Under-reporting of major birth defects in Northwest Russia: a registry-based study
The objective was to assess the prevalence of selected major birth defects, based on data from two medical registries in Murmansk County, and compare the observed rates with those available for Norway and Arkhangelsk County, Northwest Russia. It included all newborns (≥22 completed weeks of gestatio...
| Main Authors: | , , , , , |
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| Format: | Article |
| Language: | English |
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Taylor & Francis Group
2017-01-01
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| Series: | International Journal of Circumpolar Health |
| Subjects: | |
| Online Access: | http://dx.doi.org/10.1080/22423982.2017.1366785 |
| _version_ | 1818482967319674880 |
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| author | Anton A. Kovalenko Tormod Brenn Jon Øyvind Odland Evert Nieboer Alexandra Krettek Erik Eik Anda |
| author_facet | Anton A. Kovalenko Tormod Brenn Jon Øyvind Odland Evert Nieboer Alexandra Krettek Erik Eik Anda |
| author_sort | Anton A. Kovalenko |
| collection | DOAJ |
| description | The objective was to assess the prevalence of selected major birth defects, based on data from two medical registries in Murmansk County, and compare the observed rates with those available for Norway and Arkhangelsk County, Northwest Russia. It included all newborns (≥22 completed weeks of gestation) registered in the Murmansk County Birth Registry (MCBR) and born between 1 January 2006 and 31 December 2009 (n=35,417). The infants were followed-up post-partum for 2 years through direct linkage to the Murmansk Regional Congenital Defects Registry (MRCDR). Birth defects identified and confirmed in both registries constituted the “cases” and corresponded to one or more of the 21 birth defect types reportable to health authorities in Moscow. The overall prevalence of major birth defects recorded in the MRCDR was 50/10,000 before linkage and 77/10,000 after linkage with the MCBR. Routine under-reporting to the MRCDR of 40% cases was evident. This study demonstrates that birth registry data improved case ascertainment and official prevalence assessments and reduced the potential of under-reporting by physicians. The direct linkage of the two registries revealed that hypospadias cases were the most prevalent among the major birth defects in Murmansk County. Abbreviations: ICD-10, International Classification of Diseases, 10th revision; MCBR, Murmansk County Birth Registry; MRCDR, Murmansk Regional Congenital Defects Registry; MGC, Murmansk Genetics Center |
| first_indexed | 2024-12-10T11:54:03Z |
| format | Article |
| id | doaj.art-a351ff91f82a48ff8b1e3c448464ead1 |
| institution | Directory Open Access Journal |
| issn | 2242-3982 |
| language | English |
| last_indexed | 2024-12-10T11:54:03Z |
| publishDate | 2017-01-01 |
| publisher | Taylor & Francis Group |
| record_format | Article |
| series | International Journal of Circumpolar Health |
| spelling | doaj.art-a351ff91f82a48ff8b1e3c448464ead12022-12-22T01:49:51ZengTaylor & Francis GroupInternational Journal of Circumpolar Health2242-39822017-01-0176110.1080/22423982.2017.13667851366785Under-reporting of major birth defects in Northwest Russia: a registry-based studyAnton A. Kovalenko0Tormod Brenn1Jon Øyvind Odland2Evert Nieboer3Alexandra Krettek4Erik Eik Anda5UiT The Arctic University of NorwayUiT The Arctic University of NorwayUiT The Arctic University of NorwayMcMaster UniversityUiT The Arctic University of NorwayUiT The Arctic University of NorwayThe objective was to assess the prevalence of selected major birth defects, based on data from two medical registries in Murmansk County, and compare the observed rates with those available for Norway and Arkhangelsk County, Northwest Russia. It included all newborns (≥22 completed weeks of gestation) registered in the Murmansk County Birth Registry (MCBR) and born between 1 January 2006 and 31 December 2009 (n=35,417). The infants were followed-up post-partum for 2 years through direct linkage to the Murmansk Regional Congenital Defects Registry (MRCDR). Birth defects identified and confirmed in both registries constituted the “cases” and corresponded to one or more of the 21 birth defect types reportable to health authorities in Moscow. The overall prevalence of major birth defects recorded in the MRCDR was 50/10,000 before linkage and 77/10,000 after linkage with the MCBR. Routine under-reporting to the MRCDR of 40% cases was evident. This study demonstrates that birth registry data improved case ascertainment and official prevalence assessments and reduced the potential of under-reporting by physicians. The direct linkage of the two registries revealed that hypospadias cases were the most prevalent among the major birth defects in Murmansk County. Abbreviations: ICD-10, International Classification of Diseases, 10th revision; MCBR, Murmansk County Birth Registry; MRCDR, Murmansk Regional Congenital Defects Registry; MGC, Murmansk Genetics Centerhttp://dx.doi.org/10.1080/22423982.2017.1366785Birth defectbirth registrylinkageunder-reporting |
| spellingShingle | Anton A. Kovalenko Tormod Brenn Jon Øyvind Odland Evert Nieboer Alexandra Krettek Erik Eik Anda Under-reporting of major birth defects in Northwest Russia: a registry-based study International Journal of Circumpolar Health Birth defect birth registry linkage under-reporting |
| title | Under-reporting of major birth defects in Northwest Russia: a registry-based study |
| title_full | Under-reporting of major birth defects in Northwest Russia: a registry-based study |
| title_fullStr | Under-reporting of major birth defects in Northwest Russia: a registry-based study |
| title_full_unstemmed | Under-reporting of major birth defects in Northwest Russia: a registry-based study |
| title_short | Under-reporting of major birth defects in Northwest Russia: a registry-based study |
| title_sort | under reporting of major birth defects in northwest russia a registry based study |
| topic | Birth defect birth registry linkage under-reporting |
| url | http://dx.doi.org/10.1080/22423982.2017.1366785 |
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