Community recommendations on biobank governance: Results from a deliberative community engagement in California.
United States-based biorepositories are on the cusp of substantial change in regulatory oversight at the same time that they are increasingly including samples and data from large populations, e.g. all patients in healthcare system. It is appropriate to engage stakeholders from these populations in...
Main Authors: | Sarah M Dry, Sarah B Garrett, Barbara A Koenig, Arleen F Brown, Michael M Burgess, Jen R Hult, Holly Longstaff, Elizabeth S Wilcox, Sigrid Karina Madrigal Contreras, Arturo Martinez, Elizabeth A Boyd, Daniel Dohan |
---|---|
Format: | Article |
Language: | English |
Published: |
Public Library of Science (PLoS)
2017-01-01
|
Series: | PLoS ONE |
Online Access: | http://europepmc.org/articles/PMC5325297?pdf=render |
Similar Items
-
Deliberative Pedagogy in the Community: Connecting Deliberative Dialogue, Community Engagement, and Democratic Education
by: Nicholas V. Longo
Published: (2013-10-01) -
Community Engagement for Big Epidemiology: Deliberative Democracy as a Tool
by: Rebekah E. McWhirter, et al.
Published: (2014-11-01) -
Ethics and the community of inquiry : education for deliberative democracy /
by: 303000 Burgh, Gilbert, et al.
Published: (2006) -
Addressing the affordability of cancer drugs: using deliberative public engagement to inform health policy
by: Colene Bentley, et al.
Published: (2019-02-01) -
A Community Deliberative Polling Event: The Economic Impact of Walmart
by: Christopher Latimer, et al.
Published: (2022-08-01)