Directly engaging with People with lived experiences of mental illness from the communities in India

Stigma and discrimination dissuade people with mental illnesses from talking openly about their problems. In India, these experiences are influenced by local cultural factors. Interventions to reduce mental health stigma in India indicated that very few studies have involved people with lived experi...

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Main Authors: Amanpreet Kaur, Ph.D., M.Phil., Sudha Kallakuri, M.Sc., Mercian Daniel, Ph.D., Sandhya K. Yatirajula, Ph.D., Siddhardha Devarapalli, Ph.D., Pallab K. Maulik, M.D., Ph.D.
Format: Article
Language:English
Published: Elsevier 2021-12-01
Series:SSM - Mental Health
Subjects:
Online Access:http://www.sciencedirect.com/science/article/pii/S2666560321000244
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author Amanpreet Kaur, Ph.D., M.Phil.
Sudha Kallakuri, M.Sc.
Mercian Daniel, Ph.D.
Sandhya K. Yatirajula, Ph.D.
Siddhardha Devarapalli, Ph.D.
Pallab K. Maulik, M.D., Ph.D.
author_facet Amanpreet Kaur, Ph.D., M.Phil.
Sudha Kallakuri, M.Sc.
Mercian Daniel, Ph.D.
Sandhya K. Yatirajula, Ph.D.
Siddhardha Devarapalli, Ph.D.
Pallab K. Maulik, M.D., Ph.D.
author_sort Amanpreet Kaur, Ph.D., M.Phil.
collection DOAJ
description Stigma and discrimination dissuade people with mental illnesses from talking openly about their problems. In India, these experiences are influenced by local cultural factors. Interventions to reduce mental health stigma in India indicated that very few studies have involved people with lived experiences (PWLEs) of mental illness and their families. As evidence shows that having interpersonal contact with a person with mental illness reduces stigma, we present our personal experiences in engaging with PWLEs of mental illness directly from the community. We discuss here the challenges experienced while engaging with PWLEs of mental illnesses because of stigma and feared discrimination from others in the community. Lessons learnt as part of past and ongoing mental health projects have been highlighted. Our experiences underline importance of involving local psychiatric facilities, community health workers and engagement with communities from the very outset as some key steps in increasing the chances of engaging with such individuals. Future strategies could make use of plethora of multi-media approaches such as, videos, films, drama, animations, podcasts, and audio-recordings aiming to reduce stigma and improve mental health literacy as part of anti-stigma interventions.
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spelling doaj.art-a1869d74ce0b4faeb7cd3a19eb92c5ab2022-12-21T23:17:05ZengElsevierSSM - Mental Health2666-56032021-12-011100024Directly engaging with People with lived experiences of mental illness from the communities in IndiaAmanpreet Kaur, Ph.D., M.Phil.0Sudha Kallakuri, M.Sc.1Mercian Daniel, Ph.D.2Sandhya K. Yatirajula, Ph.D.3Siddhardha Devarapalli, Ph.D.4Pallab K. Maulik, M.D., Ph.D.5The George Institute for Global Health, India; Corresponding author. 308, Third Floor, Elegance Tower, Plot No. 8, Jasola District Centre, New Delhi, 110025, India.The George Institute for Global Health, IndiaThe George Institute for Global Health, IndiaThe George Institute for Global Health, IndiaThe George Institute for Global Health, IndiaThe George Institute for Global Health, India; University of New South Wales, Sydney, Australia; Prasanna School of Public Health, Manipal University, IndiaStigma and discrimination dissuade people with mental illnesses from talking openly about their problems. In India, these experiences are influenced by local cultural factors. Interventions to reduce mental health stigma in India indicated that very few studies have involved people with lived experiences (PWLEs) of mental illness and their families. As evidence shows that having interpersonal contact with a person with mental illness reduces stigma, we present our personal experiences in engaging with PWLEs of mental illness directly from the community. We discuss here the challenges experienced while engaging with PWLEs of mental illnesses because of stigma and feared discrimination from others in the community. Lessons learnt as part of past and ongoing mental health projects have been highlighted. Our experiences underline importance of involving local psychiatric facilities, community health workers and engagement with communities from the very outset as some key steps in increasing the chances of engaging with such individuals. Future strategies could make use of plethora of multi-media approaches such as, videos, films, drama, animations, podcasts, and audio-recordings aiming to reduce stigma and improve mental health literacy as part of anti-stigma interventions.http://www.sciencedirect.com/science/article/pii/S2666560321000244StigmaDiscriminationPeople with lived experiencesMental illnessMental healthMulti-media approaches
spellingShingle Amanpreet Kaur, Ph.D., M.Phil.
Sudha Kallakuri, M.Sc.
Mercian Daniel, Ph.D.
Sandhya K. Yatirajula, Ph.D.
Siddhardha Devarapalli, Ph.D.
Pallab K. Maulik, M.D., Ph.D.
Directly engaging with People with lived experiences of mental illness from the communities in India
SSM - Mental Health
Stigma
Discrimination
People with lived experiences
Mental illness
Mental health
Multi-media approaches
title Directly engaging with People with lived experiences of mental illness from the communities in India
title_full Directly engaging with People with lived experiences of mental illness from the communities in India
title_fullStr Directly engaging with People with lived experiences of mental illness from the communities in India
title_full_unstemmed Directly engaging with People with lived experiences of mental illness from the communities in India
title_short Directly engaging with People with lived experiences of mental illness from the communities in India
title_sort directly engaging with people with lived experiences of mental illness from the communities in india
topic Stigma
Discrimination
People with lived experiences
Mental illness
Mental health
Multi-media approaches
url http://www.sciencedirect.com/science/article/pii/S2666560321000244
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