How do caregivers of children living with HIV/AIDS cope, and where do they get support?: A qualitative study in Ghana
Abstract Background Caring for children living with human immunodeficiency virus and acquired immunodeficiency syndrome (HIV/AIDS) is challenging and has a tremendous impact on the physical and psychological health of caregivers. Caregivers of children with HIV/AIDS need to adopt coping mechanisms t...
| Main Authors: | , , , , , , , |
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| Format: | Article |
| Language: | English |
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Wiley
2023-04-01
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| Series: | Lifestyle Medicine |
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| Online Access: | https://doi.org/10.1002/lim2.79 |
| _version_ | 1797844681462120448 |
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| author | Gideon Awenabisa Atanuriba Felix Apiribu Timothy Tienbia Laari Adwoa Bemah Boamah Bonsu Veronica Millicent Dzomeku Richard Adongo Afaya Yakubu Salifu Philemon Adoliwine Amooba |
| author_facet | Gideon Awenabisa Atanuriba Felix Apiribu Timothy Tienbia Laari Adwoa Bemah Boamah Bonsu Veronica Millicent Dzomeku Richard Adongo Afaya Yakubu Salifu Philemon Adoliwine Amooba |
| author_sort | Gideon Awenabisa Atanuriba |
| collection | DOAJ |
| description | Abstract Background Caring for children living with human immunodeficiency virus and acquired immunodeficiency syndrome (HIV/AIDS) is challenging and has a tremendous impact on the physical and psychological health of caregivers. Caregivers of children with HIV/AIDS need to adopt coping mechanisms to navigate these complexities as it influences the quality of care provided. The literature on coping strategies and support (formal and informal) available to caregivers of children living with HIV/AIDS is scant. This study aimed to explore the coping strategies and support systems for caregivers of children living with HIV/AIDS. Methods A phenomenological study design was adopted. A total of nine participants across three hospitals in the Tamale metropolis were interviewed using purposive sampling. The interviews were audio recorded, transcribed verbatim and analysed using Colaizzi's approach. Results Four main themes emerged from the analyses: (1) coping strategies, (2) types of support activities, (3) support from informal institutions and (4) support from formal institutions. The caregivers navigated the caring process with much spiritual coping. The caregivers had little or no support from informal institutions such as immediate family, faith and community leaders. Non‐governmental organizations were not visible in support, and there were no support groups for caregivers. Conclusion Support for caregivers and the active involvement of the immediate family in paediatric HIV care is imperative. |
| first_indexed | 2024-04-09T17:27:18Z |
| format | Article |
| id | doaj.art-a3d8387f1a3a4330adf7e150ceb5e673 |
| institution | Directory Open Access Journal |
| issn | 2688-3740 |
| language | English |
| last_indexed | 2024-04-09T17:27:18Z |
| publishDate | 2023-04-01 |
| publisher | Wiley |
| record_format | Article |
| series | Lifestyle Medicine |
| spelling | doaj.art-a3d8387f1a3a4330adf7e150ceb5e6732023-04-18T12:19:45ZengWileyLifestyle Medicine2688-37402023-04-0142n/an/a10.1002/lim2.79How do caregivers of children living with HIV/AIDS cope, and where do they get support?: A qualitative study in GhanaGideon Awenabisa Atanuriba0Felix Apiribu1Timothy Tienbia Laari2Adwoa Bemah Boamah Bonsu3Veronica Millicent Dzomeku4Richard Adongo Afaya5Yakubu Salifu6Philemon Adoliwine Amooba7Department of Pediatrics Tamale Regional/Central Hospital, Northern Region Tamale GhanaDepartment of Nursing, Faculty of Allied Health Sciences College of Health, Sciences, Kwame Nkrumah University of Science and Technology Kumasi GhanaDepartment of Nursing, Faculty of Allied Health Sciences College of Health, Sciences, Kwame Nkrumah University of Science and Technology Kumasi GhanaDepartment of Nursing, Faculty of Allied Health Sciences College of Health, Sciences, Kwame Nkrumah University of Science and Technology Kumasi GhanaDepartment of Nursing, Faculty of Allied Health Sciences College of Health, Sciences, Kwame Nkrumah University of Science and Technology Kumasi GhanaDepartment of Surgery Tamale West Hospital, Northern Region Tamale GhanaInternational Observatory on End of Life Care, Division of Health Research Faculty of Health and Medicine, Lancaster University Lancaster Lancashire UKDepartment of Nursing, Faculty of Allied Health Sciences College of Health, Sciences, Kwame Nkrumah University of Science and Technology Kumasi GhanaAbstract Background Caring for children living with human immunodeficiency virus and acquired immunodeficiency syndrome (HIV/AIDS) is challenging and has a tremendous impact on the physical and psychological health of caregivers. Caregivers of children with HIV/AIDS need to adopt coping mechanisms to navigate these complexities as it influences the quality of care provided. The literature on coping strategies and support (formal and informal) available to caregivers of children living with HIV/AIDS is scant. This study aimed to explore the coping strategies and support systems for caregivers of children living with HIV/AIDS. Methods A phenomenological study design was adopted. A total of nine participants across three hospitals in the Tamale metropolis were interviewed using purposive sampling. The interviews were audio recorded, transcribed verbatim and analysed using Colaizzi's approach. Results Four main themes emerged from the analyses: (1) coping strategies, (2) types of support activities, (3) support from informal institutions and (4) support from formal institutions. The caregivers navigated the caring process with much spiritual coping. The caregivers had little or no support from informal institutions such as immediate family, faith and community leaders. Non‐governmental organizations were not visible in support, and there were no support groups for caregivers. Conclusion Support for caregivers and the active involvement of the immediate family in paediatric HIV care is imperative.https://doi.org/10.1002/lim2.79caregiverschildren living with HIV/AIDScopingsupport |
| spellingShingle | Gideon Awenabisa Atanuriba Felix Apiribu Timothy Tienbia Laari Adwoa Bemah Boamah Bonsu Veronica Millicent Dzomeku Richard Adongo Afaya Yakubu Salifu Philemon Adoliwine Amooba How do caregivers of children living with HIV/AIDS cope, and where do they get support?: A qualitative study in Ghana Lifestyle Medicine caregivers children living with HIV/AIDS coping support |
| title | How do caregivers of children living with HIV/AIDS cope, and where do they get support?: A qualitative study in Ghana |
| title_full | How do caregivers of children living with HIV/AIDS cope, and where do they get support?: A qualitative study in Ghana |
| title_fullStr | How do caregivers of children living with HIV/AIDS cope, and where do they get support?: A qualitative study in Ghana |
| title_full_unstemmed | How do caregivers of children living with HIV/AIDS cope, and where do they get support?: A qualitative study in Ghana |
| title_short | How do caregivers of children living with HIV/AIDS cope, and where do they get support?: A qualitative study in Ghana |
| title_sort | how do caregivers of children living with hiv aids cope and where do they get support a qualitative study in ghana |
| topic | caregivers children living with HIV/AIDS coping support |
| url | https://doi.org/10.1002/lim2.79 |
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