Traumatic brain injury epidemiology and rehabilitation in Ireland: a protocol paper [version 2; peer review: 1 approved, 2 approved with reservations]
Background: Traumatic brain injury (TBI) is a leading cause of death and disability worldwide. In Ireland, a dearth of research means that we neither know the number of people affected by TBI, nor have the required data to improve neuro-rehabilitation services. This is a study protocol to examine th...
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| Format: | Article |
| Language: | English |
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F1000 Research Ltd
2022-09-01
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| Series: | HRB Open Research |
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| Online Access: | https://hrbopenresearch.org/articles/4-66/v2 |
| _version_ | 1827792806770376704 |
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| author | Andrea Kwasky Anthony Staines Philip O'Halloran Grainne McGettrick Kate O'Donnell Catherine Corrigan Teresa Burke Andrea Healy |
| author_facet | Andrea Kwasky Anthony Staines Philip O'Halloran Grainne McGettrick Kate O'Donnell Catherine Corrigan Teresa Burke Andrea Healy |
| author_sort | Andrea Kwasky |
| collection | DOAJ |
| description | Background: Traumatic brain injury (TBI) is a leading cause of death and disability worldwide. In Ireland, a dearth of research means that we neither know the number of people affected by TBI, nor have the required data to improve neuro-rehabilitation services. This is a study protocol to examine the epidemiology and pathways through rehabilitation for a cohort of TBI survivors in the Republic of Ireland. Aims: To document the epidemiological data of TBIs in Ireland. To explore the pathway of TBI survivors through rehabilitation/health services. To document the experiences of those providing care for TBI survivors in Ireland Methods: This is a quantitative cohort study. Existing routine datasets will be used to report epidemiological data. Participants with moderate or severe TBI will be recruited through two brain injury service providers, two acute hospitals that provide neurosurgical services, and the National Rehabilitation Hospital. Participants with TBI will be surveyed on two separate occasions, to explore their use of health and rehabilitation services. Those providing care or support to TBI survivors will be surveyed, on one occasion. Additionally, data from the medical records of TBI survivors will be extracted to capture key information about their TBI, such as mechanism of injury, severity, hospitalisation and follow-up. TBI survivors’ use of health care will be followed prospectively for six months. Expected outcomes: The epidemiological data of TBI in Ireland will be documented. Data on survivors’ experiences of how rehabilitation services are accessed, and any barriers encountered with rehabilitation/health services will be reported. The experiences of those providing care or support for TBI survivors will be captured. It is expected that the outcomes of the study will support advocacy efforts toward the redevelopment of neuro-rehabilitation services in the Republic of Ireland. |
| first_indexed | 2024-03-11T18:08:29Z |
| format | Article |
| id | doaj.art-a559ed6e27134871abcef8f65cebad32 |
| institution | Directory Open Access Journal |
| issn | 2515-4826 |
| language | English |
| last_indexed | 2024-03-11T18:08:29Z |
| publishDate | 2022-09-01 |
| publisher | F1000 Research Ltd |
| record_format | Article |
| series | HRB Open Research |
| spelling | doaj.art-a559ed6e27134871abcef8f65cebad322023-10-17T00:00:00ZengF1000 Research LtdHRB Open Research2515-48262022-09-01414875Traumatic brain injury epidemiology and rehabilitation in Ireland: a protocol paper [version 2; peer review: 1 approved, 2 approved with reservations]Andrea Kwasky0https://orcid.org/0000-0003-0883-8062Anthony Staines1https://orcid.org/0000-0001-9161-1357Philip O'Halloran2https://orcid.org/0000-0001-9175-8682Grainne McGettrick3Kate O'Donnell4https://orcid.org/0000-0002-4695-7559Catherine Corrigan5https://orcid.org/0000-0001-6683-0718Teresa Burke6Andrea Healy7https://orcid.org/0000-0002-2032-8973College of Health Professions and McAuley School of Nursing, University of Detroit Mercy, Detroit, Michigan, USASchool of Nursing, Psychotherapy and Community Health, Dublin City University, Dublin 9, IrelandRoyal College of Surgeons in Ireland, Dublin, IrelandResearch and Policy Management, Acquired Brain Injury Ireland, Dun Laoghaire, Co Dublin, IrelandSchool of Nursing, Psychotherapy and Community Health, Dublin City University, Dublin 9, IrelandCentre for eIntegrated Care, Dublin City University, Dublin, 9, IrelandSchool of Psychology, Dublin City University, Dublin, IrelandSchool of Nursing, Psychotherapy and Community Health, Dublin City University, Dublin 9, IrelandBackground: Traumatic brain injury (TBI) is a leading cause of death and disability worldwide. In Ireland, a dearth of research means that we neither know the number of people affected by TBI, nor have the required data to improve neuro-rehabilitation services. This is a study protocol to examine the epidemiology and pathways through rehabilitation for a cohort of TBI survivors in the Republic of Ireland. Aims: To document the epidemiological data of TBIs in Ireland. To explore the pathway of TBI survivors through rehabilitation/health services. To document the experiences of those providing care for TBI survivors in Ireland Methods: This is a quantitative cohort study. Existing routine datasets will be used to report epidemiological data. Participants with moderate or severe TBI will be recruited through two brain injury service providers, two acute hospitals that provide neurosurgical services, and the National Rehabilitation Hospital. Participants with TBI will be surveyed on two separate occasions, to explore their use of health and rehabilitation services. Those providing care or support to TBI survivors will be surveyed, on one occasion. Additionally, data from the medical records of TBI survivors will be extracted to capture key information about their TBI, such as mechanism of injury, severity, hospitalisation and follow-up. TBI survivors’ use of health care will be followed prospectively for six months. Expected outcomes: The epidemiological data of TBI in Ireland will be documented. Data on survivors’ experiences of how rehabilitation services are accessed, and any barriers encountered with rehabilitation/health services will be reported. The experiences of those providing care or support for TBI survivors will be captured. It is expected that the outcomes of the study will support advocacy efforts toward the redevelopment of neuro-rehabilitation services in the Republic of Ireland.https://hrbopenresearch.org/articles/4-66/v2Traumatic Brain Injury TBI Head Injury Brain Injury Rehabilitation Epidemiologyeng |
| spellingShingle | Andrea Kwasky Anthony Staines Philip O'Halloran Grainne McGettrick Kate O'Donnell Catherine Corrigan Teresa Burke Andrea Healy Traumatic brain injury epidemiology and rehabilitation in Ireland: a protocol paper [version 2; peer review: 1 approved, 2 approved with reservations] HRB Open Research Traumatic Brain Injury TBI Head Injury Brain Injury Rehabilitation Epidemiology eng |
| title | Traumatic brain injury epidemiology and rehabilitation in Ireland: a protocol paper [version 2; peer review: 1 approved, 2 approved with reservations] |
| title_full | Traumatic brain injury epidemiology and rehabilitation in Ireland: a protocol paper [version 2; peer review: 1 approved, 2 approved with reservations] |
| title_fullStr | Traumatic brain injury epidemiology and rehabilitation in Ireland: a protocol paper [version 2; peer review: 1 approved, 2 approved with reservations] |
| title_full_unstemmed | Traumatic brain injury epidemiology and rehabilitation in Ireland: a protocol paper [version 2; peer review: 1 approved, 2 approved with reservations] |
| title_short | Traumatic brain injury epidemiology and rehabilitation in Ireland: a protocol paper [version 2; peer review: 1 approved, 2 approved with reservations] |
| title_sort | traumatic brain injury epidemiology and rehabilitation in ireland a protocol paper version 2 peer review 1 approved 2 approved with reservations |
| topic | Traumatic Brain Injury TBI Head Injury Brain Injury Rehabilitation Epidemiology eng |
| url | https://hrbopenresearch.org/articles/4-66/v2 |
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