Representation in participatory health care decision‐making: Reflections on an Application‐Oriented Model
Abstract Context The involvement of lay people in health care decision‐making processes is now the norm in many countries. However, one important aspect of participation has not received sufficient attention in the past and remains underexplored: representation. Objective This paper explores the que...
| Main Authors: | , |
|---|---|
| Format: | Article |
| Language: | English |
| Published: |
Wiley
2022-08-01
|
| Series: | Health Expectations |
| Subjects: | |
| Online Access: | https://doi.org/10.1111/hex.13483 |
| _version_ | 1818041584325754880 |
|---|---|
| author | Tim Holetzek Christine Holmberg |
| author_facet | Tim Holetzek Christine Holmberg |
| author_sort | Tim Holetzek |
| collection | DOAJ |
| description | Abstract Context The involvement of lay people in health care decision‐making processes is now the norm in many countries. However, one important aspect of participation has not received sufficient attention in the past and remains underexplored: representation. Objective This paper explores the question of how public participation efforts in collective health care decision‐making processes can attempt to aim for legitimate representation so that those individuals or groups not present can be taken into account in the decisions affecting them. This paper argues that to make decisions that effectively address those affected, representation needs to be seen as a relevant part of any participatory setting. To support this argument, the paper outlines the concepts of participation and representation and transfers them to health care contexts. Results A conceptual reflection on responsiveness and the characteristics of representative actors in representative‐participatory settings is introduced, which could provide actors planning to conduct participatory health care projects with tools to reflect on the merits and possible flaws of participatory constellations. Patient or Public Contribution The paper contributes to improving public participation in health care decision‐making. |
| first_indexed | 2024-12-10T08:32:45Z |
| format | Article |
| id | doaj.art-a545d6cb51c84f83883286cd0cd0f19a |
| institution | Directory Open Access Journal |
| issn | 1369-6513 1369-7625 |
| language | English |
| last_indexed | 2024-12-10T08:32:45Z |
| publishDate | 2022-08-01 |
| publisher | Wiley |
| record_format | Article |
| series | Health Expectations |
| spelling | doaj.art-a545d6cb51c84f83883286cd0cd0f19a2022-12-22T01:56:03ZengWileyHealth Expectations1369-65131369-76252022-08-012541444145210.1111/hex.13483Representation in participatory health care decision‐making: Reflections on an Application‐Oriented ModelTim Holetzek0Christine Holmberg1Institute of Social Medicine and Epidemiology Brandenburg Medical School Theodor Fontane Brandenburg an der Havel GermanyInstitute of Social Medicine and Epidemiology Brandenburg Medical School Theodor Fontane Brandenburg an der Havel GermanyAbstract Context The involvement of lay people in health care decision‐making processes is now the norm in many countries. However, one important aspect of participation has not received sufficient attention in the past and remains underexplored: representation. Objective This paper explores the question of how public participation efforts in collective health care decision‐making processes can attempt to aim for legitimate representation so that those individuals or groups not present can be taken into account in the decisions affecting them. This paper argues that to make decisions that effectively address those affected, representation needs to be seen as a relevant part of any participatory setting. To support this argument, the paper outlines the concepts of participation and representation and transfers them to health care contexts. Results A conceptual reflection on responsiveness and the characteristics of representative actors in representative‐participatory settings is introduced, which could provide actors planning to conduct participatory health care projects with tools to reflect on the merits and possible flaws of participatory constellations. Patient or Public Contribution The paper contributes to improving public participation in health care decision‐making.https://doi.org/10.1111/hex.13483health care decision‐makinglegitimacyparticipationrepresentationresponsiveness |
| spellingShingle | Tim Holetzek Christine Holmberg Representation in participatory health care decision‐making: Reflections on an Application‐Oriented Model Health Expectations health care decision‐making legitimacy participation representation responsiveness |
| title | Representation in participatory health care decision‐making: Reflections on an Application‐Oriented Model |
| title_full | Representation in participatory health care decision‐making: Reflections on an Application‐Oriented Model |
| title_fullStr | Representation in participatory health care decision‐making: Reflections on an Application‐Oriented Model |
| title_full_unstemmed | Representation in participatory health care decision‐making: Reflections on an Application‐Oriented Model |
| title_short | Representation in participatory health care decision‐making: Reflections on an Application‐Oriented Model |
| title_sort | representation in participatory health care decision making reflections on an application oriented model |
| topic | health care decision‐making legitimacy participation representation responsiveness |
| url | https://doi.org/10.1111/hex.13483 |
| work_keys_str_mv | AT timholetzek representationinparticipatoryhealthcaredecisionmakingreflectionsonanapplicationorientedmodel AT christineholmberg representationinparticipatoryhealthcaredecisionmakingreflectionsonanapplicationorientedmodel |