Case study analysis of end of life care development in the Chinese cultural context of Macao: a social movement perspective
Abstract Background The modern hospice movement is often recognised as a social movement. However, such understanding is primarily based on historic reflection and this approach has lacked theoretical exploration. There is a lack of systematic examination of the modern hospice movement by way of soc...
| Main Authors: | , , |
|---|---|
| Format: | Article |
| Language: | English |
| Published: |
BMC
2021-07-01
|
| Series: | BMC Palliative Care |
| Subjects: | |
| Online Access: | https://doi.org/10.1186/s12904-021-00807-1 |
| _version_ | 1819156772730961920 |
|---|---|
| author | Kuai In Tam Elaine Haycock-Stuart Sarah J. Rhynas |
| author_facet | Kuai In Tam Elaine Haycock-Stuart Sarah J. Rhynas |
| author_sort | Kuai In Tam |
| collection | DOAJ |
| description | Abstract Background The modern hospice movement is often recognised as a social movement. However, such understanding is primarily based on historic reflection and this approach has lacked theoretical exploration. There is a lack of systematic examination of the modern hospice movement by way of social movement theories. Aim Focusing on the Chinese socio-cultural context of Macao, this study aimed to understand the EoLC movement by applying the social movement theory, the Framing Perspective, as proposed by Snow and Benford in 1988. Methods A case study approach was conducted. Semi-structured interviews were held between 2012 and 2013, with pioneers (n = 11) of the EoLC in Macao. Thematic analysis was adopted to analyse the interviews. Results The Framing Perspective analysis illuminated that there was both growth and stagnation of the EoLC movement. Three themes emerged: 1) the suffering of people at the end of their lives was considered as a social problem needed to be addressed urgently, 2) the incoherent EoLC strategies developed by pioneers indicated the lack of internal ideological cohesion within the movement, 3) external constraints contributed to the stagnation of the movement. Conclusions The EoLC development in Macao can be understood as a social movement. The Framing Perspective provided a theoretical way to understand the emergence of EoLC; offering a novel perspective to conceptualise the modern hospice movement. This sociological and theoretical lens opened up new ways for future research to study the emergence of EoLC in different socio-cultural contexts. |
| first_indexed | 2024-12-22T15:58:11Z |
| format | Article |
| id | doaj.art-a28438f251c44a7cb95c5c8cd6ad20d3 |
| institution | Directory Open Access Journal |
| issn | 1472-684X |
| language | English |
| last_indexed | 2024-12-22T15:58:11Z |
| publishDate | 2021-07-01 |
| publisher | BMC |
| record_format | Article |
| series | BMC Palliative Care |
| spelling | doaj.art-a28438f251c44a7cb95c5c8cd6ad20d32022-12-21T18:20:45ZengBMCBMC Palliative Care1472-684X2021-07-0120111010.1186/s12904-021-00807-1Case study analysis of end of life care development in the Chinese cultural context of Macao: a social movement perspectiveKuai In Tam0Elaine Haycock-Stuart1Sarah J. Rhynas2Kiang Wu Nursing College of MacauNursing Studies, School of Health in Social Science, Teviot Place, the University of EdinburghNursing Studies, School of Health in Social Science, the University of EdinburghAbstract Background The modern hospice movement is often recognised as a social movement. However, such understanding is primarily based on historic reflection and this approach has lacked theoretical exploration. There is a lack of systematic examination of the modern hospice movement by way of social movement theories. Aim Focusing on the Chinese socio-cultural context of Macao, this study aimed to understand the EoLC movement by applying the social movement theory, the Framing Perspective, as proposed by Snow and Benford in 1988. Methods A case study approach was conducted. Semi-structured interviews were held between 2012 and 2013, with pioneers (n = 11) of the EoLC in Macao. Thematic analysis was adopted to analyse the interviews. Results The Framing Perspective analysis illuminated that there was both growth and stagnation of the EoLC movement. Three themes emerged: 1) the suffering of people at the end of their lives was considered as a social problem needed to be addressed urgently, 2) the incoherent EoLC strategies developed by pioneers indicated the lack of internal ideological cohesion within the movement, 3) external constraints contributed to the stagnation of the movement. Conclusions The EoLC development in Macao can be understood as a social movement. The Framing Perspective provided a theoretical way to understand the emergence of EoLC; offering a novel perspective to conceptualise the modern hospice movement. This sociological and theoretical lens opened up new ways for future research to study the emergence of EoLC in different socio-cultural contexts.https://doi.org/10.1186/s12904-021-00807-1The modern hospice movementHospice carePalliative careEnd of life careChinese culture |
| spellingShingle | Kuai In Tam Elaine Haycock-Stuart Sarah J. Rhynas Case study analysis of end of life care development in the Chinese cultural context of Macao: a social movement perspective BMC Palliative Care The modern hospice movement Hospice care Palliative care End of life care Chinese culture |
| title | Case study analysis of end of life care development in the Chinese cultural context of Macao: a social movement perspective |
| title_full | Case study analysis of end of life care development in the Chinese cultural context of Macao: a social movement perspective |
| title_fullStr | Case study analysis of end of life care development in the Chinese cultural context of Macao: a social movement perspective |
| title_full_unstemmed | Case study analysis of end of life care development in the Chinese cultural context of Macao: a social movement perspective |
| title_short | Case study analysis of end of life care development in the Chinese cultural context of Macao: a social movement perspective |
| title_sort | case study analysis of end of life care development in the chinese cultural context of macao a social movement perspective |
| topic | The modern hospice movement Hospice care Palliative care End of life care Chinese culture |
| url | https://doi.org/10.1186/s12904-021-00807-1 |
| work_keys_str_mv | AT kuaiintam casestudyanalysisofendoflifecaredevelopmentinthechineseculturalcontextofmacaoasocialmovementperspective AT elainehaycockstuart casestudyanalysisofendoflifecaredevelopmentinthechineseculturalcontextofmacaoasocialmovementperspective AT sarahjrhynas casestudyanalysisofendoflifecaredevelopmentinthechineseculturalcontextofmacaoasocialmovementperspective |