Problems with primary care data quality: osteoporosis as an exemplar

Objective To report problems implementing a data quality programme in osteoporosis. Design Analysis of data extracted using Morbidity Information Query and Export Syntax (MIQUEST) from participating general practices’ systems and recommendations of practitioners who attended an action research works...

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Main Authors: Simon DeLusignan, Tom Valentin, Tom Chan, Nigel Hague, Oliver Wood, Jeremy VanVlymen, Neil Dhoul
Format: Article
Language:English
Published: BCS, The Chartered Institute for IT 2004-11-01
Series:Journal of Innovation in Health Informatics
Subjects:
Online Access:https://hijournal.bcs.org/index.php/jhi/article/view/120
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author Simon DeLusignan
Tom Valentin
Tom Chan
Nigel Hague
Oliver Wood
Jeremy VanVlymen
Neil Dhoul
author_facet Simon DeLusignan
Tom Valentin
Tom Chan
Nigel Hague
Oliver Wood
Jeremy VanVlymen
Neil Dhoul
author_sort Simon DeLusignan
collection DOAJ
description Objective To report problems implementing a data quality programme in osteoporosis. Design Analysis of data extracted using Morbidity Information Query and Export Syntax (MIQUEST) from participating general practices’ systems and recommendations of practitioners who attended an action research workshop. Setting Computerised general practices using different Read code versions to record structured data. Participants 78 practices predominantly from London and the south east, with representation from north east, north west and south west England. Main outcome measures Patients at risk can be represented in many ways within structured data. Although fracture data exists, it is unclear which are fragility fractures. T-scores, the gold standard for measuring bone density, cannot be extracted using the UK’s standard data extraction tool, MIQUEST; instead manual searches had to be implemented. There is a hundredfold variation in data recording levels between practices. Therapy is more frequently recorded than diagnosis. A multidisciplinary forum of experienced practitioners proposed that a limited list of codes should be used. Conclusions There is variability in inter-practice data quality. Some clinically important codes are lacking, and there are multiple ways that the same clinical concept can be represented. Different practice computer systems have different versions of Read code, making some data incompatible. Manual searching is still required to find data. Clinicians with an understanding of what data are clinically relevant need to have a stronger voice in the production of codes, and in the creation of recommended lists.
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spelling doaj.art-a1d45bb7f8774dfba8579a420d0547612022-12-21T17:32:21ZengBCS, The Chartered Institute for ITJournal of Innovation in Health Informatics2058-45552058-45632004-11-0112314715610.14236/jhi.v12i3.12099Problems with primary care data quality: osteoporosis as an exemplarSimon DeLusignanTom ValentinTom ChanNigel HagueOliver WoodJeremy VanVlymenNeil DhoulObjective To report problems implementing a data quality programme in osteoporosis. Design Analysis of data extracted using Morbidity Information Query and Export Syntax (MIQUEST) from participating general practices’ systems and recommendations of practitioners who attended an action research workshop. Setting Computerised general practices using different Read code versions to record structured data. Participants 78 practices predominantly from London and the south east, with representation from north east, north west and south west England. Main outcome measures Patients at risk can be represented in many ways within structured data. Although fracture data exists, it is unclear which are fragility fractures. T-scores, the gold standard for measuring bone density, cannot be extracted using the UK’s standard data extraction tool, MIQUEST; instead manual searches had to be implemented. There is a hundredfold variation in data recording levels between practices. Therapy is more frequently recorded than diagnosis. A multidisciplinary forum of experienced practitioners proposed that a limited list of codes should be used. Conclusions There is variability in inter-practice data quality. Some clinically important codes are lacking, and there are multiple ways that the same clinical concept can be represented. Different practice computer systems have different versions of Read code, making some data incompatible. Manual searching is still required to find data. Clinicians with an understanding of what data are clinically relevant need to have a stronger voice in the production of codes, and in the creation of recommended lists.https://hijournal.bcs.org/index.php/jhi/article/view/120computerised medical recordgeneral practicemedical informaticsosteoporosisprimary carevocabularycontrolled – classification
spellingShingle Simon DeLusignan
Tom Valentin
Tom Chan
Nigel Hague
Oliver Wood
Jeremy VanVlymen
Neil Dhoul
Problems with primary care data quality: osteoporosis as an exemplar
Journal of Innovation in Health Informatics
computerised medical record
general practice
medical informatics
osteoporosis
primary care
vocabulary
controlled – classification
title Problems with primary care data quality: osteoporosis as an exemplar
title_full Problems with primary care data quality: osteoporosis as an exemplar
title_fullStr Problems with primary care data quality: osteoporosis as an exemplar
title_full_unstemmed Problems with primary care data quality: osteoporosis as an exemplar
title_short Problems with primary care data quality: osteoporosis as an exemplar
title_sort problems with primary care data quality osteoporosis as an exemplar
topic computerised medical record
general practice
medical informatics
osteoporosis
primary care
vocabulary
controlled – classification
url https://hijournal.bcs.org/index.php/jhi/article/view/120
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