Non-profit drug research and development: the case study of Genethon

Non-profit drug research and development (R&D) has the potential to deliver innovative treatments at affordable prices. Using the case study methodology, we discuss some ethical and economic issues, including the possible impact of non-profit companies on innovation efforts from for-profit firms...

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Main Authors: Szymon Jarosławski, Mondher Toumi
Format: Article
Language:English
Published: MDPI AG 2019-01-01
Series:Journal of Market Access & Health Policy
Subjects:
Online Access:http://dx.doi.org/10.1080/20016689.2018.1545514
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author Szymon Jarosławski
Mondher Toumi
author_facet Szymon Jarosławski
Mondher Toumi
author_sort Szymon Jarosławski
collection DOAJ
description Non-profit drug research and development (R&D) has the potential to deliver innovative treatments at affordable prices. Using the case study methodology, we discuss some ethical and economic issues, including the possible impact of non-profit companies on innovation efforts from for-profit firms. Like other non-profits, Genethon is willing to adopt an ethical attitude toward their donors by pricing their products affordably. It remains to be seen if the approach to internalize the marketing authorization, manufacturing and distribution activities prove to be efficient and sustainable. Also, the firm faces an ethical dilemma because lower prices of innovative drugs can dry the for-profit R&D in the area and prevent patient access to future innovations.
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spelling doaj.art-a33ecda8b71c4bdc9aa0669033ba8fb22024-04-02T04:51:31ZengMDPI AGJournal of Market Access & Health Policy2001-66892019-01-017110.1080/20016689.2018.15455141545514Non-profit drug research and development: the case study of GenethonSzymon Jarosławski0Mondher Toumi1Aix-Marseille UniversityAix-Marseille UniversityNon-profit drug research and development (R&D) has the potential to deliver innovative treatments at affordable prices. Using the case study methodology, we discuss some ethical and economic issues, including the possible impact of non-profit companies on innovation efforts from for-profit firms. Like other non-profits, Genethon is willing to adopt an ethical attitude toward their donors by pricing their products affordably. It remains to be seen if the approach to internalize the marketing authorization, manufacturing and distribution activities prove to be efficient and sustainable. Also, the firm faces an ethical dilemma because lower prices of innovative drugs can dry the for-profit R&D in the area and prevent patient access to future innovations.http://dx.doi.org/10.1080/20016689.2018.1545514non-profitresearch and developmentpharmaceutical industryorphan drugspricingethics
spellingShingle Szymon Jarosławski
Mondher Toumi
Non-profit drug research and development: the case study of Genethon
Journal of Market Access & Health Policy
non-profit
research and development
pharmaceutical industry
orphan drugs
pricing
ethics
title Non-profit drug research and development: the case study of Genethon
title_full Non-profit drug research and development: the case study of Genethon
title_fullStr Non-profit drug research and development: the case study of Genethon
title_full_unstemmed Non-profit drug research and development: the case study of Genethon
title_short Non-profit drug research and development: the case study of Genethon
title_sort non profit drug research and development the case study of genethon
topic non-profit
research and development
pharmaceutical industry
orphan drugs
pricing
ethics
url http://dx.doi.org/10.1080/20016689.2018.1545514
work_keys_str_mv AT szymonjarosławski nonprofitdrugresearchanddevelopmentthecasestudyofgenethon
AT mondhertoumi nonprofitdrugresearchanddevelopmentthecasestudyofgenethon