‐structured interviews. Patients with hip and knee OA in Italy were interviewed. The interview guide was created by a pool of health professionals and patients. The interviews were analysed through a theme‐based analysis following a philosophy of descriptive phenomenological research. Results Our analysis revealed seven main themes: (1) Experiencing a sense of uncertainty, as interviewees perceived treatment choices not to be based on medical evidence; (2) Establishing challenging relationships with the self and the other, as they did not feel understood and felt ashamed or hopeless about their condition; (3) Being stuck in one's own or the health professionals' beliefs about the disease management, as a common thought was the perception of movement as something dangerous together with a frequent prescription of passive therapies; (4) Dealing with one's own attitudes towards the disease; Understanding (5) the barriers to and (6) the facilitators of the adherence to therapeutic exercise, which revolve around the therapy cost, the time needed and the patients' willingness to change their life habits and (7) Developing an uneasy relationship with food since the diet was considered as something that “you force yourself to follow” and overeating as a way “to eat your feelings”. Conclusion The lack of clear explanations and a negative attitude towards first‐line nonsurgical treatments (mainly physical exercise), which are considered as a way to fill the time while waiting for surgery, underlines the importance of providing patients with adequate information about OA treatments and to better explain the role of first‐line intervention in the care of OA. This will enhance patient‐centred and shared decision‐making treatments. Patient Contribution Patients with hip and knee OA participated in creating the interview and contributed with their experience of their care process.https://doi.org/10.1111/hex.13468clinical governanceosteoarthritisphenomenologyphysical therapistsphysical therapy specialtypolicy making |
| spellingShingle | Simone Battista Mattia Manoni Andrea Dell'Isola Martin Englund Alvisa Palese Marco Testa Giving an account of patients' experience: A qualitative study on the care process of hip and knee osteoarthritis Health Expectations clinical governance osteoarthritis phenomenology physical therapists physical therapy specialty policy making |
| title | Giving an account of patients' experience: A qualitative study on the care process of hip and knee osteoarthritis |
| title_full | Giving an account of patients' experience: A qualitative study on the care process of hip and knee osteoarthritis |
| title_fullStr | Giving an account of patients' experience: A qualitative study on the care process of hip and knee osteoarthritis |
| title_full_unstemmed | Giving an account of patients' experience: A qualitative study on the care process of hip and knee osteoarthritis |
| title_short | Giving an account of patients' experience: A qualitative study on the care process of hip and knee osteoarthritis |
| title_sort | giving an account of patients experience a qualitative study on the care process of hip and knee osteoarthritis |
| topic | clinical governance osteoarthritis phenomenology physical therapists physical therapy specialty policy making |
| url | https://doi.org/10.1111/hex.13468 |
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