HIV-Positive Patients’ Perceptions of Antiretroviral Therapy Adherence in Relation to Subjective Time: Imprinting, Domino Effects, and Future Shadowing
Antiretroviral treatment adherence barriers are major concerns in HIV care. They are multiple and change over time. Considering temporality in patients’ perceptions of adherence barriers could improve adherence management. We explored how temporality manifests itself in patients’ perceptions of adhe...
| Main Authors: | , , , , |
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| Format: | Article |
| Language: | English |
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SAGE Publishing
2018-02-01
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| Series: | Journal of the International Association of Providers of AIDS Care |
| Online Access: | https://doi.org/10.1177/2325958218759208 |
| _version_ | 1818097268442529792 |
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| author | David Lessard PhD Isabelle Toupin PhD Kim Engler PhD Andràs Lènàrt MSc c Bertrand Lebouché MD, PhD |
| author_facet | David Lessard PhD Isabelle Toupin PhD Kim Engler PhD Andràs Lènàrt MSc c Bertrand Lebouché MD, PhD |
| author_sort | David Lessard PhD |
| collection | DOAJ |
| description | Antiretroviral treatment adherence barriers are major concerns in HIV care. They are multiple and change over time. Considering temporality in patients’ perceptions of adherence barriers could improve adherence management. We explored how temporality manifests itself in patients’ perceptions of adherence barriers. We conducted 2 semi-structured focus groups on adherence barriers with 12 adults with HIV which were analyzed with grounded theory. A third focus group served to validate the results obtained. Three temporal categories were manifest in HIV-positive patients’ perceptions of barriers: (1) imprinting (events with lasting impacts on patients), (2) domino effects (chain of life events), and (3) future shadowing (apprehension about long-term adherence). An overarching theme, weathering (gradual erosion of abilities to adhere), traversed these categories. These temporalities explain how similar barriers may be perceived differently by patients. They could be useful to providers for adapting their interventions and improving understanding of patients’ subjective experience of adherence. |
| first_indexed | 2024-12-10T23:17:49Z |
| format | Article |
| id | doaj.art-a53442c1005744deb649188b5e74bae0 |
| institution | Directory Open Access Journal |
| issn | 2325-9582 |
| language | English |
| last_indexed | 2024-12-10T23:17:49Z |
| publishDate | 2018-02-01 |
| publisher | SAGE Publishing |
| record_format | Article |
| series | Journal of the International Association of Providers of AIDS Care |
| spelling | doaj.art-a53442c1005744deb649188b5e74bae02022-12-22T01:29:47ZengSAGE PublishingJournal of the International Association of Providers of AIDS Care2325-95822018-02-011710.1177/2325958218759208HIV-Positive Patients’ Perceptions of Antiretroviral Therapy Adherence in Relation to Subjective Time: Imprinting, Domino Effects, and Future ShadowingDavid Lessard PhD0Isabelle Toupin PhD1Kim Engler PhD2Andràs Lènàrt MSc c3 4Bertrand Lebouché MD, PhD5 Department of Family Medicine, McGill University, Research Institute of the McGill University Health Centre, Montreal, Quebec, Canada Department of Family Medicine, McGill University, Research Institute of the McGill University Health Centre, Montreal, Quebec, Canada Department of Family Medicine, McGill University, Research Institute of the McGill University Health Centre, Montreal, Quebec, Canada Department of Family Medicine, McGill University, Research Institute of the McGill University Health Centre, Montreal, Quebec, Canada Department of Family Medicine, McGill University, Research Institute of the McGill University Health Centre, Montreal, Quebec, Canada Department of Family Medicine, McGill University, Research Institute of the McGill University Health Centre, Montreal, Quebec, CanadaAntiretroviral treatment adherence barriers are major concerns in HIV care. They are multiple and change over time. Considering temporality in patients’ perceptions of adherence barriers could improve adherence management. We explored how temporality manifests itself in patients’ perceptions of adherence barriers. We conducted 2 semi-structured focus groups on adherence barriers with 12 adults with HIV which were analyzed with grounded theory. A third focus group served to validate the results obtained. Three temporal categories were manifest in HIV-positive patients’ perceptions of barriers: (1) imprinting (events with lasting impacts on patients), (2) domino effects (chain of life events), and (3) future shadowing (apprehension about long-term adherence). An overarching theme, weathering (gradual erosion of abilities to adhere), traversed these categories. These temporalities explain how similar barriers may be perceived differently by patients. They could be useful to providers for adapting their interventions and improving understanding of patients’ subjective experience of adherence.https://doi.org/10.1177/2325958218759208 |
| spellingShingle | David Lessard PhD Isabelle Toupin PhD Kim Engler PhD Andràs Lènàrt MSc c Bertrand Lebouché MD, PhD HIV-Positive Patients’ Perceptions of Antiretroviral Therapy Adherence in Relation to Subjective Time: Imprinting, Domino Effects, and Future Shadowing Journal of the International Association of Providers of AIDS Care |
| title | HIV-Positive Patients’ Perceptions of Antiretroviral Therapy Adherence in Relation to Subjective Time: Imprinting, Domino Effects, and Future Shadowing |
| title_full | HIV-Positive Patients’ Perceptions of Antiretroviral Therapy Adherence in Relation to Subjective Time: Imprinting, Domino Effects, and Future Shadowing |
| title_fullStr | HIV-Positive Patients’ Perceptions of Antiretroviral Therapy Adherence in Relation to Subjective Time: Imprinting, Domino Effects, and Future Shadowing |
| title_full_unstemmed | HIV-Positive Patients’ Perceptions of Antiretroviral Therapy Adherence in Relation to Subjective Time: Imprinting, Domino Effects, and Future Shadowing |
| title_short | HIV-Positive Patients’ Perceptions of Antiretroviral Therapy Adherence in Relation to Subjective Time: Imprinting, Domino Effects, and Future Shadowing |
| title_sort | hiv positive patients perceptions of antiretroviral therapy adherence in relation to subjective time imprinting domino effects and future shadowing |
| url | https://doi.org/10.1177/2325958218759208 |
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