Advance Care Planning and Place of Death During the COVID-19 Pandemic: A Retrospective Analysis of Routinely Collected Data
Increased advance care planning was endorsed at the start of the Coronavirus disease 2019 (COVID-19) pandemic with the aim of optimizing end-of-life care. This retrospective observational cohort study explores the impact of advanced care planning on place of death. 21,962 records from patients who d...
| Main Authors: | , , , , , , , , , |
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| Format: | Article |
| Language: | English |
| Published: |
SAGE Publishing
2023-07-01
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| Series: | Journal of Patient Experience |
| Online Access: | https://doi.org/10.1177/23743735231188826 |
| _version_ | 1797749190474858496 |
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| author | Philippa McFarlane MSc Katherine E Sleeman PhD Catey Bunce PhD Jonathan Koffman PhD Martina Orlovic PhD John Rosling Alastair Bearne Margaret Powell Julia Riley PhD Joanne Droney PhD |
| author_facet | Philippa McFarlane MSc Katherine E Sleeman PhD Catey Bunce PhD Jonathan Koffman PhD Martina Orlovic PhD John Rosling Alastair Bearne Margaret Powell Julia Riley PhD Joanne Droney PhD |
| author_sort | Philippa McFarlane MSc |
| collection | DOAJ |
| description | Increased advance care planning was endorsed at the start of the Coronavirus disease 2019 (COVID-19) pandemic with the aim of optimizing end-of-life care. This retrospective observational cohort study explores the impact of advanced care planning on place of death. 21,962 records from patients who died during the first year of the pandemic and who had an Electronic Palliative Care Coordination System record were included. 11,913 (54%) had a documented place of death. Of these 5,339 died at home and 2,378 died in hospital. 9,971 (45%) had both a documented place of death and a preferred place of death. Of these, 7,668 (77%) died in their preferred location. Documented elements of advance care planning, such as resuscitation status and ceiling of treatment decisions, were associated with an increased likelihood of dying in the preferred location, as were the number of times the record was viewed. During the COVID-19 pandemic, advanced care planning and the use of digital care coordination systems presented an opportunity for patients and healthcare staff to personalize care and influence end-of-life experiences. |
| first_indexed | 2024-03-12T16:16:40Z |
| format | Article |
| id | doaj.art-a41b03dc799a419eb33c1477d41597d3 |
| institution | Directory Open Access Journal |
| issn | 2374-3743 |
| language | English |
| last_indexed | 2024-03-12T16:16:40Z |
| publishDate | 2023-07-01 |
| publisher | SAGE Publishing |
| record_format | Article |
| series | Journal of Patient Experience |
| spelling | doaj.art-a41b03dc799a419eb33c1477d41597d32023-08-09T04:03:19ZengSAGE PublishingJournal of Patient Experience2374-37432023-07-011010.1177/23743735231188826Advance Care Planning and Place of Death During the COVID-19 Pandemic: A Retrospective Analysis of Routinely Collected DataPhilippa McFarlane MSc0Katherine E Sleeman PhD1Catey Bunce PhD2Jonathan Koffman PhD3Martina Orlovic PhD4John Rosling5Alastair Bearne6Margaret Powell7Julia Riley PhD8Joanne Droney PhD9 The Cicely Saunders Institute, King's College London, London, England The Cicely Saunders Institute, King's College London, London, England , England Wolfson Palliative Care Research Centre, , York, England , England , England , England , England , London, England , London, EnglandIncreased advance care planning was endorsed at the start of the Coronavirus disease 2019 (COVID-19) pandemic with the aim of optimizing end-of-life care. This retrospective observational cohort study explores the impact of advanced care planning on place of death. 21,962 records from patients who died during the first year of the pandemic and who had an Electronic Palliative Care Coordination System record were included. 11,913 (54%) had a documented place of death. Of these 5,339 died at home and 2,378 died in hospital. 9,971 (45%) had both a documented place of death and a preferred place of death. Of these, 7,668 (77%) died in their preferred location. Documented elements of advance care planning, such as resuscitation status and ceiling of treatment decisions, were associated with an increased likelihood of dying in the preferred location, as were the number of times the record was viewed. During the COVID-19 pandemic, advanced care planning and the use of digital care coordination systems presented an opportunity for patients and healthcare staff to personalize care and influence end-of-life experiences.https://doi.org/10.1177/23743735231188826 |
| spellingShingle | Philippa McFarlane MSc Katherine E Sleeman PhD Catey Bunce PhD Jonathan Koffman PhD Martina Orlovic PhD John Rosling Alastair Bearne Margaret Powell Julia Riley PhD Joanne Droney PhD Advance Care Planning and Place of Death During the COVID-19 Pandemic: A Retrospective Analysis of Routinely Collected Data Journal of Patient Experience |
| title | Advance Care Planning and Place of Death During the COVID-19 Pandemic: A Retrospective Analysis of Routinely Collected Data |
| title_full | Advance Care Planning and Place of Death During the COVID-19 Pandemic: A Retrospective Analysis of Routinely Collected Data |
| title_fullStr | Advance Care Planning and Place of Death During the COVID-19 Pandemic: A Retrospective Analysis of Routinely Collected Data |
| title_full_unstemmed | Advance Care Planning and Place of Death During the COVID-19 Pandemic: A Retrospective Analysis of Routinely Collected Data |
| title_short | Advance Care Planning and Place of Death During the COVID-19 Pandemic: A Retrospective Analysis of Routinely Collected Data |
| title_sort | advance care planning and place of death during the covid 19 pandemic a retrospective analysis of routinely collected data |
| url | https://doi.org/10.1177/23743735231188826 |
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