Control over Stories of Illness and Life

This article discusses the relationship between nonprofessional media participation and the professional handling of participants. It expands on the case of “Karen”, who related her life-threatening illness and patient experience in a broad range of media before transitioning into professional commu...

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Main Author: Ytreberg Espen
Format: Article
Language:English
Published: Sciendo 2019-03-01
Series:Nordicom Review
Subjects:
Online Access:https://doi.org/10.2478/nor-2019-0023
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author Ytreberg Espen
author_facet Ytreberg Espen
author_sort Ytreberg Espen
collection DOAJ
description This article discusses the relationship between nonprofessional media participation and the professional handling of participants. It expands on the case of “Karen”, who related her life-threatening illness and patient experience in a broad range of media before transitioning into professional communications work for a health organization that required her to recruit other patient-participants. The article contributes to research on media participation by focusing on the blurred boundaries between professionals and nonprofessionals. It describes how relationships between the two can be characterized by tensions and dilemmas that are closely tied to issues of status and control. Karen’s case is instructive in the particular light it sheds on such matters and on how control over the mediated telling of a life story is exercised.
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spelling doaj.art-a13d1c2236d544e0b8d83b3370796bbf2023-08-02T08:15:13ZengSciendoNordicom Review2001-51192019-03-01402374810.2478/nor-2019-0023Control over Stories of Illness and LifeYtreberg Espen0Department of Media and Communication, University of Oslo, OsloNorwayThis article discusses the relationship between nonprofessional media participation and the professional handling of participants. It expands on the case of “Karen”, who related her life-threatening illness and patient experience in a broad range of media before transitioning into professional communications work for a health organization that required her to recruit other patient-participants. The article contributes to research on media participation by focusing on the blurred boundaries between professionals and nonprofessionals. It describes how relationships between the two can be characterized by tensions and dilemmas that are closely tied to issues of status and control. Karen’s case is instructive in the particular light it sheds on such matters and on how control over the mediated telling of a life story is exercised.https://doi.org/10.2478/nor-2019-0023media participationmedia organizationsmedia professionspatientshealth
spellingShingle Ytreberg Espen
Control over Stories of Illness and Life
Nordicom Review
media participation
media organizations
media professions
patients
health
title Control over Stories of Illness and Life
title_full Control over Stories of Illness and Life
title_fullStr Control over Stories of Illness and Life
title_full_unstemmed Control over Stories of Illness and Life
title_short Control over Stories of Illness and Life
title_sort control over stories of illness and life
topic media participation
media organizations
media professions
patients
health
url https://doi.org/10.2478/nor-2019-0023
work_keys_str_mv AT ytrebergespen controloverstoriesofillnessandlife