Inter-institutional data-driven education research: consensus values, principles, and recommendations to guide the ethical sharing of administrative education data in the Canadian medical education research context
Background: Administrative data are generated when educating, licensing, and regulating future physicians, but these data are rarely used beyond their pre-specified purposes. The capacity necessary for sensitive and responsive oversight that supports the sharing of administrative medical education...
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| Format: | Article |
| Language: | English |
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Canadian Medical Education Journal
2023-06-01
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| Series: | Canadian Medical Education Journal |
| Online Access: | https://journalhosting.ucalgary.ca/index.php/cmej/article/view/75874 |
| _version_ | 1797797213225615360 |
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| author | Lawrence Grierson Alice Cavanagh Alaa Youssef Rachelle Lee-Krueger Kestrel McNeill Brenton Button Kulamakan Kulasegaram |
| author_facet | Lawrence Grierson Alice Cavanagh Alaa Youssef Rachelle Lee-Krueger Kestrel McNeill Brenton Button Kulamakan Kulasegaram |
| author_sort | Lawrence Grierson |
| collection | DOAJ |
| description |
Background: Administrative data are generated when educating, licensing, and regulating future physicians, but these data are rarely used beyond their pre-specified purposes. The capacity necessary for sensitive and responsive oversight that supports the sharing of administrative medical education data across institutions for research purposes needs to be developed.
Method: A pan-Canadian consensus-building project was undertaken to develop agreement on the goals, benefits, risks, values, and principles that should underpin inter-institutional data-driven medical education research in Canada. A survey of key literature, consultations with various stakeholders, and five successive knowledge synthesis workshops informed this project. Propositions were developed, driving subsequent discussions until collective agreement was distilled.
Results: Consensus coalesced around six key principles: Establishing clear purposes, rationale, and methodology for inter-institutional data-driven research a priori; informed consent from data generators in education systems is non-negotiable; multi-institutional data sharing requires special governance; data governance should be guided by data sovereignty; data use should be guided by an identified set of shared values; and best practices in research data-management should be applied.
Conclusion: We recommend establishing a representative governance body, engaging a trusted data facility, and adherence to extant data management policies when sharing administrative medical education data for research purposes in Canada.
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| first_indexed | 2024-03-13T03:45:51Z |
| format | Article |
| id | doaj.art-a491ce817aaa433ea8a82d3989b9a6fb |
| institution | Directory Open Access Journal |
| issn | 1923-1202 |
| language | English |
| last_indexed | 2024-03-13T03:45:51Z |
| publishDate | 2023-06-01 |
| publisher | Canadian Medical Education Journal |
| record_format | Article |
| series | Canadian Medical Education Journal |
| spelling | doaj.art-a491ce817aaa433ea8a82d3989b9a6fb2023-06-23T04:06:17ZengCanadian Medical Education JournalCanadian Medical Education Journal1923-12022023-06-0110.36834/cmej.75874Inter-institutional data-driven education research: consensus values, principles, and recommendations to guide the ethical sharing of administrative education data in the Canadian medical education research contextLawrence Grierson0Alice Cavanagh1Alaa Youssef2Rachelle Lee-Krueger3Kestrel McNeill4Brenton Button5Kulamakan Kulasegaram6McMaster UniversityMcMaster UniversityStanford School of MedicineUniversity of OttawaMcMaster UniversityNorthern Ontario School of MedicineUniversity of Toronto Background: Administrative data are generated when educating, licensing, and regulating future physicians, but these data are rarely used beyond their pre-specified purposes. The capacity necessary for sensitive and responsive oversight that supports the sharing of administrative medical education data across institutions for research purposes needs to be developed. Method: A pan-Canadian consensus-building project was undertaken to develop agreement on the goals, benefits, risks, values, and principles that should underpin inter-institutional data-driven medical education research in Canada. A survey of key literature, consultations with various stakeholders, and five successive knowledge synthesis workshops informed this project. Propositions were developed, driving subsequent discussions until collective agreement was distilled. Results: Consensus coalesced around six key principles: Establishing clear purposes, rationale, and methodology for inter-institutional data-driven research a priori; informed consent from data generators in education systems is non-negotiable; multi-institutional data sharing requires special governance; data governance should be guided by data sovereignty; data use should be guided by an identified set of shared values; and best practices in research data-management should be applied. Conclusion: We recommend establishing a representative governance body, engaging a trusted data facility, and adherence to extant data management policies when sharing administrative medical education data for research purposes in Canada. https://journalhosting.ucalgary.ca/index.php/cmej/article/view/75874 |
| spellingShingle | Lawrence Grierson Alice Cavanagh Alaa Youssef Rachelle Lee-Krueger Kestrel McNeill Brenton Button Kulamakan Kulasegaram Inter-institutional data-driven education research: consensus values, principles, and recommendations to guide the ethical sharing of administrative education data in the Canadian medical education research context Canadian Medical Education Journal |
| title | Inter-institutional data-driven education research: consensus values, principles, and recommendations to guide the ethical sharing of administrative education data in the Canadian medical education research context |
| title_full | Inter-institutional data-driven education research: consensus values, principles, and recommendations to guide the ethical sharing of administrative education data in the Canadian medical education research context |
| title_fullStr | Inter-institutional data-driven education research: consensus values, principles, and recommendations to guide the ethical sharing of administrative education data in the Canadian medical education research context |
| title_full_unstemmed | Inter-institutional data-driven education research: consensus values, principles, and recommendations to guide the ethical sharing of administrative education data in the Canadian medical education research context |
| title_short | Inter-institutional data-driven education research: consensus values, principles, and recommendations to guide the ethical sharing of administrative education data in the Canadian medical education research context |
| title_sort | inter institutional data driven education research consensus values principles and recommendations to guide the ethical sharing of administrative education data in the canadian medical education research context |
| url | https://journalhosting.ucalgary.ca/index.php/cmej/article/view/75874 |
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